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Transition from Alopecia Areata to Universalis

Started this discussion. Last reply by Courtney Mar 13. 7 Replies

HiFor those of us that have gone from alopecia areata to universalis how did the transition occur for you ?For me it was about 9 months of AA in which the patches appeared and slowly got bigger. None…Continue

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Scott James replied to Tam's discussion Methotrexate
"Hello all Might I ask ..... Can we have a hands-up for anybody following this thread who is taking methotrexate and has seen any meaningful regrowth results ? Curiously the following study has now got my interest and I will check back-in once…"
yesterday
Scott James updated their profile
Monday
Scott James replied to divine_comedy's discussion Another interesting case
"You would need to be under GP supervision if taking these drugs. The GP will routinely run the necessary checks on your blood to ensure you aren't putting yourself at risk."
Monday
Scott James replied to divine_comedy's discussion Another interesting case
"Here's the link to an ongoing study in the use of Simvastatin & Ezetimibe (Vytorin) for the treatment of AA. Results out July 2013 (estimated). The study is being undertaken by the University of Miami. Vytorin in the Treatment of Alopecia…"
May 26
Courtney replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"Shiva, I just turned 33 at the end of January...since my last post I have lost all of my eyebrows and just this past weekend my eyelashes...pretty much the only place hair is really left is my arms but you can see some thinning now...good luck,…"
Mar 13
shiva replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"u didn't metion your age when it happened. i am eager to know as smthng of this kind is also hapng to me"
Mar 13
Scott James favorited Tam's discussion Methotrexate
Mar 2
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Feb 19
JeffreySF left a comment for Scott James
"HI Scott, Welcome to Alopecia World. Jeffrey"
Feb 19
Scott James replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"Courtney - I read a posting recently by someone who said that taking supplements containing plant sterols and sterolins helped to reduce and also reverse some of their hairloss. I think these supplements are supposed to balance the body's…"
Feb 16
Scott James replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"Seems to be the general theme so far then that the journey to AU is a sudden/rapid mass shedding of hair falling out fairly evenly rather than the AA patches joining up. Still one of the freakiest things that ever happened to me."
Feb 16
Courtney replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"Wondering if this is what is coming for me...Started Thanksgiving day with handfulls of hair coming out, within 2 weeks I had lost everything, I'm sure it would of been sooner but I had very thick hair, having it thinned every 5 weeks just to…"
Feb 15
Emory replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"I had 2-3 spots that didn't get better after a few months of steroid injections. Then one day I just started shedding. I shed my entire head of hair within a week. Over the next month, my eyebrows fell out first and then my eyelashes. And one…"
Feb 15
Scott James replied to Scott James's discussion Transition from Alopecia Areata to Universalis
"Also, it was after taking cyclosporine that I noticed the switch from AA to the dramatic thinning of my hair. Perhaps cyclosporine was the trigger for AU to kick in, but then again, perhaps not. Who knows with this disease !?"
Feb 15
Scott James posted a discussion

Transition from Alopecia Areata to Universalis

HiFor those of us that have gone from alopecia areata to universalis how did the transition occur for you ?For me it was about 9 months of AA in which the patches appeared and slowly got bigger. None of them ever got to the point where they joined up though. Then suddenly I started experiencing diffuse hair loss and all my hair fell out pretty evenly over my whole body over a few months.I would be interested to hear how the transition occurred for others (e.g. sudden diffuse hair shedding or…See More
Feb 14

Profile Information

Relationship Status:
Single
About Me:
In the end, it's not the years in your life that count, it's the life in your years. But when it is my time, I want to go peacefully like my Grandfather did, in his sleep -- not screaming, like the passengers in his car.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 11:45am on February 19, 2012, JeffreySF said…

HI Scott,
Welcome to Alopecia World.
Jeffrey

At 6:19pm on February 6, 2012, Kim Culberson said…

Shoot.....I just spent half an hour sending you a message and went to edit a spelling error and erased the whole thing!!! Here I go again...
Sorry it took so long to answer you, but I was on vacation in Mexico.
I started taking 8 mg of methotrexate for rheumatoid arthritis in my fingers. 8 pills all at once, once a week! I switched to .7mg once a week by injection as the pills were bothering my stomach. I was at the Dr. today and told her about your question and she said that just because it worked for me doesn't mean that someone else will get the same effect. Also this is a chemo therapy medication that they use to treat luekemia and arthritis as well and can have major side effects. It is hard on your liver, so no drinking alcohol, and blood work once a month. I was AU for 7 years after major surgery with major blood loss. It took about 3 months of taking the medication before I started noticing my hair growing back..not just in spots, but fine baby hair all over my head. I never got my eyelashes or eyebrows back and still don't have to shave my underarms or bikini line..ha ha... My Dr. wasn't sure any Dr. would prescribe this med just to try to grow hair back. I only started it for my arthritis and just happen to have it lower my immune system enough to put the AU in remission
If I stop the med for anymore than 3-4 weeks, my hair starts falling out in spots. Usually along the hairline at my forehead and the back of my neck and over my ears. Although right now I have about a dime size patch right on the top of my head. I get cortisone injections into the spots and it takes about 5 weeks for them to start to fill back in again.
Let me know if you have anymore questions.
thanks Kim

 
 
 
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