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Rosie from Brisbane
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- Brisbane
- Australia
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- Relationship Status:
- Married
- About Me:
- 42yo, married with two kids, recently diagnosed with frontal fibrosing alopecia which has devastated me. Want to know contributing factors such as sunscreen use as I wear it daily and wish to protect my children from developing this disease. Our sun is extremely damaging. Hoping to find support through this page, and hope.
- Do you have alopecia?
- Scarring alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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Rosie I have sent you a message; checkyour 'Inbox' regards Jules Australia
Hi Rosie, Welcome to this forum, although it's not under the most favourible reasons, with the finding of your recent diagnosis.I also have ffa & diffuse lichen planopilaris. I am sorry that you have been diagnosed with ffa,a very challenging disease to have to live & deal with. I live not far from Brisbane, about 45 mins from southside, not far from Ipswich. I have had this for over 5 years now & am happy to do my best to answer any questions you may have, or just to listen, if you need to vent, for some support. You will find the members on this site are wonderful women & everyone does their best to supprt each other, whether its trying to answer questions you might have about this mind baffling disorder, or simply lending a friendly shoulder when you feel the need. I have joined the Group "Frontal Fibrosing Alopecia". And am here if you want to talk... kind regards Jules Australia