Hi Rachel-
My sister sent me an article that was published awhile ago about a scientist who has alopecia and is studying alopecia. Here is the link to the article: http://discovermagazine.com/2006/feb/when-women-go-bald
I thought you might find it interesting since you are working on a Ph.D in Microbiology and Immunology. Hope you enjoy it! Also, I hope you make in back to Galveston soon and everything is ok with your house. I live in Houston and it slowly starting to return to normal here after Hurricane Ike. Take care!
Sarah
Oh bummer,
I saw that girl like i said and well you have a twin and she must have Alopecia wanted to ask but not sure how. Well I hope things get better for you in Texas and your able to head home soon but I would of love to meet you\
I just love your new bob. It seems like you are really coming to terms with your Alopecia - great for you! Have you made it back to Galveston? Things around here (Pearland) are getting back to normal.
how are you
what is your new hair called who's it by. wow you have really had great luck picking out hair. hey by the way I asked before but not sure if you saw the message but were you at a Target store in the Downers grove area. iwas there with my kids and I there was a girl who looked just like you in line with me.
well do you think you'll make the Bald Girls Do Lunch in Nov.
jessica
You look great! Thank you for sharing the Salon information! I've been trying to find a place that sells great looking wigs that dont look like wigs. Yours looks great! Does the bobbi brown eyeliner work better than regular liquid eyeliner? Thats what I'm using right now, but I'm not too happy with it. It tends to smear quite a bit.
That's so great I just think she's great. So are you getting a vacuum piece?? I'm planning on looking at some wigs on Wed's I've been losing hair like crazy.
So about getting together well I've tried and everyone has been so back and forth on setting a date but i do know that a few were really excited so lets throw out idea again and see who's in, I'm always up for going out so even if it's a small group I'm in. Where are you staying?
Hi Rachel-
Thank you for letting me know about the salon in Arlington Heights! I had not heard about it and will definitely be checking it out. I also have a small head and I know typical wigs won't fit it since most hats don't fit either :)
So your in Chicago? I'm in the woodridge area about 40 min away from the city. So your meeting with Karen for a vacuum wig she is great so super nice. Good luck with your new hair and make sure you take a look at her web site just amazing work.
jessica
At 7:31pm on September 16, 2008, dollydreadful said…
hey rachel how've you been doing last time we chatted you were pretty upset- I hope you are feeling better
HI Rachel, every body in here understand how you are feeling now. Its hard and confusing. Here you can find many people to talk about, personally talking about this is a good way to understand it better...
Hey there Rachel!
I just love your Angry Eye blog! You are so right!
I have lost just a part of my left eyebrow (it keeps coming and going) but I just wanted to say I really admire the way you are handling yourself, I've been dealing with AA/AT for about 10 years and I'm still a mess about it. I have my good days and my bad! Just like everyone I guess. But I wanted to introduce myself and tell ya if you ever need to chat Im here. It really helps to have this site! I unfortunatly just found this site i wish it had been 10years earlier it prob would of made a BIG difference in my acceptance to have people who I could have talked to ya know!
well have a great day
casey
hmmm that's strange what pic was it - I think im scared ....Oh wait now I know the pic of me in the halloween mask :) - they were 99 cents each couldn't resist :)
Rachel -Hi again didn't see your comment - yes I was just disgnosed on Friday, however I feel very cheated by the dermatologist - he didn't even look at the spot - he went by what I wrote in the intake paperwork - he didn't let me part my hair nothing
he instead tried to make me start taking valtrex every day when I have very few episodes, very mild episodes and succesfully address them even before anything visible occurs by taking my meds promptly - I take about 3 pills every 4 months or so and my primary doctor - who is fabulous but far away told me that is totally fine
he then looked at these little spots on my face and told me he coudl "correct" those as well
I have two spots on the crown of my head -I used to wear a sort of beehive hairstyle I did this for about a year so initially I thought traction alopecia but the circles are pretty round - so I really don't know
I have very little hx about my father's family and my maternal grandma lost her hair later in life perhaps about 65 I would say but she always had really thin hair
I was hoping for the dermatologist to look at the area and give me some differntial diagnosis - apparently that was too much for him
I refused the steroid injections -because they can't prevent other spots and from what I have read they may or may not result in hair growth this measured with the potential side effects made me not want the injections
He prescribed a cream I woudl rather wait and see what happends naturally at this point
My niece's husband has alopecia areata as well and he had the steroid injections stopped and lost hair again - he has been using acupuncture according to my sister ( they livein Florida) with some success
If I am going any route it will be with accupuncture
I also part my hair and try expose the area as much as I can
I am scared too - I think for a long time Ihave sort of hidden behind my hair - my fiance tried to tell me he doesn't care but I went insane last weekend to the point that I was crying nonstop for about three days - he literally had to pick me up off the floor at one point
and this is all weird because when I was in my late teens early twenties I used to rock a chelsea cut - not sure if you knwo what that is its like a buzz cut with bangs and I loved it ...
