Bonnie's Blog (6)

"Rules of the game"...Take 20

I've had alopecia for 10 years now.  The past five have been alopecia universalis.  This school year, I changed school districts to be closer to home.  It turned out to be a much less stressful job and very fulfilling.  Two or three months ago, we started noticing "peach fuzz" on my face and part of my head.  When I had alopecia areta, it was common for fuzz to come and go, so I didn't think much of it.  But it hasn't gone anywhere this time, and it is getting longer.  My sidewalls are still…


Added by Bonnie on May 30, 2015 at 6:41pm — 1 Comment

Gentle moments

I teach the English Learners in 5 schools in my district.The other day, I was walking through the kindergarten hall and a boy started laughing and pointing and shouted that I looked like a boy. I have alopecia universalis and seldom cover my head.I knelt down and had a gentle but honest conversation about what would be a better way to express his interest and observations. A little girl next to him joined in and asked if I had cancer. I explained that I didn't and in five to six year old…


Added by Bonnie on February 27, 2015 at 7:00pm — 1 Comment

Kindergarteners and diversity

My youngest daughter recently turned 6, and I got to go to spend the afternoon with her in her class. I arrived to her room before the class got back from music and was preparing their strawberry shortcakes when the students began arriving.  Comments soon began to fly: "She looks like a boy."  "Your mommy is bald headed."  "Where did her hair go?"  I could tell my daughter was beginning to get defensive.  "My mommy's cute.  I think she's beautiful."

The teacher wasn't back, so I asked…


Added by Bonnie on November 30, 2014 at 7:00pm — 10 Comments

My autobiography of alopecia in YA novel form

Last year I participated in NaNoWriMo (National November Write Month) and wrote, 50,000 words of a novel in the month of November.  This year, I decided to join again, and finished.  This novel is about a 17 year old who finds out she has Alopecia. Writing 50,000 words in a month, while you are trying to live your normal life is pretty tough, but this month has been an emotional roller coaster for me as I have relived so much of my own personal experiences through this writing process.  I…


Added by Bonnie on November 29, 2014 at 8:51pm — 3 Comments


During the past ten years, there is one thing that I have learned about alopecia: change. When my alopecia first started, it was one perfectly round patch about the size of a quarter. That changed to multiple spots, which all grew back in. And then came back. And then went away in different locations, including most of one eyebrow. I lost my sidewalls about five years ago, and never gained those back. Then, the big blow came, universalis. No eyelashes, both eyebrows,body hair, and all my…


Added by Bonnie on October 15, 2013 at 6:45am — 2 Comments

Gaining confidence

I've had alopecia for 8 years now. First, it was come and go areta alopecia. Then it went universalis. The eyelashes were the worst. I would look in the mirror and say, "I look like a lizard." My mom used to say I was as mean as a snake when I was little and got in trouble, so it shouldn't have come as any surprise. The hair loss was hard, but the self-esteem loss was devastating.

The first time I went to buy a wig, I made sure I was the last scheduled appointment. I went alone, in…


Added by Bonnie on September 19, 2012 at 9:30am — 5 Comments


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