Alopecia World
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Update
It's been almost two weeks since I got an integration system. I don't even know how to describe how I feel. Free sums it up pretty nicely, though.
I find myself forgetting that I even have alopecia, which is a pretty big deal for someone who has thought about nearly nothing else for the past five years. It looks like my own hair, it feels like a thicker, less-damaged version of my own hair, it's pretty much the hair I always wish I had. I just wore it on vacation and I was amazed at all the things I could do that I havent done in years. I went swimming. I jumped off the diving board and I didnt have to feel around and make sure it was still on. I went running, and I could feel my ponytail swinging from side to side. I've straightened it, I've curled it, i can't stop playing with it.
I don't have to rush and get a bandanna whenever someone unexpectedly comes to the door. I don't have to stock an arsenal of hats. I don't have to keep checking to make sure my head is covered. I don't have to wonder if anyone can tell I'm wearing a wig. I don't have to check for slipping, or sneak into the bathroom to mop the sweat off of my head. I look like my old self and I feel like my old self again, and for the first time in years, I am actually happy.
I find myself forgetting that I even have alopecia, which is a pretty big deal for someone who has thought about nearly nothing else for the past five years. It looks like my own hair, it feels like a thicker, less-damaged version of my own hair, it's pretty much the hair I always wish I had. I just wore it on vacation and I was amazed at all the things I could do that I havent done in years. I went swimming. I jumped off the diving board and I didnt have to feel around and make sure it was still on. I went running, and I could feel my ponytail swinging from side to side. I've straightened it, I've curled it, i can't stop playing with it.
I don't have to rush and get a bandanna whenever someone unexpectedly comes to the door. I don't have to stock an arsenal of hats. I don't have to keep checking to make sure my head is covered. I don't have to wonder if anyone can tell I'm wearing a wig. I don't have to check for slipping, or sneak into the bathroom to mop the sweat off of my head. I look like my old self and I feel like my old self again, and for the first time in years, I am actually happy.
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Comment by Aimee on August 15, 2010 at 7:24pm -
Wow! That sounds great! I've been bald for one year now and am going the synthetic wig route. I can only wear them for a few hours before they start to bug me though. I would love to be able to have something I could wear all day long and never think about it.
Where did you get the system? What is the difference between that and a wig? Do you have to have some hair for it to work?
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Comment by Andrea on August 15, 2010 at 7:33pm -
Aimee, I went through a company called Shearpointe. I am pretty impressed with them so far. They will do whatever it takes to make you happy! It's pretty expensive, (about 300 a month) but it's totally worth it to not have to suffer anymore.
With the system, (basically a portion of a human hair wig, only with a skin-like or clear front so u can pull your bangs back) they shave the top of your head and attach it with medical adhesive. You go back once a month to get it cleaned and reattached, and touched up/dyed/cut, to your liking. The system doesn't budge until they dissolve the medical glue at each visit. You can pull your hair, you can brush your hair, you sleep in it, you shower with it, you shampoo it as normal. And no, they do tons of people with AU, too, you don't need any of your own hair, they will just choose a system with sides to it. It may not be for everyone, but I absolutely love it.
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Comment by Dominique Cleopatra on August 15, 2010 at 10:40pm -
I love my integration system too! It requires no shaving but I do need to wear bangs (which are super cute). Yikes $300/month is pretty steep. I only do $100 plus tip about every 5 weeks. How much did you pay for the system initially?
So glad you're feeling free like me. I hope more alopecians become aware that this is available, comfortable, convenient and functional.
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Comment by Cathy on August 16, 2010 at 7:23pm -
I'm looking into this now and wondering between this and the vacuum wigs - know anyone who has had both? What do you do when you exercise? do you ever want to take it off? what is it like to sleep in?
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Comment by Andrea on August 16, 2010 at 7:52pm
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When I exercize, it doesnt move anywhere. The sweat vents through the top. I can turn a fan on and feel it on my scalp. It can get itchy from time to time, but u just itch it and move on. Sleeping is a bit of an adjustment, i kept feeling like it was going to move even though i knew it wasnt, but now i dont even feel it.
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Comment by Dominique Cleopatra on August 17, 2010 at 5:47pm
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It's pretty much like sleeping or exercising with your own natural hair. I've never had a vacuum wig, but I bet someone on here has experienced both.
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Comment by Lexi on August 19, 2010 at 6:02pm
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Sounds so great. But the $300 is very steep. Lucky you can go that amount. How much was the initial hair piece? How long will the original piece last, or don't know yet??
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