Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

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Latest Activity: Jun 13

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Comment Wall


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Comment by Gurlsagemini on April 18, 2016 at 12:22am
Hey yall I'm 24 and I have had AU for 4 years it started when I got pregnant with my first daughter I was just shedding and showing spots after I had her all my hair on my head had eventually fallen out until i only had a handful of hair left i remember the nighr i decided to shave it my mom had bought me a wig thinking it would help and my brother shaved my head i cried myself to sleep then the rest of my hair on my body decided to go to. I had eye brows though up until about 2 years ago now I'm completely hairless and still I haven't been fully able to accept it so I'm thrilled to have this site and meet everyone knowing there are more like me makes me feel alot better and hopefully I can learn more. About a week ago I got shots and also got a cream called fluocinonide we shall see what the future holds...
Comment by Cue Ball of Steel on February 1, 2016 at 6:19pm

I may look like a naked mole rat, but at least I don't have to shave my legs. 

Comment by Mark on January 25, 2016 at 8:41pm
Has anyone heard anyone getting their hair back after being on Humria ?
Comment by Bagiral on December 19, 2015 at 3:16am

Hi everybody! My story with A have been beginning from my childhood. 6 years ago, after birthing my daughter I lost all my hair. A became AU. I found that AU was the implacable foe for 5,5 years. But then, I suddenly understood, that AU was my friend, the extraordinary friend. I got a lot of drugs, treatment, but only simple things can help with my hair. So, I met a doctor, who has practiced Chinese medicine. She did special massage. And after 1 month little white hair appeared! It was miracle. But it is not all... I has believed that it was possible being healthy. In my opinion, it is the hardest thing, especially you are bald for many years. I used some mediums and I believe I`m healthy.  Every day, every minute.. And it helps to become strong and positive. Unfortunately, I can`t share my photos, because my hair is as little as invisible. But I hope I`ll do it soon. Thanks))) You can write me if you want)) I`ll be glad and try to help each my "colleague".

Comment by dianna on December 15, 2015 at 7:52am

i start to lose my hair before 3 years a go. i feel very depress to see my hair fowling.every day. i wish to find something to cure this diseases.

Comment by Lucas hoo on December 14, 2015 at 11:39pm

AU for 10 years,really upset but never give up!

Comment by Rea on December 4, 2015 at 8:51am
Hello, I'm from Indonesia, just want to share that for 8 years since I'm 11 years old I have Alopecia Universal, but then miracle happen, my body hair start to I only have Allopecia totalis...
Comment by Monika on November 9, 2015 at 12:50pm

Hi Barbara and Dianna, loosing hair is equally hard for both gender. I am 23 year old atm had no hair at all and i being though a very hard time all of my friends left me but all my loved one supported me and that make me who i am right now. Its hard to be odd one around. and here is my secret which give me strength. so after i lost my hair which was a very slow process coz i being to all phases of alopecia... Just stop caring and start accepting its hard i know but there is a saying "fake it till you make it" it (being bald) happen to me very quickly but i accepted it. 2nd is to take some alone time stop talking to everyone around you except your loved ones and think do hair really effect your lifestyle that much ?? (if you an actor then yup they do :P ) then think do people for whom your'll be covering yourself really worth it ?? accept the fact coz when you accept it your life will be way more easy. also watch draw my life tag in youtube see all people who are famous being through something way hard and difficult then loosing their hair. and if people ask you about you having cancer just smile and say with confident and joy "Nope its alopecia an autoimmune disorder which make my immune system think that hair are useless for my body and i trust my own immune system :) its harmless same when girls remove their hair using wax. if you have any more question then feel free to ask" let your personality speak... by this way people will love you and identify you for who your not how you look. 

Comment by Bernadette on November 9, 2015 at 9:54am
The name is listed in my comment. Its called best lace wigs.
Comment by dianna on November 9, 2015 at 7:45am

Can you please  give me the company name sale this wig .thank you Bernadette.have a nice day.


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