Alopecia World
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Starting a "support" group...
Hey Everyone!
So I'm going to try and set up a GATHERING, or a Meet & Greet of the Alopecians in my home town! I have wanted to do this for awhile now, and I'm READY! BUT! I was hoping I could get some ideas on home to get it started...I have a few but wanted to draw from anyone who has done this already in their home! I have started a flyer to advertise it, and get the word out. i was going to drop it off at doctor's offices, other medical offices and few places around town. Anywhere else?
And for those of you that are in a group or have started one:Do you meet monthly? Where do you like to meet? What does a gathering consist of? Do you have guest speakers?
I'm wanting it to be professional, fun and a SAFE place for people to meet each other.
I look forward to hearing everyone's IDEAS!!!!!
Thanks and love u all to pieces!
XOXOOX
Becka
So I'm going to try and set up a GATHERING, or a Meet & Greet of the Alopecians in my home town! I have wanted to do this for awhile now, and I'm READY! BUT! I was hoping I could get some ideas on home to get it started...I have a few but wanted to draw from anyone who has done this already in their home! I have started a flyer to advertise it, and get the word out. i was going to drop it off at doctor's offices, other medical offices and few places around town. Anywhere else?
And for those of you that are in a group or have started one:Do you meet monthly? Where do you like to meet? What does a gathering consist of? Do you have guest speakers?
I'm wanting it to be professional, fun and a SAFE place for people to meet each other.
I look forward to hearing everyone's IDEAS!!!!!
Thanks and love u all to pieces!
XOXOOX
Becka
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Comment by Tallgirl on July 22, 2010 at 8:03am -
National Alopecia Areata Foundation helps you set these up. They have their own guidelines if they help. They may help put the word out in your regional area to those who are on their lists.
www.naaf.org
Also, try wig shops and places that sell beauty supplies (wig shampoo). Schools, colleges. Hat shops.
Ours: monthly, snacks and liquids, run by a guy working in counseling who also has alopecia...what luck!
Get e-mail addreses and sent maps ahead of the meeting. Good luck!
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Comment by Alliegator on July 22, 2010 at 9:38am -
I would like to do this too where I live!! Hopefully someone will post some ideas!
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Comment by Becka on July 22, 2010 at 12:23pm -
Great ideas Susan & Tallgirl!! I'm excited about it!
Ideas keep rolling in!
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Comment by Diahna Lynn Studio on July 22, 2010 at 2:06pm -
Becka thats great. I liked Susan's and Tallgirl's ideas. Good luck! Let me know how I can help you.
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Comment by Mary on July 22, 2010 at 7:20pm -
I'm working on starting a get-together group for women with AA in San Diego.
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Comment by Becka on July 22, 2010 at 10:00pm
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Mary, what are the first steps you're taking?
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Comment by Tallgirl on July 22, 2010 at 10:37pm
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Be sure that, for the scared people with alopecia, that you have meetings in a place with a private room, away from public eyes, where voices can be heard and a kleenix box is handy. Our group meets at a room after-hours at a hospital, and is run by someone well-versed in psychology. He did an art therapy exercise after we shared our stories. Some women took off wigs, others were still too scared to reveal. You have to allow for all moods on this and be inclusive. Some folk, and parents, are very serious.
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Comment by Mary on July 23, 2010 at 12:57am
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I'm just trying to locate as many women with alopecia as I can...women I've met through AW during the past few months. Two of them came to the San Diego IAD event. I'm also going to attend (for the first time) the local NAAF support group meeting next week, and see if there are any women there who might be interested.
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Comment by Becka on July 23, 2010 at 2:32am
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Yes, I definately don't want to alienate anyone.... i want to be sensitive to everyones needs
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Comment by Tallgirl on July 23, 2010 at 6:54pm
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You can also try a restaurant with a back room, but they may want a deposit to hold it.
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