Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Members: 850
Latest Activity: on Sunday

Discussion Forum


Started by Laura Dasi. Last reply by pterese Feb 24, 2016. 5 Replies

Lyme disease?

Started by Liz. Last reply by Rach1992 Nov 23, 2015. 7 Replies

Exercising advice

Started by Nicole. Last reply by Dominique Cleopatra Aug 14, 2015. 13 Replies

Comment Wall


You need to be a member of Alopecia Universalis to add comments!

Comment by Monika on Sunday
Hi Michael,
I have AU, I literally have no hair (including nasal hair and tiny hair in ear).
For me, I was very young when hair fall out. I thought it's normal. Just stay +ve, accept who you are. Take your time :).
Comment by Tom on Sunday
I'm 59 and have had AU for 40 years. It really is a rollercoster of emotions. I think I've been through pretty much everything life can throw at me. But yes I still have days that I have to talk myself through. Days where I doubt everything about myself. Just know that you can't give up no matter what.
Comment by JeffreySF on January 12, 2017 at 1:19pm

Hi Michael,

Having alopecia is a rollercoaster of mixed emotions for everyone. Especially so as you transition through stages of your new appearance.

Comment by Michael on January 12, 2017 at 10:59am


I have had AU for about 6 month now, and dont know anyone with the same disease. So I have nothing to compare with, but suspected early on that it was Alopecia. December 20th I was diagnosed AU and have accepted it for what it is.

I do, however, find myself doubting but maybe that is due to a new found attention to any hairs at all.

Fact is that I am now bald, and have lost my eyelashes and eyebrows well on the way to disappear.

Does anyone else have these mixed emotions?

Comment by TallNBald on October 9, 2016 at 8:52pm

Let's make bald great again! :)

Comment by maria on July 22, 2016 at 8:29am

im 42 and had AU for two years now its really affected my self confiedence i feel fake with my wig false eyebrow and eyelashes want to talk to people who really understand how i feel

Comment by dreamscometrue on July 19, 2016 at 1:06pm

@Gurlsagemini that's exactly how mine started.  I'm 53 now but I've noticed recently my hair is growing back.  On the sides my daughter says is so many hairs she cant count. I've had AU for almost 30 years now

Comment by maria on July 19, 2016 at 11:21am

hi im new here i just really need to talk to someone who is going through the same thing as me someone who totally understands

Comment by dianna on July 12, 2016 at 9:36pm

I have the same problem as you people.wish to find some thing to grow my hair back.

Comment by Blissful Raven on July 12, 2016 at 9:29pm
Hello everyone! It's been a long time since I've been online. Just checking in. It really good to know and see that you all are here. The support really makes a difference!

Members (850)





Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World. It's hair loss support at its best!

© 2017   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service