Sending a Message

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Sending a Message

people who want to send a message that judging other people on their appearance is wrong.

Website: http://www.alopeciaworld.net/group/sendingamessage
Members: 180
Latest Activity: Nov 15, 2013

this is me talking to my school about my disease

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Comment by Jessica Hoschouer on October 20, 2013 at 6:08pm

 Ok, so recently someone I know was kind of "making fun of" some one on The Voice so I gave them a lecture on not judging other people.

Comment by Rici* on October 23, 2012 at 10:32am

http://wigged.wordpress.com/ hej,
I'm working on a zine (small self published magazine) about hairloss, wigs, hair, health and standards, and i think it fits quite well into this group. it's called wigged, and you are very welcome to have a look at it,download the first issue (but i published the first one in german only ;)) and maybe you want to join the second issue?
wigged.wordpress.com

Comment by Kayla Paige on June 27, 2011 at 11:59pm
Hello. I'm new to this whole website thing and find it great to know that I'm not alone. Your video was very inspiring Anna. You are braver than I could ever be.
Comment by M on February 25, 2011 at 9:16pm
Hello,
Mary has been a real inspiration to me as well as some other people on this site. I have only this year begun to lose so much of my hair. I have made a promise to myself that if it continues to fall out by early spring then I shave it. I want to get a nice little tan to even out the colour on my beautiful little noggin' by sitting for 15 minutes each day for a while. I can't wait to not have to style my hair.

Today the lady that fitted me for my cpap machine told me how beautiful I was. I was telling her about AA and she said it wouldn't matter if I lost all my hair because of how beautiful I am. Let me tell you, I really needed to hear those words. When I look in the mirror lately ( actually, for quite a while now), I see an overweight old lady who happens to be going bald. I knew this lady was being sincere although, it doesn't go to my head, sometimes I wish it would. I would like to be able to have a little more appreciation for myself. Some days are better than others, thank God.
Comment by Mary on January 24, 2011 at 5:30pm
Hi everybody -

I want to share a couple of videos I just posted showing a day when about 1,000 people in a park in San Diego learned that just because a woman is bald, that doesn't mean she's sick, or that she's embarrassed about her head.

http://www.alopeciaworld.net/video/bald-lady-boogy

http://www.alopeciaworld.net/video/in-the-mood

Mary
Comment by Víctor Ratzeburg on July 28, 2010 at 5:36pm
Hi Erika, welcome, yes we're beautiful as we are, feel free to ask anything you want, I've almost 13 yrs since I started to shave, now I'm happy and free...
Comment by Erika on July 28, 2010 at 1:29pm
Hello everyone. :)
What a great concept for a group! I feel as though it is partly my responsibility to educate the people I meet - especially those who choose to initiate contact with me in an ignorant way.
I started losing my hair when I was 17, and chose to shave it all off when I was 19. I am 31 years old now and have been completely bald for the last 12 years - discounting a few months of hair I let grow during my pregnancy.
I come accross people in my daily activities in public who would definitely benefit from education. I am proud of who I am and I will never let anyone dictate any change in that feeling that I have about myself. I mean, why should I? Why should we?
Anywho, those are my two cents! :) Im glad to have found a site with such a strong network of people who are involved in at least trying to educate and share. Take care!
Comment by Joel on February 10, 2010 at 4:38pm
You guys and girls have more courage in 1 square inch of your bald heads every minute than most people will have in their whole lives!!! Here's to you!
Comment by Maureen on May 27, 2009 at 3:40pm
Ladies I finally did it today I tattoo my eyebrows. I was so undecided about doing it. I found a lady who owns Permanent Cosmetics by Olga the shape is great and they are even. The color is a bit dark but is told it fades a bit with in the month. ILOVE THEM!!! No more penciling them in YEA!!!
Comment by Steve on February 23, 2009 at 10:55am
Very courageous!! I wish I had the fortitude at that age to do what you have done! Very nice job!

I've read some of the comments on this forum and it amazes me that kids remain the same. I've had this AU condition for over 50 years now and the most vivid memories I have are from the cruel and unusual treatments I received from a variety of kids as I grew through my elementary years. In my case there was a principal who intervened on my behalf. It happened in the Spring of my seventh grade year. I had been subjected to increasingly cruel abuse and I was still the second smallest kid in the class. My grades were falling like a rock, I went to the school nurse regularly with "stomach aches" (really just an excuse to get away from the classroom). There were days when I didn't even want to get out of bed let alone go to school for more torture.

One day, out of the blue, the school principal walked into one of my classes and asked me to leave the room and go next door to another classroom. I had no idea why I had been singled out like that and I was wondering if my behavior was getting me in trouble. The room I sat in was empty, but it was a science room so that made it OK.

About a half hour went by before the principal returned and brought me back to the classroom. Everyone stared at me when I came in, but there was a dramatic difference in how they looked at me. The change in their attitudes was amazing! It was like someone had waived a magic wand over all the evil and swept it away without a trace! Suddenly, the kids in my classes were full of questions about my hair.

From that day forward it got better for me. My grades improved. My self confidence grew. I could look people in eye again.

Remember, this was 40 years ago in the mid-60's. Auto Immune problems were not well known, yet. Alopecia was a word that, when I used it, was the first time 99% of the people I met ever heard the word and that lasted all the way into my twenties!

You know? It gets better as you get older. You gravitate toward people who couldn't possibly care less what you look like and you begin to be who you really are. I'm afraid I don't visit this site very often because I'm so BUSY! I just don't think about alopecia all that much.

I tell people who are curious that "Alopecia is something I have, it's not who I am." But I definitely remember being a kid and growing up with this condition, so your video is just awesome!! I wish you all the luck in the world, because we all need luck from time to time, and may your future be as pain-free as possible! - Steve
 

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