Hi

I am new to the group but have been dealing with FFP/LPP for a few years now. I have been to 3 different doctors. I think they get fed up and pass me on. Anyway I have an appointment on Wednesday and I know she is going to suggest finasteride or cellcept again. In 2016, Finasteride was suggested but I was concerned about the breast cancer risk so did n't take it. I am already at high risk for breast cancer as my sister and my aunt (who passed away from it in her early 50s) had breast cancer. I was on plaquinil for 2 years, used clobetasol at the beginning but thought it made things worse. I had 2 rounds of steroidal injections last year. Tried tacrolimus ointment for a month but thought it made things worse. I am currently taking doxycycline for the past 5 months. Also use Rogaine. I have lost a lot of hair. I got a topper in August which I thought helped but which I don't think works anymore because of the recession and I thought it might be taking hair out at the clips on the top of my head. After reading some things here, I stopped using sunblock (which was in my daily moisturizer and foundation) after Christmas and am now using a natural moisturizer of shea butter, olive oil and coconut oil. I thought it might be doing some good and saw some regrowth but I think it is just wishful thinking. My question is does anything work? Thanks for any info. 

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I'm new and so I just read this post. That pharmacist could get in a lot of trouble for his thoughtless advice. They are licensed to dispense, not prescribe. The one mg a day is the dose for men treating male pattern baldness. Unbelievable that he should have the audacity to recommend you lower your dose when most Derm's are using these medications based on clinical research for this specific disease, they're using it off label based on clinical trials on women. 

I agree GLMV and so did my doctor. She called and chewed out pharmacist after he also changed my prescription from 12 months to 6 months since he told me to cut them in half. My doctor educated  him about FFA and that the larger dose is needed to stop it. Mine isn’t stopped but it has slowed a lot. 

  I'm so glad it slowed down. I'm hoping mine does or in a perfect world burn itself out as my mother's did.

I was diagnosed in Jan 2015 and I've been on 2.5mg daily of Finasteride since then.  My mother is a breast cancer survivor from 1998. I have chronic inflammation but the Dr says despite that, I have stopped losing a lot of hair in the frontal area.  I still have a ton on the rest of my head so maybe it's the finasteride.  I get mammograms every year.  I do have "lump breast" but cancer free so far!!  I'm afraid to try anything else in case the change triggers issues.

  1. I have been on 5mg Finasteride daily for almost 2 years for FFA. It has slowed the progression a lot and I rarely have itching or inflamed areas on my scalp. My dermatologist swears by Finaseride for FFA. A new pharmacist suggested I try 2.5 mg about 6 months ago based on a study he read about hair loss in women. I tried it for a week and went back to 5 mg due to itching & hair loss. It made me a believer! I also follow an anti-inflammatory diet. 

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