Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Annie on August 9, 2013 at 4:44pm

Liz, you look great! The wig is perfect for you and looks very natural.

Comment by christiekd on August 9, 2013 at 4:21pm
I LOVE IT! You look amazing! Thanks for sharing.
Comment by Jodie UK on August 9, 2013 at 2:38pm
Liz you look beautiful!!!
Comment by Liz on August 9, 2013 at 2:16pm

My new wig! (below) x

Comment by Liz on August 9, 2013 at 2:15pm

Comment by christiekd on August 8, 2013 at 11:47am
Not sure how others are using Clobetesol, but here is how I do it: 2x per day for two weeks, then only on weekends for 5-6 weeks. Then I start all over again. My doctor says you have to keep "surprising" the hair follicles. This helps with sensitivity also because after 2 weeks your follicles get a little break for 5-6 weeks. Then I use the protopic on the days I don't use Clobetesol.
Comment by Annie on August 8, 2013 at 10:30am

Christiekd & Alice, thanks for your helpful information. I'll start using the Retin A on my hairline as well as face. Alice, I've stopped using the Clobetesol for a while & still have the tenderness, though not as severe. I also had stinging along my hairline when I had my hair colored on Tuesday. The stinging stopped when my hairdresser rinsed my hair. I'm wondering if it has something to do with the open follicles where I've recently lost hair. I've always had a sensitive scalp.

Comment by Debs on August 8, 2013 at 6:02am

Ladies in the UK - have seen this info on the Alopecia UK website, a lady used the company HEAD4HAIR.COM to get a hair system, she is very pleased with it. They do partial hair systems - this is just a piece to cover the front - exactly what we need with FFA - she recommends getting the 'swiss lace base'. The company are based in Manchester but you can send a template of the area you want covered in the post with a sample of your own hair. Prices seem to start at £129.00 Might be worth looking at for those of you that want supplemental hair but not a full wig. XXX

Comment by Lexi on August 7, 2013 at 9:12pm
Has anyone got any info regarding treatment with stem cells please. I've been looking into it but haven't come across anyone with FFA yet , although when I asked company I called they said they had patients with this condition . Would love some feedback if anyone knows anything .
Comment by christiekd on August 7, 2013 at 5:21pm
Annie, my doctor gave me the retin-A saying that there has been some success with people. Not sure exactly what it does. I know that he told me to use it on my hairline and my eyebrows. Also, he told me to use it all over my face for wrinkles - just an added bonus.
 

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