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hagster's Discussions

Regrowing hair in 'odd' places

Started Oct 25, 2017 0 Replies

After 16 plus years of remission from AA, I was slammed with AU last fall. Lost every single hair on my body, my eyelashes, in my nose & in my ears; learned to deal.Now, all of a sudden, I have…Continue

Tags: regrowth, hair, white

7-24 Ninja Warrior show has Alopecian

Started this discussion. Last reply by JessicaStinkle Oct 7, 2017. 2 Replies

American Ninja Warrior is going to have a guy named Kevin in the competetion tonight who just happens to have Alopecia. The promos say he has no hair and that he is a role model for kids just like…Continue

Can we talk about keeping a wig on a bald head, and other things?

Started this discussion. Last reply by Stacie Apr 30, 2017. 1 Reply

I noticed that a lot of the discussions were started about 3 years ago, and surely there is new products and information available.I wore wigs back in the 69s & 70s, then started again about 4…Continue

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Latest Activity

hagster replied to Christine's discussion Gripper wearers styling help
"I would contact Follea and ask them about it.  Since its human hair, it is what it is.  Don't think you can permanently straighten the hair."
hagster replied to Carla's discussion Wig During Cold Weather
"Use a static spray or rub with a fabric softener sheet to reduce fly away hair.  Then put on your cap and stay warm. "
hagster replied to Kim's discussion Am I expecting too much from a wig or is there hope for me?
"All the problems you state are common for wigs, but do have solutions.  There are ways to fix shinyness, soften fibers, reduce tangling, fix / change the color of human hair wigs, and much more.  I suggest you join some of the facebook…"
hagster replied to DJ88's discussion Terrible looking eyebrow wigs came in the mail today...
"You can get Cardini brand brow wigs at headlines.com or Google for other sellers.  There is also a person in China who makes nice ones and sells on eBay. "
hagster replied to Cintia's discussion Qingdao wigs!
"I believe Highline wigs can be made with full lace silk tops.  And, their are other custom wig makers here in the US who can make them that way.  'custom wig maker' is the key to finding what you want.' I would not buy from…"
Oct 21
hagster replied to dreamscometrue's discussion IV Stem Cell Therapy-How come no research on AU??
"There are a couple of docs here in the US that do infusions of donated stem cells that have had supposedly great luck on AA patients.  It will probably be outlawed by the FDA soon.   This is not the procedure using your own stem cells…"
Oct 21
hagster replied to Di_girl's discussion Tests!
"A quick Google says smth = something"
Oct 21
hagster replied to Di_girl's discussion Tests!
"Absolutely agree."
Oct 21
hagster replied to Di_girl's discussion Tests!
"It can be a good thing to go to a walk in lab for blood work (save time & money), but you should not be diagnosing yourself or a loved one with internet information.  You should leave that to a qualified medical professional - unless you…"
Oct 21
hagster replied to CET1993's discussion Finally getting somewhere
"Skin thinning and scarring."
Oct 16
hagster replied to Amy's discussion False Eyelashes- lid irritation...ideas?
"You can't take the lashes off, you wait until each lash falls out, then you can replace it.  Or not.  To remove  strip, you would have to pull your lashes out."
Oct 15
hagster replied to Amy's discussion False Eyelashes- lid irritation...ideas?
"I got some KISS eyelash glue which is formaldehyde and latex free. No more burning and irritation."
Oct 14
hagster replied to 123me's discussion if money were no object-choice?
"Isn't she the one that buys name branded wigs, takes out the label, does her thing to it, and sells as her own?  Not accusing, just asking."
Sep 16
hagster replied to Charlotte's discussion Hypothyroidism, Alopecia and medication
"Curious to know where you found that Synthroid (levothyroxine) contains a radioactive substance.  I've been on it for 40 years now and never heard that.  It does have the side effect of hair loss, but not sure for that reason.…"
Sep 8
hagster replied to Carla's discussion Quality Wig with Whitening
"Any long hair will mat whether it is synthetic or human hair.  Heck, I have trouble with one that barely reaches my shoulders.  In fact, shortened the length just the other day so it wouldn't be such a mess.  Just like in real…"
Aug 30
hagster replied to Carla's discussion Quality Wig with Whitening
"A lot of human hair wigs are one dimensional unless you have custom made or have streaks added by a stylist.   I would say to do whatever you need to the wig so that it is comfortable.  A lot of people have to customize the fit of their…"
Aug 30

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 12:32am on August 30, 2018, Brent Cairns said…

Hi Hagster,

I am very grateful to you for taking the time to answer my questions. I have joined a FB support closed group also and similar information from there has been posted these past couple of days, but you have given me so much more detail which is great so that I've now gotten a really good understanding of where it's at with users. I'm in the southern hemisphere and we use the celsius scale, although I well know what the equivalent of 100 degrees fahrenheit is. Much appreciated.

Knowing the technicalities and names of the parts of the Wig is awesome! Also yes recognising the sorts of issues, say with respect to colour selection of the Wig, is a salient one.

The part about the chinese influence is interesting!! Can credit card payments be made for these goods and then transfer via your bank  (contacting the bank etc) stopped and reversed, say when the product is different?

You have given me such cool answers. Going away to digest this info.

thank you and regards,


At 5:45pm on February 4, 2018, RossG said…

Not sure if i have AU, I just know the loss started Oct 16 and has continued to now where i have less and less hair on my entire body. Just slowly all going away. No indication it will stop....

That sound like AU to you? My doctor said very little the one time I spoke w him about it--i believe bc little is known and he is not the type to offer guesswotk or theory.

 But holy shit, i didnt know even xeljanz didnt work for AU, and i hadnt thought about the potential physical side effects you mentioned. Yay. Looks like im gonna be reading all the mantras i collected when this first got bad again! Lol

thanks for your time. 

At 8:23pm on May 26, 2017, Jan said…
I too grew up in the 50's and 60's and I hardly ever read of anyone getting Alopecia when they are middle aged. While I found my first spot last August, it got bigger. Only I could see it unless I pulled my hair back. More spots came and hair grew back. Again I am losing hair, but no one can see but me and my hair stylist. I commend all the people that have self acceptance but I wonder if the older you are at the time of the fist occurrence the more self conscious you are.




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