Scarring alopecia or cicatricial alopecia - anyone else have this type? Have you found any drug or treatment that has stopped the progression?

Hi - I am 61.  My hairdresser first noticed I was losing what she considered to be a lot of hair about 25 years ago - I asked my doctor about it, she looked at my scalp and said everything looked fine.  So I never thought anything more about it until my current hairdresser noticed a small bald spot above my right ear about 7 years ago.  I thought it might be due to stress because at the time my husband had just had open heart surgery and then 3 months later was laid off his job of 26 years at Nortel.  The bald patch kept getting bigger and bigger.  I finally had my current doctor send me to a dermatologist and a year ago she diagnosed it to be Lichen Plano Pilaris (LPP) a type of cicatricial alopecia.  For the past year my doctor has been experimenting with different drugs - sometimes 4 different drugs at a time! Nothing was stopping the progression - it was only slowing it down.  The last drug I tried was a powerful immune suppressant: cyclosporine.  After 2 weeks on it I got such a bad cold/flu that I decided 'enough is enough'. I just wasn't myself on these meds and I was worried about all the scary side effects.  I stopped taking all the drugs.   My question is this: has anyone with this type of alopecia had any success with a drug or other treatment to stop the progression?  What happens after all the hair on my head is gone - where does the disease go from there? I don't have any hair on my arms or legs but I still have facial hair, eyelashes, underarm hair, pubic hair.  I lost most of my eyebrows about 5 years ago and had them tattooed on. I would love any help, advice you could give me.

Views: 61

Reply to This

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service