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hagster's Discussions

Regrowing hair in 'odd' places

Started Oct 25, 2017 0 Replies

After 16 plus years of remission from AA, I was slammed with AU last fall. Lost every single hair on my body, my eyelashes, in my nose & in my ears; learned to deal.Now, all of a sudden, I have…Continue

Tags: regrowth, hair, white

7-24 Ninja Warrior show has Alopecian

Started this discussion. Last reply by JessicaStinkle Oct 7, 2017. 2 Replies

American Ninja Warrior is going to have a guy named Kevin in the competetion tonight who just happens to have Alopecia. The promos say he has no hair and that he is a role model for kids just like…Continue

Can we talk about keeping a wig on a bald head, and other things?

Started this discussion. Last reply by Stacie Apr 30, 2017. 1 Reply

I noticed that a lot of the discussions were started about 3 years ago, and surely there is new products and information available.I wore wigs back in the 69s & 70s, then started again about 4…Continue

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Latest Activity

hagster replied to 123me's discussion if money were no object-choice?
"Isn't she the one that buys name branded wigs, takes out the label, does her thing to it, and sells as her own?  Not accusing, just asking."
hagster replied to Charlotte's discussion Hypothyroidism, Alopecia and medication
"Curious to know where you found that Synthroid (levothyroxine) contains a radioactive substance.  I've been on it for 40 years now and never heard that.  It does have the side effect of hair loss, but not sure for that reason.…"
Sep 8
hagster replied to Carla's discussion Quality Wig with Whitening
"Any long hair will mat whether it is synthetic or human hair.  Heck, I have trouble with one that barely reaches my shoulders.  In fact, shortened the length just the other day so it wouldn't be such a mess.  Just like in real…"
Aug 30
hagster replied to Carla's discussion Quality Wig with Whitening
"A lot of human hair wigs are one dimensional unless you have custom made or have streaks added by a stylist.   I would say to do whatever you need to the wig so that it is comfortable.  A lot of people have to customize the fit of their…"
Aug 30
Brent Cairns left a comment for hagster
"Hi Hagster, I am very grateful to you for taking the time to answer my questions. I have joined a FB support closed group also and similar information from there has been posted these past couple of days, but you have given me so much more detail…"
Aug 30
Brent Cairns and hagster are now friends
Aug 30
hagster left a comment for Brent Cairns
"Hello, Brent. I'd be glad to answer your questions. Q1:  In general, wigs are hot and itchy - especially for someone with a bald head.  No matter how open the wefting is, not enough air can get through to cool a naked noggin -…"
Aug 29
Brent Cairns left a comment for hagster
"Hi Hagster, Would you kindly answer a couple of questions- well done on your openness! Q1: What are the problems that you experience/ experience from wearing Wigs?Q2: What are/were the problems you experience(d) from Wig suppliers/…"
Aug 29
hagster replied to gldean1988's discussion Losing Pubic Hair (I know... I went THERE!)
"When my AU hit just under 2 years ago, I lost every hair on my body - lashes, nose, ear cilia, underarms, toes and pubic area.  Had already lost brows and had laser hair removal on legs.  Now have sparse lashes and nose hair, the…"
Aug 8
hagster replied to Heather's discussion 23 month old just started prednisone
"Why would you even consider giving predisone to a 9 month old?  "
Aug 8
hagster replied to Andrea L.'s discussion Do you need a wig cap if you are bald?
"No wig cap here.  I sew in silicone pieces from Loris wig in the front and use glue or tape at the nape.  In hot weather when I sweat, tape and silucone at the nape seems to let go.  You need to just try some things to see what works…"
Aug 8
hagster replied to Kara's discussion Wigs where the hair can be tucked behind your ears
"There are wigs known as pony wigs that are made especially for wearing up in a pony and should help with your problem."
Aug 8
hagster replied to femmejuice's discussion Human hair wig newbie with a couple questions
"There are many facebooks groups that deal with hair loss and all things involved with it - like helper hair.  Those gals were human and synthetic toppers & wigs, and knowjust about everything there is to know about them.  I'm…"
Aug 8
hagster replied to Sofia A's discussion New to Alopecia
"Hair has growing & resting phases - if that is what you are referring to. "
Aug 8
hagster replied to Colleen's discussion Do you use glue or tape or nothing for your wig?
"I'm going to suggest that you join some of the facebook groups for hair loss.  Those gals know all about wigs and how to wear them. "
Aug 8
hagster replied to Colleen's discussion Do you use glue or tape or nothing for your wig?
"Yes, Follea wigs are supposed to be wonderful, but most of us have a hard time justifying $4k for a wig when you can get a high quality human hair one for $800-$1k;  a silicone cap that makes you sweat, but the sweat has no where to go just…"
Aug 8

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 12:32am on August 30, 2018, Brent Cairns said…

Hi Hagster,

I am very grateful to you for taking the time to answer my questions. I have joined a FB support closed group also and similar information from there has been posted these past couple of days, but you have given me so much more detail which is great so that I've now gotten a really good understanding of where it's at with users. I'm in the southern hemisphere and we use the celsius scale, although I well know what the equivalent of 100 degrees fahrenheit is. Much appreciated.

Knowing the technicalities and names of the parts of the Wig is awesome! Also yes recognising the sorts of issues, say with respect to colour selection of the Wig, is a salient one.

The part about the chinese influence is interesting!! Can credit card payments be made for these goods and then transfer via your bank  (contacting the bank etc) stopped and reversed, say when the product is different?

You have given me such cool answers. Going away to digest this info.

thank you and regards,


At 5:45pm on February 4, 2018, RossG said…

Not sure if i have AU, I just know the loss started Oct 16 and has continued to now where i have less and less hair on my entire body. Just slowly all going away. No indication it will stop....

That sound like AU to you? My doctor said very little the one time I spoke w him about it--i believe bc little is known and he is not the type to offer guesswotk or theory.

 But holy shit, i didnt know even xeljanz didnt work for AU, and i hadnt thought about the potential physical side effects you mentioned. Yay. Looks like im gonna be reading all the mantras i collected when this first got bad again! Lol

thanks for your time. 

At 8:23pm on May 26, 2017, Jan said…
I too grew up in the 50's and 60's and I hardly ever read of anyone getting Alopecia when they are middle aged. While I found my first spot last August, it got bigger. Only I could see it unless I pulled my hair back. More spots came and hair grew back. Again I am losing hair, but no one can see but me and my hair stylist. I commend all the people that have self acceptance but I wonder if the older you are at the time of the fist occurrence the more self conscious you are.




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