Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Debs on November 5, 2013 at 4:36am

Jean... this does actually make sense to me... after I had my eyebrows tattooed I have not lost any more hair from my eyebrows... I did not regrow any but the hair loss in this area has halted... this is one of the reasons I got my eyelash enhancements done back in June this year, I was hoping to trigger the same effect... touch wood and my eyelashes have not remained stable since I had the tattoo in this area.  I have heard of this from other people too.  I can only think the action of the tattoo needle somehow stimulates extra cellular activity which prevents hair loss.... whatever it is I would definately recommend trying it. 

Comment by Jean on November 5, 2013 at 4:24am

I don't know whether this is helpful but for what it's worth............

I'm not too concerned about what's happening with the scalp (prescribed local medication/shampoo) but I've been trying to improve my autoimmune system as I also suffer with arthritis and psoriasis.  To this end, I've been seeing a Chinese practitioner for acupuncture and pills to sort out my gut.  He's also given me an 'instrument' which looks like a long flexible pipe with seven sharp pins at the end.  I have to use it to  whack my head (not where I've lost hair but the bit between there and my crown) for 5 minutes on alternate days!!!  Sounds bizarre but Belinda Hale (eyebrow lady) was telling me that an FFA sufferer had successfully grown eyelashes following an eyelid tattoo and I've now got  a few hairs growing on my eyebrows following a tattoo.  Perhaps it's something to do with stimulating the skin and with no other tried and tested solutions in the offing I'm going to continue with the 'Chinese torture'.  It's only been 3 weeks so far and I'll obviously share any results (ever the optimist) with you lovely FFA sufferers.

Ever hopeful - Jean

Comment by Alice on November 4, 2013 at 5:42pm

I took doxy for years for another condition. Be sure to drink plenty of water with it.

Comment by Debs on November 3, 2013 at 3:18pm

Rita thanks for that info.  I have taken my 4th dose of doxycycline tonight and so far no tummy probs.  However  I will be defiinately going to the health food shop tomorrow to get a probiotic as we are going to be on this drug for several months so we do need to be extra careful.

Comment by Rita - Canada on November 3, 2013 at 10:46am

Debs, I have been on Doxycycline, taking it at dinner and have taken a good strong probiotic @ bed as I was told at health food store to keep those 2 apart . Anyway, no stomach problems.

Comment by Debs on November 3, 2013 at 6:26am

Ann thanks for that info... I will try it too.  thanks ladies with reassurance that the dents do fill in after injections... if the doxycyline doesn't work I may have to try the steriod injections as a last resort.   I am going to use a probiotic whilst on the doxycline to after reading all your advice.  thanks v much. XXX

Comment by Pam on November 2, 2013 at 5:45pm

Looked at dream hair blending site and it says its out of stock until after November 15th! It does look amazing in the claims it makes.

I can`t see how it would attach to cover the sides and front hairline though, as it appears to be a system which uses your existing hair, to pull through a net to add the new hair piece.

Comment by Jules UK on November 2, 2013 at 4:05pm
Just followed a link on this site to Dream Hair Blending Enhancements website. Sounds too good to be true! If anyone wants to take a look, it would be interesting to know what others make of it. X
Comment by Ann on November 2, 2013 at 2:00pm

Hello.   Just reading comments concerning fish oil.  I'm trying to follow the autoimmune protocol by Dr. Furhman.  Also joined his member center and asked advice regarding FFA.   One of the doctors responded advising fish oil due to PPAR agonist properties - similar to diabetic drugs.   don't understand the science, but thought it was worth a try.  When I asked how much,  the answer I got was 2,000-3,000 mg of EPA - to try it for 3 months to see if it makes a difference.  If not, to discontinue.  

I had to stop taking hydroxychloroquine because I was getting frequent migraines.  Been off about 3.5 weeks and still getting migraines.  Saw my GP yesterday and we agreed it wasn't the hydroxychloroquine so I will see if I can get back on it and give that a try.

 

Comment by Mandy on November 2, 2013 at 11:48am
Thanks Deb I will check them out x
 

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