Comment by Tallgirl on May 4, 2009 at 11:56pm

I guess it depends on what has been ingrained into you by family, culture, generation, etc. I am a child of the '60s, when the musical HAIR was big, artists and hippies and musicians HAD to have long hair, and women were accepted and adored a certain way by the men of that generation...for hair. Later, many singers and actors went bald, including women...so THAT generation accepted baldness more. I would imagine there are differences between country folk, city folk, conservative vs liberal folk, newer Americans vs those with long-standing friendships and social groups, etc. The women's lib '70s didn't seem to change many men in my generation...they seem to still hold attitudes that were prevalent when they were impressing their buddies in the teen-twentyish years. The gal on the arm looking like Farrah Fawcett was a head-turner, but the girl on the arm who looked more like the guys or a rebel was a gal who probably had a lot of smarts and gumption, but was not the agreeable-but-simple model some men in that generation still wanted. Of course no one is going to put a photo on here of herself when down in the dumps or angry at the world. People don't pose for photos that way, and will always put the best shot online for the world to see. Your photo is beautiful and smiling, too. We are ALL confused...some are braver than others to admit it. Some give in to the confusion and spend their energy in other ways while waiting for the heavens to bestow a miracle cure. MANY of us really would like hair again. Many out there don't even have computers or know of this site...so don't think you are in any way alone. I don't really accept alopecia, but I just throw on a wig that looks halfway decent and get on with life. At my age, I have to grab all the gusto I can...can't wait around or hide. I had more time to mull and gripe when I was at home with two small children, not socializing, broke, and had a hubby at work and nightschool all day long. Feeling "stuck" can add to negative thoughts IF you still long for a life you left behind. But I'll bet any one of us could list 20 cool, darling things about our current lives and after-age-18 choices if really pressed to do so!

Comment by Priya on May 5, 2009 at 12:37pm

I understand how u feel Casey.
I m also goin throu this confused stage. I m waiting for my hair to come bak for 18 yrs! They come & go & never stable. Now, Dr.s hav given up on me & I hav to liv with Alopecia throughout my life. Its hard but I m tryin to accept it. Still the other side of myself hopes that my hair will come bak. I also want my real hair bak. I do feel frustrated & tired to wear wigs all the time.
But, as I took more interested in spirituality & God, I realized that God has his ways of showing luv for u. As u know man cannot access free will, He tests our patience. He wants to c how v manage to b happy by finding alternative ways in our life where our strengths overcomes our weeknessess. God only giv challenges to those who has the strength to face it! So, feel lucky that God chose u. Look at the brighter side of this prob., at least, Alopecia doesnt involve any physical pain. V c people suffering from diabieties taking insulin injections everyday, people suffering from cancer undergoin chemotherapy, some small kids having blood cancer where everytime their blood needs to b changed, people suffering from leprosy, pregeria, etc. V will always feel happy wen v c someone more in pain us.
I like to visit the blind school mostly wenever I feel low. Wen I c those sweet blind kids playing cricket by hearing the sound of little bells in ball, it amazes me!!! They dont need eyes to play...they just need their ears! Thats how v should liv our life! To make the best of wat v hav!
I hope it helps u to feel better.
Take care!

Comment by Casey on May 5, 2009 at 1:56pm

Thank you all for your words! I do appreciate it very much.

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