Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

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Latest Activity: Mar 31

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Lyme disease?

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Comment Wall


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Comment by Michael on March 31, 2017 at 11:35am

One sign that you know more than your doctor is when he reads up on web pages at your visit....

I went by him yesterday to see if another blood test could be an idea and that's what happened.

The only treatments i have been confronted with so far, are actually lowering the immune system. Honestly I think I have enough diseases for now and need not lower my immune system to welcome even more.

Yes it looks different, but it's only hair. I have come to terms with it by now even if i feel i look strange when taking off my glasses. The picture is already outdated as I now have only 5 or 6 hairs left in my left eyebrow.

The feeling of having baby skin is more apparent to me than the reflection of my mirror.

Wish you all a great weekend. Spring is comming here in DK so best get some sun on the scalp while it doesn't burn ;-)

Comment by Linda King on March 31, 2017 at 10:50am
Hi Everyone,
Had alopecia areata for about 15 years, one small patch at a time; then more widespread. 2007-2009 Kenalog injections, Rogaine, and Olux successfull for about 1 year. Hair went all white during that time. Then it started to come out by the handful, within 6 months all gone everywhere by Thanskgiving 2010. Eyebrows and lashes come and go periodically. My tattooed eyebrows are fairly natural looking; Work wig to work, rarely after retired, prefer to wear a hat or Buff, just to keep the sun off. It is what it is; most people admire the courage to live with it. Love yourself.
Comment by Monika on March 19, 2017 at 7:42pm
Hi Michael,
I have AU, I literally have no hair (including nasal hair and tiny hair in ear).
For me, I was very young when hair fall out. I thought it's normal. Just stay +ve, accept who you are. Take your time :).
Comment by Tom on March 19, 2017 at 7:12pm
I'm 59 and have had AU for 40 years. It really is a rollercoster of emotions. I think I've been through pretty much everything life can throw at me. But yes I still have days that I have to talk myself through. Days where I doubt everything about myself. Just know that you can't give up no matter what.
Comment by JeffreySF on January 12, 2017 at 1:19pm

Hi Michael,

Having alopecia is a rollercoaster of mixed emotions for everyone. Especially so as you transition through stages of your new appearance.

Comment by Michael on January 12, 2017 at 10:59am


I have had AU for about 6 month now, and dont know anyone with the same disease. So I have nothing to compare with, but suspected early on that it was Alopecia. December 20th I was diagnosed AU and have accepted it for what it is.

I do, however, find myself doubting but maybe that is due to a new found attention to any hairs at all.

Fact is that I am now bald, and have lost my eyelashes and eyebrows well on the way to disappear.

Does anyone else have these mixed emotions?

Comment by TallNBald on October 9, 2016 at 8:52pm

Let's make bald great again! :)

Comment by maria on July 22, 2016 at 8:29am

im 42 and had AU for two years now its really affected my self confiedence i feel fake with my wig false eyebrow and eyelashes want to talk to people who really understand how i feel

Comment by dreamscometrue on July 19, 2016 at 1:06pm

@Gurlsagemini that's exactly how mine started.  I'm 53 now but I've noticed recently my hair is growing back.  On the sides my daughter says is so many hairs she cant count. I've had AU for almost 30 years now

Comment by maria on July 19, 2016 at 11:21am

hi im new here i just really need to talk to someone who is going through the same thing as me someone who totally understands


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