Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Members: 848
Latest Activity: Jan 26

Discussion Forum


Started by Laura Dasi. Last reply by pterese Feb 24, 2016. 5 Replies

Lyme disease?

Started by Liz. Last reply by Rach1992 Nov 23, 2015. 7 Replies

Exercising advice

Started by Nicole. Last reply by Dominique Cleopatra Aug 14, 2015. 13 Replies

Comment Wall


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Comment by JeffreySF on January 12, 2017 at 1:19pm

Hi Michael,

Having alopecia is a rollercoaster of mixed emotions for everyone. Especially so as you transition through stages of your new appearance.

Comment by Michael on January 12, 2017 at 10:59am


I have had AU for about 6 month now, and dont know anyone with the same disease. So I have nothing to compare with, but suspected early on that it was Alopecia. December 20th I was diagnosed AU and have accepted it for what it is.

I do, however, find myself doubting but maybe that is due to a new found attention to any hairs at all.

Fact is that I am now bald, and have lost my eyelashes and eyebrows well on the way to disappear.

Does anyone else have these mixed emotions?

Comment by TallNBald on October 9, 2016 at 8:52pm

Let's make bald great again! :)

Comment by maria on July 22, 2016 at 8:29am

im 42 and had AU for two years now its really affected my self confiedence i feel fake with my wig false eyebrow and eyelashes want to talk to people who really understand how i feel

Comment by dreamscometrue on July 19, 2016 at 1:06pm

@Gurlsagemini that's exactly how mine started.  I'm 53 now but I've noticed recently my hair is growing back.  On the sides my daughter says is so many hairs she cant count. I've had AU for almost 30 years now

Comment by maria on July 19, 2016 at 11:21am

hi im new here i just really need to talk to someone who is going through the same thing as me someone who totally understands

Comment by dianna on July 12, 2016 at 9:36pm

I have the same problem as you people.wish to find some thing to grow my hair back.

Comment by Blissful Raven on July 12, 2016 at 9:29pm
Hello everyone! It's been a long time since I've been online. Just checking in. It really good to know and see that you all are here. The support really makes a difference!
Comment by Gurlsagemini on April 18, 2016 at 12:22am
Hey yall I'm 24 and I have had AU for 4 years it started when I got pregnant with my first daughter I was just shedding and showing spots after I had her all my hair on my head had eventually fallen out until i only had a handful of hair left i remember the nighr i decided to shave it my mom had bought me a wig thinking it would help and my brother shaved my head i cried myself to sleep then the rest of my hair on my body decided to go to. I had eye brows though up until about 2 years ago now I'm completely hairless and still I haven't been fully able to accept it so I'm thrilled to have this site and meet everyone knowing there are more like me makes me feel alot better and hopefully I can learn more. About a week ago I got shots and also got a cream called fluocinonide we shall see what the future holds...
Comment by Cue Ball of Steel on February 1, 2016 at 6:19pm

I may look like a naked mole rat, but at least I don't have to shave my legs. 


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