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Connie - Chris' Mom
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- Montclair, CA
- United States
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Connie - Chris' Mom replied to Devin's discussion This is a list of people and their autoimmune diseases so someone new can quickly locate a person with their same condition. Please reply with just a list of your specific autoimmune diseases.ThankYou in the group M.A.D. (Multiple Autoimmune Diseases)"1) Alopecia (completely hairless for 1 year, currently almost grown back) 2) Crohn's (became severe when hair started to grow back)
3) Eosinophilic Esophagitis
4) Possible Arthritis"
Connie - Chris' Mom replied to Wonder's discussion My 13 year old son has Alopecia in the group Parents of Children with Hairloss"We went to our pediatrician when Chris' hair first started falling out. They gave us the referral to the dermatologist but also did some standard blood tests. The blood tests showed Chris was severely anemic and then more tests were ordered.…"
Connie - Chris' Mom replied to Wonder's discussion My 13 year old son has Alopecia in the group Parents of Children with Hairloss"My son was 14 when his hair fell out, so I know your pain. He lost all of his hair within 6-8 weeks and started high school without hair. He stayed completely hairless for about a year. He's now 17 and has most of it back (he even needs to…"
"Hey Connie, just jumped onto this website today and saw some photos of your son and he is still smiling. just wanted to to tell chris that he is very lucky to have a mother like you. i got it at around 15 in the middle of high school and it was…"
Connie - Chris' Mom commented on tommy's group Mental health & Alopecia"I agree that FB is full of people trying to pretend everything is perfect. I watch and laugh most of the time. My son recently gave me a glimpse into how he had been dealing with things. He wrote a self-reflective essay for his English class and I…"
Connie - Chris' Mom commented on Megan's group Christians With Alopecia"I did a search and found the article here Great article!"
Connie - Chris' Mom commented on John M.'s blog post Hair...It CAN come back"Chris decided to grow his out and see how it looks. It's about an inch long and there's really only one spot that still shows. I just got his school pictures today and it's so good to see him looking good with his eyebrows and…"
JeffreySF left a comment for Connie - Chris' Mom"Hi Connie,
Sorry you both arent going to make it this year. Like you said, maybe next year.
It's going to be in DC in July 2012.
Jeffrey"
Connie - Chris' Mom left a comment for JeffreySF"Unfortunately we won't be able to be there. Chris decided to take his American History class over the summer (6 hours a day for 4 weeks!) so he'll have one less class next year. He's really been struggling with fatigue and it's…"
JeffreySF left a comment for Connie - Chris' Mom"Hi Connie,
See you in a couple of days!'All the Best!!!
Jeffrey"
Profile Information
- Relationship Status:
- Married
- About Me:
- I'm the mom of a 15 year old boy who we thought lost his hair because of severe anemia. But now 9 months later, anemia under control, we find out that its AU.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Connie - Chris' Mom's Photos
Comment Wall (29 comments)
- At 12:51am on January 8, 2012,
Dion said…
Hey Connie, just jumped onto this website today and saw some photos of your son and he is still smiling. just wanted to to tell chris that he is very lucky to have a mother like you. i got it at around 15 in the middle of high school and it was probably one of the toughest most confusing time of my life .. just wanted to congratulate you !!!
- At 1:09pm on June 20, 2011, JeffreySF said…
- Hi Connie,
Sorry you both arent going to make it this year. Like you said, maybe next year.
It's going to be in DC in July 2012.
Jeffrey
- At 11:34pm on June 19, 2011, JeffreySF said…
- Hi Connie,
See you in a couple of days!'All the Best!!!
Jeffrey
- At 8:40pm on December 30, 2010, JeffreySF said…
- Hi Connie,
I hope you can make it.
Wishing you the best.
Jeffrey
- At 6:41pm on December 30, 2010, JeffreySF said…
- Hi Connie,
I'm glad you had a nice Christmas.
I guess it takes us all awhile to feel comfortable in our own way.
Have you thought about attending NAAF with Chris this year in LA? There are lots of kids there of all ages. It might me good for him.
Have a Happy New Year!
Jeffrey
- At 9:45pm on December 29, 2010, JeffreySF said…
- Hi Connie,
Stopped in to say hello.
Hope all is well with You and Chris.
Jeffrey
- At 4:23pm on December 14, 2010,
Devin said… Happy Birthday Connie!!!
- At 10:54pm on July 19, 2010,
Eric Dane Mattson said… - Being susceptible to infections and viruses can be a bitter pill to swallow! I am certain you have done your research on this matter. I know that immunotherapy isnt a popular option due to the potential side affects but if you have a good, experienced specialist who knows how to administer the dosages and keeps a close eye on the bloodwork, some of the therapies can be very beneficial.
I think its cool that there is another person out there like me. I have been growing up with this condition for my whole life. I understand the issues he deals with on a daily basis at school...specifically as a teenager. I was able to rise above it so I am sure he will too. Now I am about to retire in 6 years from the military I wish nothing but the best for the young man. - Eric
- At 7:54pm on July 19, 2010, Eric Dane Mattson said…
- Yes. I am currently on the Immunotherapy path. I started taking Sulfasalazine and have had some positive results but I think I will end up having to take CellCept or Cyclosporin. I believe there will be a cure for Alopecia in the near future and it will involve treating the immune system.
My Colits is getting bad. I have had Alopecia all my life and with this Ulcerative Colitis kicking in when I got back from Iraq I am wondering if it is something I have been ingesting my whole life. They did some food allergy tests on me but I am not allergic to wheat so I am not sure if that rules out Gluten/Celiac. I am Lactose intolerant so maybe its the milk in my food products. I am going to ask my Dr. next time I see her if she can find out if that has anything to do with it.
- At 10:09pm on July 18, 2010,
Natalie said… - Hi Connie! I'm glad to hear that Chris seems to be adjusting. You're right though - high school is a challenging enough time without having to deal with alopecia! Hopefully Chris has some good and accepting friends who don't care that he doesn't have hair. I bet though that he will make it through high school just fine and will probably come away from it feeling like a stronger person having dealt with alopecia at such a young age (I know that I certainly feel stronger!). Does he play any sports or participate in theater or band? I found that keeping busy always kept my spirits high. Hope you had a great weekend!
-Natalie
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