Parents of Children with Hairloss
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Larry left a comment for Susan - Jon's Mum
Thanks Susan, Happy New Year.
Larry
Susan - Jon's Mum left a comment for Larry
Hi Larry
Thanks for your reply. Appreciate it.
You said that Joe needs to feel comfortable before participating in things. I believe my Jon is the same. He has decided to go to the school that some of the youth group members and his best friend go…
Larry left a comment for Susan - Jon's Mum
Susan, my son just turned 13 and i understand that this is the age they start to push back and get their independence. Right now my son, Joe is a good student with good grades and is active with sports. I do notice he doesn't just call a friend…
Susan - Jon's Mum left a comment for Larry
Hi Larry,
My son, Jon - 13, has had Alopecia since he was 6. This year he developed totalis and it is progressing to Universalis. He has found the totalis very hard to accept. Found it hard at school this year (first year of high school). He…
Larry replied to Saida Z. (Ariana's mom)'s discussion 'my daughter doesn't want to wear her hats to school anymore' in the group Parents of Children with Hairloss
Our son started with noticeable alopecia around the same age. His school doesn't allow hats to worn in school and he eventually lost all his hair to AU. When AU first started the school allowed him to wear a hat for the remainder of the year,…
Larry replied to Fizza's discussion 'Not sure how to deal with this' in the group Parents of Children with Hairloss
I agree that children accept the hair loss sooner than their parents. I think it helps when people your child comes into contact with know about what Alopecia is. I know that your child is 14 mos. old, but as he grows up its best not to hide the…
Larry updated their profile photo
Larry commented on Miranda's group 'Parents of Children with Hairloss'
Thank you Susan and Pamela for your comments. I appreciate the advice. I know that we can get through this with the support of my online friends, friends and family. I really appreciate the technology and the tools of the internet.
Larry replied to Jennifer's discussion 'Son newly diagnosed with AA - heart is broken' in the group Parents of Children with Hairloss
My son was about five when we discovered patches of hair missing. First, one or two spots didn't think much of it. Then they would come and go and moved around and we got the diagnoses. Our son too, is a handsome, happy boy and were able to…
Larry replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
My son was born with the tiny pin like indentations on his nails. I thought it looked like a golf ball surface. A few years later we discovered the alopecia. I didn't know it was connected until I learned more about alopecia reading on the…
Tracy and Amanda left a comment for Larry
Hi Larry,
You are right kids are more resilient. Amandas hair loss has been difficult for my husband and myself. The whole top of her head is bald but she is starting to get some regrowth. She holds alot inside but I know it is hard on her too with…
Profile Information
- Relationship Status:
- Married
- About Me:
- father of a teenager who has alopecia universal. We are not using any treatment at this time. All the treatments we tried did nothing to stop or slow down the loss. Still learning about alopecia and working on acceptance. Glad to have the use of the internet meet new friends.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (5 comments)
- At 11:32pm on December 26, 2009,
Susan - Jon's Mum said…
- Hi Larry
Thanks for your reply. Appreciate it.
You said that Joe needs to feel comfortable before participating in things. I believe my Jon is the same. He has decided to go to the school that some of the youth group members and his best friend go to. It is a very small private school. We are not sure how he will go academically (he has done well up to this point) but at this stage we are just happy that he wants to return to school.
Jon's youth group plays indoor soccer one night a week -so I am hoping he will join in that. Most of the time Jon has had alopecia he has had a level of acceptance. I think because he lost all his hair, and in his first year of high school that he raged against it and isolated himself. I think he is becoming accustomed to having no hair now. He can see that he is developing universalis and I think it is getting to the point of acceptance.
I know being involved with sport and the community help and not isolating yourself so I am hoping that he will become more involved in things and look beyond the hair as you say.
The weather here has very warm although it is overcast here at the moment and 26.3 degrees, 87% humidity.
We have been getting temperature in the 30's so it is a nice change today. Snow sounds good to me at the moment.
We have had a quiet but pleasant Christmas thanks. Hope yours was a good one for you and your family.
Best wishes
Susan
- At 9:03pm on December 21, 2009,
Susan - Jon's Mum said…
- Hi Larry,
My son, Jon - 13, has had Alopecia since he was 6. This year he developed totalis and it is progressing to Universalis. He has found the totalis very hard to accept. Found it hard at school this year (first year of high school). He doesn't want to try any treatment as treatment previously didn't seem to do anything other than in the short term.
He refused to go to school in July and has isolated himself until just recently. About 6 weeks ago he started going to a youth group with a friend. Most of his other friends he has cut off and won't have anything to do with.
How is your son coping at school and socially? Can you give me any advice on how to encourage Jon to participate in sport or social activities? Would appreciate any advice you can give.
Regards
Susan
- At 11:50am on October 5, 2009,
JeffreySF said… - Happy Birthday Larry.
Jeffrey
- At 11:05am on October 2, 2009,
JeffreySF said…
- Hi Larry,
Welcome to Alopecia World.
Jeffrey
- At 2:07am on September 29, 2009,
Tracy and Amanda said…
- Hi Larry,
You are right kids are more resilient. Amandas hair loss has been difficult for my husband and myself. The whole top of her head is bald but she is starting to get some regrowth. She holds alot inside but I know it is hard on her too with people constantly staring at her. How is your son Joe dealing with his hair loss? I know it must be hard on him. He will be okay in the end. Our kids are stronger than we think. Please keep in touch with updates. I will talk to you soon.
Tracy
Latest Activity
Tanya replied to Tanya's discussion 'Tips: What works well for me emotionally' in the group Vancouver Alopecia Support Group
Donna Kooken commented on Donna Kooken's blog post 'ME ME ME'
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