Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Members: 812
Latest Activity: yesterday

Discussion Forum

Exercising advice

Started by Nicole. Last reply by Jane Dec 31, 2014. 11 Replies

Lyme disease?

Started by Liz. Last reply by Jason Dec 26, 2014. 6 Replies

Comment Wall


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Comment by on January 22, 2015 at 9:18am

Thank you Mar S and Gina!

Comment by Mar S on January 21, 2015 at 4:16pm

Good for you Pam!  By the way, you look fabulous!

Comment by Gina on January 21, 2015 at 1:00pm

Hi Pam - wow, I am proud of you and your tweet!  Glad to see the comment made by Dove :)

Comment by on January 21, 2015 at 11:59am

I caught a segment of the Today Show this morning doing an experiment to see the difference in the impact of curly hair and straight hair. They said be sure to tweet a I did. So far I've gotten a response from the Dove company. 

Please check this out and any of you who would like to add your thoughts or tweet your picture to the Today Show - this is a fun opportunity to make our presence known. Also, please share the link on your fb page and/or retweet the tweet - Everything we can do to get the message out to our bald community.

Comment by BlitaG on January 5, 2015 at 12:26am

Happy 2015 everyone. Thanks for all the encouragement, you made it easier. We continue to fight despite the losses and what we have gone through.

Comment by Peter_P on January 2, 2015 at 10:40am

Hi again GG,

That's a fair point - I'd agree I find myself sometimes making assumptions about how well other people are doing - knowing full well I have no knowledge of what they may or may not be going through personally. Alopecia being such a visible thing.... it's easy to let it dominate - whereas as you say there are graces in our lives that deserve attention and thanks.

Your observations are helpful and I thank you for them. 

Now that I can be sure you've made it 2015 I wish you and your's all the best!

Peter :)

Comment by Garden Girl on December 31, 2014 at 9:05pm


Happy New Year..though not quite ye here in the Philadelphia, PA USA area.  We took our daughter out for her birthday and I found myself feeling a bit envious of all the merrymakers, knowing I was headed home to TV..At a vulnerable moment, it's easy to slip into the belief everybody has a richer, fuller or happier life than me.  Then I remembered something I heard once, those times, reflect on what you're grateful helped lessen my funk....hope it helps you!


Comment by Peter_P on December 31, 2014 at 7:50pm

Hi Garden Girl,

Thank you - and you are 100% right! Onwards and upwards :)

Happy New Year!

Comment by Garden Girl on December 30, 2014 at 11:51pm

Hi Peter,

One good thing about saying good bye to a year filled with're saying goodbye to it!

Hang in there and know you are not alone,

Garden Girl

Comment by Peter_P on December 28, 2014 at 10:54am

Hi everyone - first post. AA started a couple of years ago with a small patch behind my ear. In march this year my scalp hair started falling out at a ballistic rate so I shaved it off. Since July all my hair has gone... eyebrows, eyelashes, nose hair. I have a few stayers on my shins so they haven't got the message apparently :) Anyways - seasons greetings to everyone - I'm saying goodbye to a year filled with loss - hair, confidence and sadly the beginning of the end of a 10 year marriage. Lastly thanks to everyone who posts their experiences on here - as a quiet observer it helps during harder days. Peter


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