Information

Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 853
Latest Activity: Aug 4

Discussion Forum

LDN

Started by Laura Dasi. Last reply by pterese Feb 24, 2016. 5 Replies

Lyme disease?

Started by Liz. Last reply by Rach1992 Nov 23, 2015. 7 Replies

Exercising advice

Started by Nicole. Last reply by Dominique Cleopatra Aug 14, 2015. 13 Replies

Comment Wall

Comment

You need to be a member of Alopecia Universalis to add comments!

Comment by Lisa on August 4, 2017 at 5:02pm
Hi everyone! Just joined after months of contemplating joining. Thankfully, I feel much stronger than I did a few months ago. Just wanted to say that with a positive mind-set, things do look brighter. The hardest thing was being in the midst of losing my hair - once it all went, I began to accept it and no longer look for miracle cures. Am going on holiday shortly and am looking forward to having great hair every evening and no waxing - every cloud...
Comment by EmJay417 on July 8, 2017 at 12:40pm

Michael - sweating with no eyebrows is the WORST!!!! the first time i went for a run after losing mine was awful! i had to keep wiping my eyes and couldn't see a damn thing! Not to mention the stinging! yes. I feel ya, brother. I feel ya

Comment by Alopecian Beauty Mixer on May 31, 2017 at 5:50am
Hi guys I'm having a special Event called:
Alopecian Beauty Mixer (Charity Event)
(STRICTLY ENFORCED DRESSCODE NAVY BLUE & WHITE /CREAM ONLY) September is Alopecia Awareness Month thier ribbon color is navy blue so September 30, 2017, We'll be launching a fundraising campaign to support individuals who suffer from the diseases Alopecia Areata & Cancer. This is a family friendly event that will include networking, food, drinks, special guest, custom wig give aways/demos, complementary massages, makeovers and A lot more. Including a bartender for 21+ participants! We also will have live performances/Celebrity photographers are going to be in the building for personal and group shoots. Why not have a amazing time while supporting a positive cause? Lets come together as a community and show support, love, while giving back to one another! See you there...
Comment by Michael on May 27, 2017 at 8:24am

Just figured what it is like to sweat and not have eyebrows. Absolutely not fun at all! These days my eyes keep watering from the wind, or sting from sweat running into my eyes..... Nastiest thing I experienced so far from this disease.

Comment by Michael on March 31, 2017 at 11:35am

One sign that you know more than your doctor is when he reads up on web pages at your visit....

I went by him yesterday to see if another blood test could be an idea and that's what happened.

The only treatments i have been confronted with so far, are actually lowering the immune system. Honestly I think I have enough diseases for now and need not lower my immune system to welcome even more.

Yes it looks different, but it's only hair. I have come to terms with it by now even if i feel i look strange when taking off my glasses. The picture is already outdated as I now have only 5 or 6 hairs left in my left eyebrow.

The feeling of having baby skin is more apparent to me than the reflection of my mirror.

Wish you all a great weekend. Spring is comming here in DK so best get some sun on the scalp while it doesn't burn ;-)

Comment by Linda King on March 31, 2017 at 10:50am
Hi Everyone,
Had alopecia areata for about 15 years, one small patch at a time; then more widespread. 2007-2009 Kenalog injections, Rogaine, and Olux successfull for about 1 year. Hair went all white during that time. Then it started to come out by the handful, within 6 months all gone everywhere by Thanskgiving 2010. Eyebrows and lashes come and go periodically. My tattooed eyebrows are fairly natural looking; Work wig to work, rarely after retired, prefer to wear a hat or Buff, just to keep the sun off. It is what it is; most people admire the courage to live with it. Love yourself.
Comment by Monika on March 19, 2017 at 7:42pm
Hi Michael,
I have AU, I literally have no hair (including nasal hair and tiny hair in ear).
For me, I was very young when hair fall out. I thought it's normal. Just stay +ve, accept who you are. Take your time :).
Comment by Tom on March 19, 2017 at 7:12pm
I'm 59 and have had AU for 40 years. It really is a rollercoster of emotions. I think I've been through pretty much everything life can throw at me. But yes I still have days that I have to talk myself through. Days where I doubt everything about myself. Just know that you can't give up no matter what.
Comment by JeffreySF on January 12, 2017 at 1:19pm

Hi Michael,

Having alopecia is a rollercoaster of mixed emotions for everyone. Especially so as you transition through stages of your new appearance.

Comment by Michael on January 12, 2017 at 10:59am

Hi

I have had AU for about 6 month now, and dont know anyone with the same disease. So I have nothing to compare with, but suspected early on that it was Alopecia. December 20th I was diagnosed AU and have accepted it for what it is.

I do, however, find myself doubting but maybe that is due to a new found attention to any hairs at all.

Fact is that I am now bald, and have lost my eyelashes and eyebrows well on the way to disappear.

Does anyone else have these mixed emotions?

 

Members (852)

 
 
 

Badge

Loading…

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2017   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service