I think its because its a matter of choice - I feel right now my body is betraying me - but I'm better than last weekend - i am smiling again trying to take things day by day - anytime you want to chat drop me a line
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My sister sent me an article that was published awhile ago about a scientist who has alopecia and is studying alopecia. Here is the link to the article: http://discovermagazine.com/2006/feb/when-women-go-bald
I thought you might find it interesting since you are working on a Ph.D in Microbiology and Immunology. Hope you enjoy it! Also, I hope you make in back to Galveston soon and everything is ok with your house. I live in Houston and it slowly starting to return to normal here after Hurricane Ike. Take care!
Sarah
I saw that girl like i said and well you have a twin and she must have Alopecia wanted to ask but not sure how. Well I hope things get better for you in Texas and your able to head home soon but I would of love to meet you\
jessica
I just love your new bob. It seems like you are really coming to terms with your Alopecia - great for you! Have you made it back to Galveston? Things around here (Pearland) are getting back to normal.
how are you
what is your new hair called who's it by. wow you have really had great luck picking out hair. hey by the way I asked before but not sure if you saw the message but were you at a Target store in the Downers grove area. iwas there with my kids and I there was a girl who looked just like you in line with me.
well do you think you'll make the Bald Girls Do Lunch in Nov.
jessica
lol ur head looks just like mine my hair is really long compared to the bald spots :) lol
That's so great I just think she's great. So are you getting a vacuum piece?? I'm planning on looking at some wigs on Wed's I've been losing hair like crazy.
So about getting together well I've tried and everyone has been so back and forth on setting a date but i do know that a few were really excited so lets throw out idea again and see who's in, I'm always up for going out so even if it's a small group I'm in. Where are you staying?
whats up
Thank you for letting me know about the salon in Arlington Heights! I had not heard about it and will definitely be checking it out. I also have a small head and I know typical wigs won't fit it since most hats don't fit either :)
So your in Chicago? I'm in the woodridge area about 40 min away from the city. So your meeting with Karen for a vacuum wig she is great so super nice. Good luck with your new hair and make sure you take a look at her web site just amazing work.
jessica
I just love your Angry Eye blog! You are so right!
I have lost just a part of my left eyebrow (it keeps coming and going) but I just wanted to say I really admire the way you are handling yourself, I've been dealing with AA/AT for about 10 years and I'm still a mess about it. I have my good days and my bad! Just like everyone I guess. But I wanted to introduce myself and tell ya if you ever need to chat Im here. It really helps to have this site! I unfortunatly just found this site i wish it had been 10years earlier it prob would of made a BIG difference in my acceptance to have people who I could have talked to ya know!
well have a great day
casey
he instead tried to make me start taking valtrex every day when I have very few episodes, very mild episodes and succesfully address them even before anything visible occurs by taking my meds promptly - I take about 3 pills every 4 months or so and my primary doctor - who is fabulous but far away told me that is totally fine
he then looked at these little spots on my face and told me he coudl "correct" those as well
I have two spots on the crown of my head -I used to wear a sort of beehive hairstyle I did this for about a year so initially I thought traction alopecia but the circles are pretty round - so I really don't know
I have very little hx about my father's family and my maternal grandma lost her hair later in life perhaps about 65 I would say but she always had really thin hair
I was hoping for the dermatologist to look at the area and give me some differntial diagnosis - apparently that was too much for him
I refused the steroid injections -because they can't prevent other spots and from what I have read they may or may not result in hair growth this measured with the potential side effects made me not want the injections
He prescribed a cream I woudl rather wait and see what happends naturally at this point
My niece's husband has alopecia areata as well and he had the steroid injections stopped and lost hair again - he has been using acupuncture according to my sister ( they livein Florida) with some success
If I am going any route it will be with accupuncture
I also part my hair and try expose the area as much as I can
I am scared too - I think for a long time Ihave sort of hidden behind my hair - my fiance tried to tell me he doesn't care but I went insane last weekend to the point that I was crying nonstop for about three days - he literally had to pick me up off the floor at one point
and this is all weird because when I was in my late teens early twenties I used to rock a chelsea cut - not sure if you knwo what that is its like a buzz cut with bangs and I loved it ...
I think its because its a matter of choice - I feel right now my body is betraying me - but I'm better than last weekend - i am smiling again trying to take things day by day - anytime you want to chat drop me a line
well..yeah Simba is a hearthrob wherever he goes..
i just hope he'd be happy and healthy wherever he be
say "kien problem" to AA, you'v a way to go girl !!
best wishes..
Am glad to be a part of this wonderful site, hope to catch up sometime for a chat.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.