I have no one left in my family except for my sister.
So what better person to share my pain about my alopecia right?
I shared my pain with her, she offered her support in which I thought was wonderful, until I decide to check out my facebook page and here were photos of her bragging about her long up to the butt hair, many photos of wind blowing the hair,hair up, hair down you name it , it was there.
I felt very hurt, I could MAYBE take it better from a stranger but my SISTER??
Now my sister keeps bothering me to come visit me,,so I think to myself is she coming to really visit me? or is she coming here to show off her hair?
It is these people who make me feel like hiding away and make me feel the world is against me.

May God make me stronger today than I was yesterday!!

Views: 1

Comment by Carmen Dayhoff on May 31, 2010 at 5:14pm
bigg hugs.stand up for u. take care of ur self.u don't hv to let stuff in ur life, sister or not.losing hair is a grieving process.don't forget to grieve.gather information.try to find a bright side.
Comment by Carmen Dayhoff on May 31, 2010 at 5:21pm
i hv AU and my bright side is I hv baby soft legs&I hv never shaved a day in my life.Long beautiful hair is great but its hairy,sweaty in the sun or at the gym,alot of wk&expense to maintain.OVERATED.
Comment by Galena on May 31, 2010 at 5:41pm
Hello Lisa-Lynn,
God has already made you stronger--you live with alopecia. Choose to look at it this way, your sis is not being competitive. She loves her hair, just like I did three years ago before I discovered my first patch. So she loves her hair, so what? Don't take her pictures as an offense to your condition. If you feel envious, that's okay, but understand envy is your problem not hers. Strive to maintain a good relationship with your sister. You both need each other in this world. If you discover that she's being disrespectful to you by making fun of your baldness, then talk to her directly by telling her how it makes you feel. Right now I don't think she's trying to disrespect you, but maybe she wants to affirm that she has hair (and maybe she fears that she could get alopecia). Don't consider a visit with her as a competition unless you discover otherwise.
Peace and Blessings,
Comment by Sherry Washington on May 31, 2010 at 7:07pm
Unfortunately when we deal with hair loss we tend to take the hair issue very sensitive. Your sister loves her hair just like you loved yours when you had it. You have to channel your sensitivity and move forward because she is all you have. Trust me I'm sure she feels your pain, but she still have to live. Just find a way to deal with your new look....it may take time, but you can make it!

Many Blessings unto You,
Comment by Tallgirl on May 31, 2010 at 9:07pm
I agree with Galena...maybe she's afraid and is milking it for all it is worth while she still has it. If she was advertising personality traits more, you would probably feel better, right? Turn this around: if your site stresses personality strengths, would a person who has few of these have a right to be hurt or to want you to remove your site? Do we put forth whatever we think will "attract" friends or lovers, on whatever level we operate, and not really even consider those who happen upon our "advertisement" or "brag page?"
Comment by Michelle L on June 1, 2010 at 4:20am
Hey Lisa-lyn! Yiou say your sister has been wonderful and supportive of you and your alopecia. We also all know only too well that as people with Alopecia, we are hyper-aware of ever hair on everyone else's heads, right? Well - maybe you are looking at her facebook page which has a lot of pictures of herself (as mine does!) and are only seeing her hair because that's what you are so aware of at the moment. I would imagine that when she posted those pictures, she was simply posting pictures, probably with no thought to how it might affect you, because her facebook page is about her, not you, and you are only one of the many people who will see it.

My point is (and so sorry for being so long-winded!) that she may have been insensitive to how it might make you feel, but I don't think attacking you was her reason for posting the pics. They were probably posted before she even knew about your Alopecia.

Your sister is the only one you've got and I am sure she loves you. Tell her how you are feeling, but I still say, be aware that it's your issue and yop of your mind, and I am certain that she is entirely unaware of how she has inadvertently made you feel.

Love and light xoxo
Comment by Ella on June 1, 2010 at 10:39am
She posted these on your facebook page? I would calmly ask her wth is up with that. Did she write anything with them, like tag them as vacation photos or anything? Where they all of only her and not other things or people included? I feel very badly this happened to you, some people are just completely oblivious, and then some are just sometimes mean. Maybe there is an innocent explanation, maybe she just does not really get it, then maybe she is envious of something that you do have in your life that maybe she does not and sees this as an opportunity to show off what she has got. Sisters can be great, but sometimes they simply suck. I do suggest you talk with her, give her the opportunity to eplain, but don't start it off in a defensive accusatory tone as that will just heighten emotions.

Wishing you all the best, and please know that you are not alone in the siblings sometimes suck camp.


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