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Patchylatchy's Discussions

Help us buy xeljanz!

Started Jan 2, 2017 0 Replies

Hi All,I created this thread to help myself and others who would like to obtain xeljanz from Turkey. I know details are mentioned in the other popular post by adml but it became quite messy with many…Continue

Why do we have nail pitting?

Started this discussion. Last reply by Patchylatchy Dec 27, 2016. 8 Replies

Why do we experience nail pitting? Is it only because of the inflammation and seperation of keratin of nail plate or is it because of inflammation and our immune system attacks nail?Also has your…Continue

Questions regarding your AU

Started this discussion. Last reply by Patchylatchy Jan 4, 2017. 30 Replies

I want to create this discussion that we can always go back to and analyze to understand some reasons for having Alopecia Universalis and possible helpful treatments1- do you have AU?2- when was the…Continue

Do MOST people progress from AA to AU?

Started this discussion. Last reply by Tom Jan 30, 2017. 19 Replies

I like many others have alopecia areata. And it seems like I'm heading to the more severe case to Alopecia Universalis AU in short amount of time. I noticed here that most people on this site have…Continue

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Latest Activity

JessicaStinkle replied to Patchylatchy's discussion When did you develop AU? Is the highest probabilities during childhood?
"I think that this is the most interesting thing about the disease. It varies sooo much and absolutely everything and anything, even contradictory statements, can be said about it. I lost all of my hair very quickly just before I turned 22. For the…"
Jan 4
Nammer replied to Patchylatchy's discussion When did you develop AU? Is the highest probabilities during childhood?
"I got AU when I was 7 No regrowth ever "
Dec 19, 2017
Fiona replied to Patchylatchy's discussion When did you develop AU? Is the highest probabilities during childhood?
"I am 53.  I developed AA in my 30s.  I would go a couple of years in between episodes.  About 4 years ago I had a regular AA episode and the usual cortisone scalp injections to treat it and it was growing back in as usual.  Then…"
Dec 19, 2017
Hopemom replied to Patchylatchy's discussion When did you develop AU? Is the highest probabilities during childhood?
"Do you mind to tell us how are you doing now? Hope that you feel better."
Dec 1, 2017
David and Patchylatchy are now friends
Dec 1, 2017

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (4 comments)

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At 12:35am on August 17, 2017, Niece said…

sorry PAtchylatchy just saw this message..very late! You asked about my AU and if I had AA first. No, I did not. First noticed hairline thinning and within about 3-4 months lost all my hair. Its been over 3 years now..getting easier but to be honest I still struggle with alopecia. Have my hopes set on a treatment/cure in the years ahead. How are you doing?

At 12:49pm on January 29, 2017, Kingman said…

I had AA when I was very young, but it would grow back. Developed into AU when I was 14. I had some patchy eyebrow regrowth in my late teens, but since then, solid AU. 

At 3:45pm on December 21, 2016, D Costa said…
Postpartem spots got very progressive. I started using Thymuskin and feel it really helped slow the process. I'm currently about 50% hair loss right now (same going on five years). Hope this helps.
At 5:49pm on December 19, 2016, D Costa said…
Hi my profile probably needs to be updated. I gave birth back in 2011. I was 19 when I noticed my first spot though. Congratulations on your pregnancy!




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