Hi Megan How are you and Paige...I have been thinking of the 2 of u.I was going to call u...for some reason I cant find your # on my cell...MIA was on clobestol also..she had nice regrowth...but she now has spots once again..Give me call when u have a chance..Good Luck
That is so awesome..Paige sounds like a strong gal.Please post some new pictures of Paige when you can. You should be so proud of her!!!Sam is progressing slowly..I am trying to stay positive.We see the doctor on Tues.
Oh, Megan is so cute. She reminds me so much of Olivia at that
age. Like Megan Olivia had hats in every color. But when she lost
all of her hair the second time at age 8, she decided not to wear
hats or wigs. But thats OK, because I think she is beautiful bald!
If you have a few minutes, check out our video that we just
wrote, filmed and produced about alopecia and bullying. Luckly
Olivia was never teased or bullied, however we know others who
have been. With the positive message, we are so proud of the
way it turned out! On Olivia's profile, just click on videos and "I COULD BE GREAT! Let us know what you think of it.
Tell Megan how excited we are to hear she ready to wear her own hair to school!! Please post a picture when you can. Sam is still growing, but not at the rate Paige has and we still have no facial hair coming in. We are making progress month to month. I will post some new pictures soon..I am so happy and proud of Paige!!!
Thank you. Your daughter is lovely as well. Maygen wore hats at that age all the time. I know at one time she had a dresser drawer full of hats. You know if you start to see hair loss again, I think you should try and get ahold of the hair club for kids. They have hair systems that they can attach with clips to the hair that is there. You will find that the both of you will be stronger people because of this. Your daughter is a cutie, big beautiful eyes and such an amazing smile!
Hi. I am Maygen's mom. Maygen first lost her hair when she was 3. She had the flu and got really sick. With in a week or two, she started loosing her hair like crazy, not that she had much. Her hair grew back in and then it fell out again. It was only maybe an inch long. However we started using steroid drops and her hair returned when she was four. When she entered school she had hair about to the middle of her neck. She started getting small patches, but with steroid cream it controlled most of it. It was always towards the back or around her ears that she lost hair. This year when she turned 13 all of her hair started falling out. So it has been 10 years since we have dealt with this much hair loss. She just started taking steroid pills. She will be on them for 3 weeks. If in a month her hair does not grow back, her derm doc will not due any other treatments. We just went to the Hair Club for Men last Thursday and had her fitted for a hair system.
Overall, the kids at school are good to her. They know about her condition and think it is cool that she gets to wear different wigs. There are a few that say mean things, but I will make sure that it is handled. Maygen is a leader academically, athleticly, and socially at her school. She is kind to everyone. I think that is why others are kind to her. I do believe that we can have hope of her hair returning with prayer and faith, but also with acceptance of this disease. If it is not God's Will for her hair to return, then she will manage through life stronger than we could ever have imagined. I understand your heartache. We only want to protect our kids. We want them to have everything that we have and more. Be her strong rock to lean on. Talk, and talk and then talk some more about everything with her. Listen to her about how she feels, don't let other people's lack of knowledge or ignorance cause you pain.
Maygen told me a month or so ago, mom please don't be so sad. I asked her how she felt about what was happening, and she said; Mom there is a part of me that is glad I have alopecia. I was shocked! She went on to say that she felt the AA is what keeps her humble. She successful at everything she does and yet the AA helps her to remember that she is not perfect. I was dumbfounded. If having AA has helped to shape the lovely young lady that I have as my daughter, then I too am glad she has it. For it has allowed her to have the greatest attitude a mother could ever wish for her 13 year old daughter to have. :-)
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