Comment

Comment by Chel Campbell on Wednesday

Seeking individuals between the ages of 13 to 25 with all forms of Alopecia Areata to participate in an anonymous research study.
Research is being conducted by a student researcher, Louise Borg as part of an Honours Degree in a Psychology course, under supervision of A/Prof. Gerard A. Kennedy from Victoria University. We are looking for individuals with all forms of alopecia areata (AA) between the ages of 13 to 25 to participate in an anonymous research survey.
The study is entitled:
“Coping, Quality of Life, Depression and Anxiety in Young Australians with Alopecia Areata”.

The research aims to identify factors that may assist young people with AA to cope better with the disorder and provide information to the AAAF to support people with this condition. It is hoped this research will benefit those with AA.
What will be asked of you?
There will be four brief, separate questionnaires to fill out each with a specific heading title and this should take around 30 minutes.
All you need to do is contact a member of the research team and we will mail you the questionnaire package (including information to participants form and consent form for under 18) and you can complete the questionnaires in your own time.

You can return the completed questionnaires to the researchers via regular post using an enclosed reply-paid envelope. If you would prefer us to send you the questionnaire package electronically (e.g. via email), all you need to do is supply us with your email address. You can then return the completed questionnaires via regular mail or via email.

**Note: any identifying information sent in an email to us will be deleted and we will only retain your completed questionnaire, so as to maintain anonymity of your responses.

If you are interested in participating in this research please contact:
Associate Professor Gerard A. Kennedy on (03) 9919 2481 or gerard.kennedy@vu.edu.au or Louise Borg on 0402 945 121 or louise.borg@live.vu.edu.au
We look forward to hearing from you.

Comment by Vesna Devcic on Monday

Canberrans!
Meg our AAAF Support group representative will be hosting our first get together on Sunday the 3rd of June at 10.30am. The meeting will be at the Chifley Wellbeing Hub, McLaurnen Crescent Chifley (the old Melrose primary school). The invite is open to all of you and your family. This is a chance for everyone to come together.

If you have any questions please do not hesitate to contact us info@aaaf.org.au

Hope some you can make it!

Comment by Vesna Devcic on May 12, 2012 at 8:41pm

Hi Everyone, I have a story to tell about an experience yesterday that I thought I would share.

I was in an event called the "great race" for an organisation that had invited me to participate with approx 40 other individuals that I didn't know, so I did it thinking it would be fun!

Well it was based on the TV series "Amazing Race" and it involved a lot of running and a few events that made me wonder "oh boy" I better hang onto my hair!

The whole event went by fairly well and then the final stretch home running for the finish line, our team was neck in neck with another team.....well the unthinkable happened!

Somehow my hair ended up being caught in someone's hands trying to push through the finish line with about half the teams waiting and cheering everyone one...and of course my crowning glory (or lack of it) was on display for all to see! I think there was some shocked looks and some people laughed.....How did I feel??

Well I put my wig back on& had my 15 seconds of fame!! Well I think I wanted to die and have the floor swallow me up....but I put my wig back on and started talking to everyone that was curious. Unfortunately, it wasn't the way I had hoped I could tell people about my alopecia but nothing like being put on the spot.

But I think the main thing of this story was that I think that people either out of courtesy forgot what happened and kept talking to me as though nothing happened or they were genuinely curious.....

Would love to hear from others about your experiences and how it made you feel about being "discovered" with alopecia!

Comment by Vesna Devcic on May 7, 2012 at 1:59am

AAAF joins GoFundraise - so for those who have been asking for a way to raise funds for AAAF here it is!!!!!!!! -Supporters can now fundraise or donate 24 hours a day, 365 days of the year through our Cause Page:
http://www.gofundraise.com.au/beneficiary/AAAF

You can create your own cause and direct your friends family work colleagues etc to donate. They will get a tax receipt for all donations over $2.00. http://www.gofundraise.com.au/beneficiary/AAAF

Our Cause Page is AAAF personal web page devoted to our organisation. With one click you can easily donate or create the following fundraising pages:

· Personal Challenge - bike ride/walk/mountain climb/friend cutting their hair ??
· Celebration
· Special Occasion
· Making a Difference

So how many of you will take up the challenge?
We already have someone cutting their hair for AAAF:

http://makingadifference.gofundraise.com.au/page/StarkeyR

I know I will be creating a page soon.....my aim is to do a Nepal Trek and see how many people will sponsor me to do my 40 day trek for the AAAF !! Its as easy as that

Comment by Vesna Devcic on May 3, 2012 at 7:40am

Just an update to let you know that we have 44 people registered for our Pizza night!!

We also have our Adelaide catchup its still not too late if you wish to join in...
South Australian Support Group Ladies Lunch - Saturday 5th May, 12 noon until 3.00pm
Café Primo - 151/161 Glynburn Road, Firle 5070

A chance to catch up with old friends and meet some new ones with something in common!

Please RSVP Liz – 0409892021

Comment by Vesna Devcic on April 24, 2012 at 10:57pm

We are having success with our great initiative: Wig for Kids program. If you wish to wear a wig and are 17 and under we encourage you to apply!

http://www.aaaf.org.au/index.php?page=wigs-for-kids

Comment by Vesna Devcic on April 24, 2012 at 10:35pm

Just a quick note to Everyone, we have quite a few AAAF events and catchups going on in QLD, SA and VIC...

Check out the previous posts below to see if you would be interested in any of them, our big event is in Melbourne coming up on 2nd June for the Trivia night if you are interested I would book it soon....

Otherwise keep you eye out on our website for updates on more events coming soon
http://www.aaaf.org.au/index.php?mact=CGCalendar,cntnt01,default,0&...

Comment by Vesna Devcic on April 24, 2012 at 10:32pm

Queensland - AAAF Casual Dinner catchup
Amici's Restaurant on Saturday 19th May @ 7pm
Arbour View Cafes, South Bank, 4101

Chel Campbell, President of AAAF, will be representing AAAF at a Dermatologists Conference in Brisbane.

If you would like to catch up with Chel and meet new friends please Rsvp your attendance to Chel on info@aaaf.org.au

Comment by Vesna Devcic on April 18, 2012 at 9:02am

South Australians, for those that can't make the lunch there is always Dinner!!

South Australian Support Group Mid-year Dinner on Sunday 27th May at 6pm - 9pm.

Café Brunelli, 187 Rundle Street Adelaide 5000

Everyone welcome and our last dinner was great! Please RSVP Liz – 0409892021 – by Wednesday 23rd May if attending

Comment by Vesna Devcic on April 18, 2012 at 9:00am

South Australians - its your turn for an event!

South Australian Support Group Ladies Lunch - Saturday 5th May, 12 noon until 3.00pm
Café Primo - 151/161 Glynburn Road, Firle 5070

A chance to catch up with old friends and meet some new ones with something in common!

Please RSVP Liz – 0409892021 – by Wednesday 2nd May if attending.

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