I could not wait to return home & share what happened to me over this past weekend with my fellow alopecian sister's & brother's.

This January will mark the 5th year since loseing my hair to AAU, it was during my search for answers in those first painful weeks that I would read Leslie Ann Butler's book "If Your Hair Falls Out, Keep Dancing" which in turn would lead me to AW, my saving grace.

It is here I would find not only answers; but also,friends who were & are in the…

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This past January will be 4 years since I lost all my hair. I think I have coped pretty well with it, tried to stay strong & up; but, lately, it just seems I am missing my hair, angry at my body. The why's coming back. Why the eye brows & eye lashes, will they or my hair ever come back. Do we all go through this? I know that my wounds ar still fresh, 4 years isnt really that along. I admire so many Alopecian sisters & brothers who have delt with this damn disease with such…

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I owe my Alopecia World Sister's & Brother's an apology, for I have been absent for over 2 1/2 months.

I pulled a typical Cancer (my sign) & withdrew into my shell.

During Sept to current I was dealing with a Mom who sadly has dementia, but fortunately I have my sister, Kathy, we lean on each other. On September 23rd I lost one of my oldest & dearest friends to complications to diabetics. Patty as I described her to Heather, was an extraordinary individual. She helped me… Continue

JUST WISHING EVERYONE ON ALOPECIA WORLD A VERY HAPPY, FUN & SAFE 4TH OF JULY.

HAPPY BIRTHDAY AMERICA ****** :) *****

Hello everyone or should I say Aloha.

My husband Vince & I just received our 2010 2nd Annual NBO tee shirts. I must say the Cafe Press has done a fabulous job with a great selection to choose from.

I ordered a white tee for Vince & a Pink one for me. They arrived today, I/we are so pleased, they look, feel & fit great.



I am so very excited & looking forward to celebrating the 2nd Annual NBO, this wonderful celebration will take place while Vince & I are… Continue

Hello Everyone, I am looking for some make-up advise, we, my husband & I are attending the wedding of a friend, with the triple digit heat here, 108 today, 106 tomorrow which happens to be the event day.

I have no plans to wear Carol (my wig), I have gone ah natural before to dinner but this is my first big event going ah natural. I experimented this afternoon with makeup which I hope does not melt off, oh I feel for the bride, the thought of a gown in this heat, ug.

Back to… Continue

Hello Everyone, well Monday has come & gone & along with it my appeals presentation before the Administrative Law Judge.

A brief explanation,I am retired from the County of Riverside, after fighting for a Administrative Law Judge awarded me my medicare benefits. With the County I have insurance, I signed my medicare rights/coverage over to my current insurance, Secure Horizons.

When I lost all my hair in January my Dermatologist wrote out a request for a cranial prosthesis,… Continue

Monday, August 10th I go before Medicare's Administrative Law Judge, the hearing I requested was for a cranial prosthesis/wig coverage. The initial request for a wig/cranial prosthesis from my Dermatologist in January was denied.

Medicare, (shame on them & their neanderthal attitudes regarding cranial prosthesis) I am so frustrated, with them, according to one denial letter, in order for a wig to be covered it must,

stand up to repeated use,

mainly be used to serve a medical… Continue

Hi Everyone, I saw my new Dermatologist yesterday, I really liked her. She ordered a boat load of blood test, thyroid, ANA (autoimmune) CBC, the works, depending on the blood test results she may do a scalp biopsy.

Has anyone had one? If so what can I expect?

She also wrote out a RX for Betamethasone Valerate (the spell alert came on for that one, lol) lotion, twice a day.

If you have used this, how did it do for you?

I am getting to the point I'm really tired of trying… Continue

I did it, I took a deep breath & jumped into the proverbial deep end of the pool, my husband took my first ah natural bald as a bean photo. I don't think it's too bad. I was scared but so many of you gave me the courage to go natural & I thank you so very much. Take a look it's on my photo's & let me know what you think. I also included pictures of our girls, our two Lab's Brooke & Kiki.
Who love me just the way I am as does my hubby.