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Comment by Tiffani on August 18, 2011 at 10:23am

Hi all, yeah, the only topical medication the Dr prescribed for me was Clobetasol Propionate; the brand name being Olux-E. I only use it every once in a blue moon, but during my last visit in April, I asked the Dr can she prescribe something cheaper since Olux-E can cost anywhere from $55-$100 a can. She prescibed me the generic, liquid, version of Clobestasol Propionate. I have only used it once for a comparison and it does not compare, IMO, to Olux-E, so anyways I'm no longer a member of a health insurance plan (due to my full-time committment as a nursing student) so I will have to stretch these medications, if needed/possible.

Comment by Carol Sue Cain on August 17, 2011 at 11:59pm

I was on plaqunil for 6-9 months and it did nothing for my inflamation. I have been on Actos for 9 months and the inflamation has significantly improved. I have a check up next month and the Dr will decide whether to continue Actos for another 3 months or stop. I have some topical treatment for itching, but have not had to use it for months. Well see how things go next month.

Comment by Angie P on August 17, 2011 at 11:40pm

Hi Carol. I have not pursued any treatment other than the Olux foam. I needed it in the beginning to get rid of the itching and burning. I decided against any shots or transplant. I have not heard of this medication ACTOS. Is it working for you as you expected?

Comment by Carol Sue Cain on July 11, 2011 at 1:10am

Helllooooo??? Anybody out there?
I was diagnosed with Cicatricial Alopecia and my dermatologist (who is a researcher in Cicaticial Alopecia) put me on ACTOS 15 MG once a day. This is actually a drug for diabetics....anyone else on this?

Comment by Carol Sue Cain on April 17, 2011 at 12:40am

Hello! I'm newish to this site. I was diagnosed with Frontal Fibrosing Alopecia one year ago. My hair loss has slowed, but I know I'm looking a chronic condition for the rest of my life....It bums me out to think that the hair loss is permanent...on the other hand, reading the experiences of others, I wonder if it's really worse than constantly losing and regrowing and losing.. Anyway, I just wanted to say HI to my peeps. :)

Comment by Jill Hickman on January 10, 2011 at 7:12pm

I have just joined this site-my first related to alopecia. I was diagnosed with LPP about 2 years ago but started noticing patchy, thinning hair about 1-1 1/2 years before that. My treatment was limited after initial diagnosis because I became pregnant. I took plaqunil for almost a year, but recently stopped because my husband & I are trying for a second child. My current treatment is steroid injections every 4-6 weeks and topical foam/lotion that i use every night. My balding continues to worsen and it is getting more difficult to cover up. I'm very self conscience about it, but I'm also beginning to come to a new level of acceptance. I think some kind of hairpiece/wig is inevitable unless I just "let it show". I'm just not sure what to try first. There are soooooo many options out there that it's overwhelming. I am considering going wig shopping but have no idea what to buy. Most people would think it's way too early for me to buy a wig but I'm ready for a good hair day-even if it's not with "my" hair. Any suggestions?

Comment by zee on November 16, 2010 at 10:04pm

to Asher, I was diagnosed with lichen planopilaris about a year ago. The derm put me on a 6 month course of doxycline as well as topical solutions (dermasmooth) but I still have some tingling /itching even though the hair loss is not as rapid. Lately I have just started using some clobetasol propionate cream that was prescribed some time back for a skin condition and its helping but still got a little bit of tingling.. its frustrating! :-/

Comment by Angie P on November 16, 2010 at 3:30pm

How long have you been taking this regimen and how long do you anticipate having to be on it? Getting a proper balance of these things must be tricky. I expect the Griseofulvin may be there to help counteract some of the issues routinely caused by anti-biotics???? How often do you get bloodwork?

Comment by Asher Jones on November 15, 2010 at 10:56am

Hi everyone! I just wanted to share some information on what has helped me. I was diagnosed through a biospy that I havew CCCA (Central Centrifugal Cicatricial Alopecia) last October 2009. After finally finding a derm that knew anything about this I was put on Doxycycline and Griseofulvin. It worked wonderfully! I am still on those two medications and have not had any more hair loss since then.

Comment by Angie P on November 14, 2010 at 8:31pm

Thanks Megan.

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