Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 78
Latest Activity: yesterday

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

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You need to be a member of Vancouver Alopecia Areata Support Group to add comments!

Comment by babyk23 yesterday
Hello everybody!
My names kristina and I'm 20 years old. I've just recently been diagnosed with alopecia areata. I'm so happy I found this support group in my city and I'd like to come to one of the meetups! I've already sent an email to the above address. Looking for kind people to talk to about my hair loss and how to cope. Sometimes I feel terrible because I'm so young and losing my hair, but it's something out of my control and there's nothing I can do besides different treatments. My hair loss went unnoticed, I'd often dye my hair, almost every month, I only noticed more hair coming out in my brush but I thought nothing of it. I've always shed a lot of hair because I had thick hair, so I thought nothing of it. Then one day at dinner, my boyfriend found a bald spot! Then 3 more when we sifted through. As of today, they are growing (I think) and another one has appeared. I'm just looking to interact with some kind souls who are expieriencing the same thing as myself. I'd feel much better coming to a meetup.
Comment by Tanya on August 4, 2017 at 3:31am

Hi Hayley!

Welcome to the group! We have a meetup coming up on August 19th, Saturday. Email me for details! alopecia.vancouver at gmail.com

My alopecia progressed from AA to AT/AU over the years too. I struggled with it for many years, until I decided to "have fun with it" (with the help of this group :)) We may have different or similar perspectives, stories, and journey, but we inspire each other, that's for sure!

xoxo
Tanya
 

Comment by HayleyL on August 3, 2017 at 10:56pm
Hello all!
I was diagnosed (officially) at 17 was AA and for the past 11 years when my life gets out of control I go into an active falling out stage which has always been able to be reversed by Kenalog Injections. A lot of things have been bad in my life lately and I had a large spot form .. 2 months later and I'm sitting in my derms office and I got the news that I've progressed to Alopecia Totalis.. my hair is coming out in chunks and I'm at about 60% hair loss on my head now.. I had some very dark days but I've come to terms that my head does not define who I am as a person and it sure doesn't make me any less of a woman. I'm looking forward to making new connections in this group because with losing all my hair I'm going to have a lot of questions with what is to come! :) Hayley
Comment by Tanya on July 24, 2017 at 2:18pm

Dear All, I just realized that Roxanne is (most likely) Roxie, whom I've spoken to on the phone. We talked about our alopecia experiences. Roxie, if it was you who posted about the shampoo, I'm sorry about deleting your post! We are extra sensitive to "products that cure alopecia" because we get spammed by hair-growing products all the time.

Please message me privately (you got my email girl!) or come to a meetup....we are receptive of products that help, just that it needs to come from someone we know and trust :)

Sorry again about jumping to conclusion! And thanks Deeanne for pointing this out to me! Haha. Good group balance! xoxo

Tanya

Comment by lea on July 24, 2017 at 1:13pm

yes, thanks Jeffrey

Comment by JeffreySF on July 24, 2017 at 10:32am

Strike 1...

Comment by Tanya on July 24, 2017 at 3:58am

Thanks for moderating Roxanne's post Jeffrey! I've deleted her shampoo advertisement post. 

Comment by JeffreySF on July 23, 2017 at 11:38pm

Really???

Sorry, but I don't think this is appropriate. 

Please rethink your ridiculous idea that a shampoo is going to grow hair. 

Enough said...

Comment by Tanya on May 28, 2017 at 9:23pm

Hi Roxanne! Welcome to the group! Our next meetup should be happening soon, and we'll send out an email before then. Please email me at alopecia.vancouver[at]gmail.com

Comment by Roxanne on May 28, 2017 at 9:12pm
Hey I was wondering when the next meeting will be ??
 

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