Alopecia World

Where acceptance is all there is!

Anna

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people who want to send a message that judging other people on their appearance is wrong.

Members: 160
Latest Activity: Mar 2

this is me talking to my school about my disease

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Joel Comment by Joel on February 10, 2010 at 4:38pm
You guys and girls have more courage in 1 square inch of your bald heads every minute than most people will have in their whole lives!!! Here's to you!
dave Comment by dave on February 2, 2010 at 10:48pm
thats cool to i used to wear bandannas but they got hot all the time so i stopped wearing mine its been awhile since i went bald i really enjoyed the freedom of no hair i am long over due for my shave
elena f. Comment by elena f. on February 2, 2010 at 8:32pm
thanks a lot! -elena
dave Comment by dave on February 2, 2010 at 8:18pm
hi Elena don't be intimadated by removeing your bandanna to others be yourself' if they don't like it is their problem not yours' make life comfortable and enjoyable to yourself like the song says don't worry be happy!
elena f. Comment by elena f. on February 2, 2010 at 3:37pm
everyone at my school knows about my condition....so why don't I take off the bandanna? I am not really sure. I want to be able to tell people why I don't have all my hair. I don't want them thinking, "Bandannas are so not cool!" or something like that. I am kind of confused..........if you have any advice please comment on my page. Thanks -elena
dave Comment by dave on December 31, 2009 at 7:27pm
i want to send a positive message to members that baldness is not in anyway a handicap in any way shape or form' its the idiots of our society who like to judge others' if they could only see their own reflection in a mirror!
elena f. Comment by elena f. on December 29, 2009 at 11:18am
Hi!!!
Maureen Comment by Maureen on May 27, 2009 at 3:40pm
Ladies I finally did it today I tattoo my eyebrows. I was so undecided about doing it. I found a lady who owns Permanent Cosmetics by Olga the shape is great and they are even. The color is a bit dark but is told it fades a bit with in the month. ILOVE THEM!!! No more penciling them in YEA!!!
Gabriella Comment by Gabriella on March 12, 2009 at 5:38pm
if only...............................................
Steve Comment by Steve on February 23, 2009 at 10:55am
Very courageous!! I wish I had the fortitude at that age to do what you have done! Very nice job!

I've read some of the comments on this forum and it amazes me that kids remain the same. I've had this AU condition for over 50 years now and the most vivid memories I have are from the cruel and unusual treatments I received from a variety of kids as I grew through my elementary years. In my case there was a principal who intervened on my behalf. It happened in the Spring of my seventh grade year. I had been subjected to increasingly cruel abuse and I was still the second smallest kid in the class. My grades were falling like a rock, I went to the school nurse regularly with "stomach aches" (really just an excuse to get away from the classroom). There were days when I didn't even want to get out of bed let alone go to school for more torture.

One day, out of the blue, the school principal walked into one of my classes and asked me to leave the room and go next door to another classroom. I had no idea why I had been singled out like that and I was wondering if my behavior was getting me in trouble. The room I sat in was empty, but it was a science room so that made it OK.

About a half hour went by before the principal returned and brought me back to the classroom. Everyone stared at me when I came in, but there was a dramatic difference in how they looked at me. The change in their attitudes was amazing! It was like someone had waived a magic wand over all the evil and swept it away without a trace! Suddenly, the kids in my classes were full of questions about my hair.

From that day forward it got better for me. My grades improved. My self confidence grew. I could look people in eye again.

Remember, this was 40 years ago in the mid-60's. Auto Immune problems were not well known, yet. Alopecia was a word that, when I used it, was the first time 99% of the people I met ever heard the word and that lasted all the way into my twenties!

You know? It gets better as you get older. You gravitate toward people who couldn't possibly care less what you look like and you begin to be who you really are. I'm afraid I don't visit this site very often because I'm so BUSY! I just don't think about alopecia all that much.

I tell people who are curious that "Alopecia is something I have, it's not who I am." But I definitely remember being a kid and growing up with this condition, so your video is just awesome!! I wish you all the luck in the world, because we all need luck from time to time, and may your future be as pain-free as possible! - Steve
 

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Anna Ben Wade Cheryl, Co-founder rj, Co-founder Dotty Alberto kastababy Zanie Elline Surianello Squonk Stephanie KnittyCat BaldGirlsDoLunch.org Roger Jennifer Lori Donna Isabelle and Anthéa mattias VanessaVandalism Jerrel Dave callie blackwell Lesley Berry marisa Carol Jennifer and Alieena Gina willow Billie
 
 
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