September 2015 Blog Posts (16)

Alopecia Survey For a Highschool Project

Hello everyone! My name is Grace and I am currently a Sophomore in High School. In my school, we do a lot of research, and this year I am doing an Independent Research Project with something that is closer to me personally and that I can relate to. I have Alopecia Universalis and have had no hair since I was almost 3. I was wondering if gender and the age that we lost our hair at has any correlation with our self-esteem. It would mean a lot if you would take the survey that I post below :).…

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Added by TinyTerrapin on September 30, 2015 at 8:22pm — No Comments

I miss it!

I have AU when people ask what this is I simply say my immune system doesn't feel that I need any hair. People often reply "no hair... anywhere..." and I answer "none". This results in a ration of statements like "you are so lucky you don't have to shave." No bad hair days for you, no hair in your moth when the windows open or you go on a boat. No worries about dying grey hair. No hat hair in the winter no sweat head in the summer or when you work out.

Well let me just say this... I…

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Added by D henry on September 23, 2015 at 11:33am — 3 Comments

Growth after buzzing it off

I had finally said 'enough is enough I'm tired of the hair falling out everywhere all over everything!'
So, my boyfriend gave me a buzz cut with my kids watching and being supportive.
Now, I'm seeing growth. I have Very white unpigmented hair where my bald spots were and only one spot still bald.
So I'm curios, how many of you have shaved and then tried to regrow to see what would happen?
Did you experience white growth?

Added by Momuv2 on September 18, 2015 at 11:44pm — 3 Comments

MTOR Activation = TH17 activation and suppression of Treg cells and FoxP3 = autoimmunity

I've used NAC for three months now and hair began to regrow...I will keep you posted over the months

Added by Mike Staffieri RHN on September 18, 2015 at 11:39am — 20 Comments

School talk

This afternoon I went to school to pick my daughter up a little earlier than usual. I was giving a talk on alopecia to her class (6 year olds). I was a bit nervous but I explained about what it is and and why I wore lots of different wigs. We also discussed bullying and how it's okay to be be different. All in all I'm really pleased with how it went. I've come soo far in my confidence since I opened up about it on facebook in July. It's been a bit nerve wracking at times but I'm glad I've done… Continue

Added by monie on September 14, 2015 at 7:22pm — 3 Comments

How I got blessed with alopecia

It all started when i was 20 years old going to college everyday as any other student running for assignments, research papers and projects.Establishing and maintaining good work relationships is the key to a positive workplace and personal success- believing so i did participate in a lot of college activities which gave me a chance to be well known at my environment and have a wide personal network.

One day i noticed a bald spot on my head, it was not of a big deal back then, but in…

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Added by peter albert on September 12, 2015 at 7:30am — 3 Comments

Diagnosed last February

I was diagnosed with alopecia areata last February. All started with a patch and eventually I had around 7 patches.I had a lot,really a loooot of hair so even I had so many patches it was not visible.I started to use corticoid creams and although there was some growth it was really slow.I decided to have the cortisone injection and after two doses the hair start to grew really quickly.I believe the trigger was stress so I am trying to control that.At the moment most patches are completely…

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Added by Sandra on September 9, 2015 at 2:30pm — 4 Comments

My daughters story with alopecia

Hello Everyone!

My name is Michelle and my 2 yr old was diagnosed with alopecia at the age of one. I was devastated I could not stop crying! I have two other family members who have it and they both have universalis and although she was diagnosed with areata deep down I knew it would turn to universalis and i was right because soon after my baby started loosing her eyelashes as well!!! I remember the dermatologist being so rude and cold when she told me my baby had this and all…

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Added by Cmichelle720 on September 9, 2015 at 1:30pm — No Comments

My "Cure" for Alopecia...Real Talk

I have been battling alopecia areata since 2013. Through trial and error of many products and treatments I have finally found something that works and the results are unreal! That bad patch was the size of a dime in 9/2014 and grew to tennis ball size by 1/2015. Check out my page to see the before photos! These results were through the help of my dermatologist and a company with advanced holistic treatments that specializes in alopecia. 

NOW...Photo taken 8/2015. My patch that seemed…

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Added by HairJourney on September 9, 2015 at 1:03am — 3 Comments

Fusion Vitamins

Has anyone had any success with these vitamins? 

Fusion Chinese Vitamins. 'Women's Health' & 'Multi Vitamins' I'm also taking Hair Tonic from the same company. 

I have only just started taking them after seeing it on this news clip.

https://www.youtube.com/watch?v=cHSVFn_8A0w&app=desktop

Added by Heather on September 8, 2015 at 11:53pm — No Comments

Inflammation

For many people the root cause of alopecia is inflammation in the body. I have had several rounds of alopecia. I have had many steroid shots and used several medicated creams. I was lucky enough to find a holistic doc who was well versed in autoimmune disease and the inflammation that contributes to alopecia. It has not been an easy route but it has been very rewarding. I have a full head of hair. It's taken me about 4-5 years to get to this point. I follow an autoimmune paleo diet-no…

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Added by Anne Guarnieri on September 8, 2015 at 10:30pm — 12 Comments

If I didn't have alopecia, I would have never found my career

I haven't been on the site for quite some time. I see that in my profile I described myself as the mother of a 4 year old. Well, he is now 6. I just received a bunch of email notifications from the site, so I figured it is probably a perfect time to share my story.

I was diagnosed when I was 4--one bald spot and it came right back on its own. The bald spots returned when I was 12. By the age of 14 I had to get my first wig. Trying time as it already is, those adolescent years were…

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Added by rhiana leigh woester on September 8, 2015 at 6:00pm — 8 Comments

Insecurity

I guess I do get insecure about my alopecia. The stares that come with the bald patches. Instead of asking, people just stare. I wish they would just ask.

I don't mind sharing what I look like, patches and all. But with people I don't know; it can be a little intimidating. I rather wear my hat, wig, or scarf.

I took a picture of my head to see how it was and hikers.

Added by BarbaraK on September 8, 2015 at 12:00pm — No Comments

Every part of you is wonderful

Sometimes when I'm alone I just go about my day then I will go to the bathroom and look in the mirror or pass by my reflecton on a picture frame and I realize that I'm bald. I forget a lot because it's not something that runs through my mind 24/7.It's a small part of who I am but alopecia is not how I define my self. It's something I have, like my freckles or the fact that I wear glasses. Being bald isn't somthing you should veiw as a burden, because it's who you are. You should love yourself… Continue

Added by McKenzie Anne on September 7, 2015 at 10:43pm — 10 Comments

Glad I found this site

I have been looking for something like this for a long time, without knowing it.  I have not had the courage yet to do the shave...but it's coming. lol

Added by Ayani_Meli on September 4, 2015 at 12:00pm — 4 Comments

I want to get to know you, a nice man or woman!

I am looking to get to know either a nice man or a woman. Friendship is great and if it gets to be more than friendship that's fine, but, one step at a time. I am a very open and accepting individual, I don't judge. I am the kind of person that if it doesn't work or as a relationship I would love to remain friends.

I am honest and I hope you will be honest with me. I am here to listen and hope you'll listen to me.

Added by BarbaraK on September 4, 2015 at 11:30am — 1 Comment

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