Cicatricial (scarring) Alopecia


Cicatricial (scarring) Alopecia

Cicatricial (scarring) alopecia refers to a group of rare disorders which destroy the hair follicle and replace it with scar tissue, thereby causing permanent hair loss. Those afflicted with this type of alopecia are faced with some special needs.

Members: 106
Latest Activity: on Wednesday


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Comment by Chris on Wednesday

Diagnosed 10 mos. ago and don't know much about it. Dr.not much help. She put me on MGP which got rid of sores. She had done a biopsy. Am healthy except for hair problem. What can I use on scalp that might help hair to grow. Any help would be appreciated. What is best place to order a wig. I have to have a petite.

Any help would be appreciated.


Comment by Debs on April 30, 2015 at 2:23am
Hi Manda, thanks for the info re aloe vera. It is a fantastic healing plant for many conditions. I am only using diet and natural renedies so I will give it a go. I pretty much ignore my hair loss now, just accept it as part of my life and use herbal supplements to try and reduce inflammation in my body to prevent other illness in the future. I appreciate your reply. Xxx
Comment by MandaDeuce on April 7, 2015 at 8:35pm

Hey  @Debs!! I hate this message is so late!! I have CCCA..for the inflammation i've had great results with using aloe vera juice! I drink it(not always lol) and I massage my scalp with it as a "pre-poo", I use it with my shampoo, and even spray my hair with a mixture of aloe vera juice, glycerin, and water....There are moments when my scalp is sore from inflammation and when I use the aloe vera in any way it's stops the inflammation. I haven't  seen any hair loss since I've cut my hair out and started using it. I've actually seen much growth. I equate that to the aloe vera and my It Works Hair Skin Nails vitamins...i'm praying it stays but then again I am comfortable with whatever happens! Hope this helps! and good luck!! 

Comment by Debs on October 15, 2014 at 6:57am
Hello Ladies, thank you for responding. I stopped all meds back in February and am just focusing on looking after my health. Any holistic strategies anybody has found useful for reducing inflammation in their body I would love to know. I have also now developed episcleritis - inflammation in my eyes - not a serious condition but the cause is inflammation the same as my FFA.
Comment by Sheila Pinder on October 13, 2014 at 5:50pm

Yes, the group is still active. I am not as active since I went totally bald four years ago. I accepted my condition and take no drugs or wear wigs or scarfs. 

Comment by MandaDeuce on October 13, 2014 at 4:13pm

Im here as well!!

Comment by carol on October 13, 2014 at 3:37pm

Yes.  I am still here

Comment by Debs on October 12, 2014 at 7:08am
Is this group still active ?? i never receive responses to my posts.
Comment by Debs on October 8, 2014 at 1:09pm
CARF are holding their 2nd patient support group meeting in London on friday 14 Nov 2014
Comment by Debs on July 13, 2014 at 7:16am
I have been to a medical herbalist in the UK, just outside of London, i have stopped taking all my meds about 5 months ago because the hair loss was continuing and I had side effects, very bad tummy upsets, from the antibiotics. I have a tincture to take 3x a day, herbs to put in boiling water to make up a hair rinse to use after shampooing and an oil to rub into scalp once a day. I wanted to get the inflammation in my body under control because I have now developed an eye complaint that is caused by inflammation too. I still use the anti inflammatory diet and supplements. I feel the way forwards with my health is to use a holistic approach to my health.

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