Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 82
Latest Activity: Nov 27

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

Comment

You need to be a member of Vancouver Alopecia Areata Support Group to add comments!

Comment by Deeann on August 31, 2017 at 1:52pm

Who are your doctors (GPs and Dermatologists)? Still working on my speech for the DNA, and finding very few Dermatology clinics that list alopecia as a specialty. Although, I do see a lot of cosmetic dermatology places. 

Comment by Deeann on August 25, 2017 at 2:07pm

Thanks Jen. I appreciate the information.

Comment by Jen on August 25, 2017 at 12:46pm

In Canada as far as I know there is no public funding for a wig unless if you have private insurance and even then it is not much and a one time lifetime maximum ? Maybe it is different for a patient with cancer.  It can take a few months to get an apt- depends on the dermatologist and how busy their practice is.

I guess if GP finds other problems is thyroid or other Auto immune they would then refer to another type of specialist -but not for alopecia alone- maybe others have had different experiences.. 

Comment by Deeann on August 25, 2017 at 2:18am

I have a couple questions about Canadian healthcare if some of you can answer. You do or don't get funding for a wig? How long does it typically take to get an appointment with a dermatologist? Has any GPs every suggested seeing other types of doctors, i.e. - Rheumatologists or Endocrinologists? 

Comment by Deeann on August 25, 2017 at 2:16am

Comment by Deeann on August 25, 2017 at 2:15am

Kristina - so good to hear from you. We are definitely kind souls who understand. Tanya has asked about September 17th as a day to meet in a few weeks. Let us know
If that will work. Depending on where you live, someone may be able to meet with you one on one too.

Comment by lea on August 24, 2017 at 3:43pm

PS Kristina hi I think there is a meet next month, maybe pm Tanya about. I hear you how can feel bad about losing hair at the beginning was very scarrey and depressing for me. The groups helped me a lot! Hope to see at next meet and if ever have any questions, need support, vent etc msg me.

Comment by lea on August 24, 2017 at 3:38pm

Just wanted to say thank you all in this group, is very special to me! And have been thinking about how we thought of next saying what we like about this condition and a big part is meeting all the great people I don't I would have otherwise and realize power of support of others and meeting. I'm shy and used to be alot more, but think alocepia made me get out of my shell so to speak to meet others! Another bonus I don't think I'll ever have to color gray hair! ;-) =) Thanks all

Comment by babyk23 on August 15, 2017 at 7:13am
Hello everybody!
My names kristina and I'm 20 years old. I've just recently been diagnosed with alopecia areata. I'm so happy I found this support group in my city and I'd like to come to one of the meetups! I've already sent an email to the above address. Looking for kind people to talk to about my hair loss and how to cope. Sometimes I feel terrible because I'm so young and losing my hair, but it's something out of my control and there's nothing I can do besides different treatments. My hair loss went unnoticed, I'd often dye my hair, almost every month, I only noticed more hair coming out in my brush but I thought nothing of it. I've always shed a lot of hair because I had thick hair, so I thought nothing of it. Then one day at dinner, my boyfriend found a bald spot! Then 3 more when we sifted through. As of today, they are growing (I think) and another one has appeared. I'm just looking to interact with some kind souls who are expieriencing the same thing as myself. I'd feel much better coming to a meetup.
Comment by Tanya on August 4, 2017 at 3:31am

Hi Hayley!

Welcome to the group! We have a meetup coming up on August 19th, Saturday. Email me for details! alopecia.vancouver at gmail.com

My alopecia progressed from AA to AT/AU over the years too. I struggled with it for many years, until I decided to "have fun with it" (with the help of this group :)) We may have different or similar perspectives, stories, and journey, but we inspire each other, that's for sure!

xoxo
Tanya
 

 

Members (82)

 
 
 

Badge

Loading…

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2017   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service