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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

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Discussion Forum

Exercising advice

Started by Nicole. Last reply by Niece Mar 23. 8 Replies

My son's hair is growing back?!?!?!

Started by Jordan's Mom. Last reply by swillard Feb 12. 3 Replies

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Comment by Mar S on May 20, 2014 at 6:11pm

Sharon, those eyebrow pencils sound interesting.  Do you know the brand name?

Comment by Sharon on May 20, 2014 at 6:04pm
Mastering eyelashes gets much easier and accurate with a magnifying mirror. It takes me no longer to put on lashes than it did when I was using mascara. Everything goes on first try. I also put glue on the lash line let it dry slightly and eyelash slides into place. Also I buy eyebrow pencils that aqua dancers use and it stays on all day.
Comment by Mar S on May 20, 2014 at 4:45pm

I hear you Kathleen.  I don't have the time or the patience to master the putting on the eyelashes.  I found that eyeliner works well and is much quicker.  It doesn't make the eyes look so "blank."

Comment by Kathleen on May 20, 2014 at 4:01pm

That is one positive of AU... getting ready really fast. 

 Unless I'm attempting to put on false eyelashes, which slows me down considerably.... and involves a lot of cursing.  LOL.  I'm not very good at that.

Comment by Joanne S on May 20, 2014 at 1:17pm

I work in a rheumatology office and deal with many medications that suppress the immune system.

  I do not think there have been studies to indicate that these treatments work and they do carry a fair amount of risk.  If I was in pain and could not continue my daily living activities I would consider it but hair loss while very burdensome psychologically it does not keep me from doing everyday things.  I also agree I would take my eyebrows and lashes back first if I had to choose although I have tattooed my brows and liner and I can get ready in literally 15 minutes including a shower. lol.

Comment by Bernadette on May 20, 2014 at 12:04pm
I tried the autoimmune depressants but they didn't work for me. Also, if they do work, they will only work while you are taking them, & most autoimmune medication can only be taken temporarily, so whats the point really? I think the best course of action is just to accept it. Live in the present, & if that means you have no hair right now, then so be it. I try to look at the positive & have fun wearing different wigs! The eyebrows & lashes were tough for me too. I have since had my brows tattooed on & I have mastered the art of applying false eyelashes.
Comment by Kathleen on May 20, 2014 at 11:04am

I have a similar background.  As a child I had bad ashma and eczema.  I've always been highly allergic, mostly seasonal.  Then at age 16, my hair started to fall out and at around that same time I was diagnosed with hypothyroidism.  The hair on my head fell out really quickly and then spread to my body. I have had AU for 36 years.  Way back when, I tried cortisone shots, lotions, vitamins, etc. but nothing worked.  I've come to the conclusion that this is here to stay.  Really stinks.  I think not having the eyebrows and eyelashes bother me more than the hair on my head, for both aesthetic and functional reasons.  Would love if they found a cure!!!

 

Comment by AllisonHorton on May 20, 2014 at 10:35am

Hey folks, I'm new to this whole things. I have been through pretty much every "treatment" but hve had zero luck and have been told by my derm that it won't really change. There's one last ditch effort treatment we can try, immunosuppressants, has anybody had any luck with them? I'm wondering because I have stopped doing any treatment for the last 6 months since my chances of getting any results are small and they will most likely not be permanent. I'm just wondering if anybody knows what's what with this or has had any good or bad views on it. I just want to know what real people think of it and not just what the Dr. says about it since I think they're a little biased.

Comment by dianna on April 26, 2014 at 10:23pm

for me i start to lose my hair now and i get very depress.

Comment by Joanne S on February 28, 2014 at 7:23am

I have AU and Hashimoto's hypothyroid.  I do believe there is a connection between autoimmune disease and alopecia.  Most autoimmune diseases involve some type of inflammation in the body which is also the reason the hair falls out.  I do not think a cure is in the near future as the drugs to treat autoimmune diseases are very potent and the risk vs. benefit to these meds to treat hair loss would be an intense debate.

 

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