Cicatricial (scarring) Alopecia


Cicatricial (scarring) Alopecia

Cicatricial (scarring) alopecia refers to a group of rare disorders which destroy the hair follicle and replace it with scar tissue, thereby causing permanent hair loss. Those afflicted with this type of alopecia are faced with some special needs.

Members: 102
Latest Activity: Mar 25


Discussion Forum

Early stages...need help!

Started by MandaDeuce. Last reply by MandaDeuce Jul 20, 2014. 7 Replies

Anyone tried Dermovate?

Started by Rosie. Last reply by chris for hair Mar 13, 2013. 5 Replies

Comment Wall


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Comment by Debs on October 15, 2014 at 6:57am
Hello Ladies, thank you for responding. I stopped all meds back in February and am just focusing on looking after my health. Any holistic strategies anybody has found useful for reducing inflammation in their body I would love to know. I have also now developed episcleritis - inflammation in my eyes - not a serious condition but the cause is inflammation the same as my FFA.
Comment by Sheila Pinder on October 13, 2014 at 5:50pm

Yes, the group is still active. I am not as active since I went totally bald four years ago. I accepted my condition and take no drugs or wear wigs or scarfs. 

Comment by MandaDeuce on October 13, 2014 at 4:13pm

Im here as well!!

Comment by carol on October 13, 2014 at 3:37pm

Yes.  I am still here

Comment by Debs on October 12, 2014 at 7:08am
Is this group still active ?? i never receive responses to my posts.
Comment by Debs on October 8, 2014 at 1:09pm
CARF are holding their 2nd patient support group meeting in London on friday 14 Nov 2014
Comment by Debs on July 13, 2014 at 7:16am
I have been to a medical herbalist in the UK, just outside of London, i have stopped taking all my meds about 5 months ago because the hair loss was continuing and I had side effects, very bad tummy upsets, from the antibiotics. I have a tincture to take 3x a day, herbs to put in boiling water to make up a hair rinse to use after shampooing and an oil to rub into scalp once a day. I wanted to get the inflammation in my body under control because I have now developed an eye complaint that is caused by inflammation too. I still use the anti inflammatory diet and supplements. I feel the way forwards with my health is to use a holistic approach to my health.
Comment by Debs on January 18, 2014 at 11:01pm
I have my tattoo done privately I had no idea that it could be funded by the NHS. I make sure I get my NHS funding for my wigs, this only covers part if the cost but we are entitled to it so I make sure I apply for it.
Comment by Amilda on January 18, 2014 at 6:36pm

 To have my eyebrows tattooed at the hospital would cost me £300.00.

Other's with Alopecia have had them done for free at the same hospital.                    So I feel rather disappointed that I have been refused, maybe it's because  of old age I may be seen as none important. Ah! well!, I shall still stand for my right and be counted.........

Comment by Debs on January 18, 2014 at 2:41am
I have my eyebrows and eyelashes tattooed it was a huge boast to my confidence many of us with FFA and other types of scarring alopecia have this. I would ignore your derm tattooing your eyebrows has no effect on our hair loss so do what you want. There is no medical reason for your derm to say this in fact I was recently at a conference fir people with scarring alopecia and 3 derms attended and tattooing eyebrows was presented as an option for us to use if we lose eyebrow hair.

Members (102)





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