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Does this sound like AU? What do you think this could be?

Started this discussion. Last reply by Amy Mar 29, 2011. 12 Replies

So I researched a lot on the internet about AU and there is surprisingly little information. I figured I would come to a forum and ask people that actually suffer from the disease to get a better…Continue

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Kyle left a comment for Mike H
"Hey Mike, Looks like you haven't been on here in a while but hopefully you still are because I believe you and I have VERY similar situations. I'm a 21 year old guy from the northeast like yourself and I've also been experiencing the…"
Feb 15
Stacey replied to Mike H's discussion Nervous I may experiencing the onset of AU? What was it like for you? in the group Alopecia Universalis
"Hi Mike, Just reading through your discussion. How are things going for you, six or so weeks on? S"
Apr 20, 2011
Amy replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Its sounds like diffuse AA to me as well. They can biopsy to validate. Not that unfortunately that will mean you have any great treatment options but clearly its not MBP if you are losing body hair, that is really a hallmark of autoimmune hair loss."
Mar 29, 2011
terry Koepsel replied to Mike H's discussion Nervous I may experiencing the onset of AU? What was it like for you? in the group Alopecia Universalis
"Hi Mike, I just joined . My story: My hair was thinning so I was looking a lot like my father, just male pattern stuff, then last fall it seemed that my hair was starting to get even thinner, then it started to come out by the handful when I would…"
Mar 24, 2011
Heather Bloom replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Hi Mike, I have the same situation. It took a looooong time to figure it out and get the right diagnosis. Actually mine started with my eyebrows and eyelashes. One day they just didn't look as dense as they did before, I thought it was my eyes…"
Mar 11, 2011
Mike H replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Thanks man I really appreciate it. My sister had alopecia areata when she was in highschool. She lost 60% of her hair and her hair loss patterns were nothing like mine. Started out with one smooth bald patch followed by more. She also lost all her…"
Mar 9, 2011
pat j madden replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Your mind might just be hyping up natural hairloss,spots of hairloss occur on most if not all alopecians so you might be lucky. Good luck on the 7th"
Mar 9, 2011
Mike H replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"I'm at a very frustrating stage right now with whatever type of hair loss it is that I am experiencing. I have yet to find any person that has had similar hair loss patterns as me after doing plenty of research on the internet. Most people with…"
Mar 9, 2011
pat j madden replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Your not man i know how worrying it can be No hair thinning apart from the front of my legs which i had put down to running or something. The little patch on my chin didn't phase me because there were no other signs. I had a full head of hair…"
Mar 9, 2011
Mike H replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"did you notice the hair on your head thinning before the bald spot showed up or did you just notice a bald spot one day? Sorry I'm asking so many questions I'm just trying to better understand everyone's case to compare it to mine..."
Mar 9, 2011
pat j madden replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Not for the first couple of years,It was only when i got the patch on my head that i realised something was really up"
Mar 9, 2011
Mike H replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"so you did notice bald patches on your head/body during the process?"
Mar 9, 2011
pat j madden replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"Hi mike Im no doctor but i will give you my experience anyway because you asked specifically about AU.No one in my family or grandparents had alopecia. At 22 Hair started falling off the front of my legs and shins- thought nothing of it At 23 had…"
Mar 9, 2011
Karen Smith replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"If you do the pull test and get several hairs every time you gently pull on your hair it is probably alopecia. It is so unpredictable. It may all stop and regrow or it may continue. Everyone has a different experience."
Mar 9, 2011
Lee replied to Mike H's discussion Does this sound like AU? What do you think this could be?
"good question! Usually, it starts at the head and then goes to the body. Everyone is different though. It can be very unpredictable. I would try a different dermotologist."
Mar 9, 2011
Mike H's discussion was featured

Does this sound like AU? What do you think this could be?

So I researched a lot on the internet about AU and there is surprisingly little information. I figured I would come to a forum and ask people that actually suffer from the disease to get a better understanding of the hair loss I am experiencing, and if it is in fact, AU. So back in August of 2010, I noticed my hair was thinning on the top of my head. I went to a dermatologist and he said it's probably just MPB and that if I wanted I could try rogaine or propecia. I opted for just rogaine. Since…See More
Mar 8, 2011

Profile Information

About Me:
Not sure what type of alopecia I have or if I have it. Waiting for doctor's apts.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 1:28pm on February 15, 2012, Kyle said…

Hey Mike,

Looks like you haven't been on here in a while but hopefully you still are because I believe you and I have VERY similar situations. I'm a 21 year old guy from the northeast like yourself and I've also been experiencing the diffuse hair loss you described. I noticed it on my head last February, everywhere else this past June, and to this date it just keeps on thinning and falling out, though I still have no completely bald patches. I'm just as lost as you are and I've still got my hopes up that it's not AU. If you havent already look into "chronic telogen effluvium" or "atrophic telogen effluvium." At the moment, those are the only other possible explanations that I've found. Hopefully things have gotten better for you and that's why you're not on here anymore, but if you are contact me, I think we could help each other out quite a bit.

 
 
 
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