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Alopecia Totalis

Join today to meet, support and share information and resources with others who are also living with the complete loss of scalp hair.

Website: http://www.AlopeciaWorld.NET
Members: 148
Latest Activity: Jan 15

Discussion Forum

Maria Reeve

im having such a hard time coping...

Started by Maria Reeve. Last reply by Paige A Schuck Sep 21, 2010. 9 Replies

Alexis

hot weather

Started by Alexis. Last reply by Mary Hynes Jul 28, 2010. 8 Replies

Fabienne

???

Started by Fabienne. Last reply by Dee Jan 25, 2009. 1 Reply

Comment Wall

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Marieca Comment by Marieca on October 18, 2011 at 10:56pm
Hi fellow alopecians! I am new to the site and to the group! It's so great to have a group of people to talk to who know exactly what you're going through!
Margo Comment by Margo on October 16, 2010 at 11:00am
Welcome Ali- I live in New Mexico so can't help you with NJ support but just wanted to empathize with you! I as well have been living with this for a couple of years now and still have a hard time coping at times. So many people on this site are so positive and supportive so sometimes it's nice to just come here and read the comments to remind ourselves we're not alone, and we feel for eachother! Hang in there!
ali hinkle Comment by ali hinkle on October 15, 2010 at 1:11pm
Hello i just joined and have been living with this for a few years and have lately had a hard time coping. Does anyone live or know of any support in NJ?
i am glad to have find this place and all of you
kerry edwards Comment by kerry edwards on September 13, 2010 at 3:21pm
Hi Flin thanks for the link I have signed up.Also the infor was very helpfull. Like is alopecia hereditary. the cause of it and so-on. It would be nice to meet up with people in the same situation in the uk . I have friends for 12/14yrs and dont know I have au.My family have never seen my head uncover since I was 13yrs old. But founding about alopicia world has been very helpfull, insirpering,and encouranging, that I not alone, that there are people who have the same condition as me.Iam learning that things could be much worst, ie, having a arm or led missing being blind. So I give thanks,. But you do get those days when you think why me, I could be saving alot of money here or I could wash my hair and go.But heyhouh. Iam luckly that do look normally, thank-god.. Thanks again flin.
Flin Comment by Flin on September 13, 2010 at 7:56am
Hi Kerry,
just wanted to say that there are support groups in the UK. I was living in London and I was involved in a support group. Check this out:
http://www.alopeciaonline.org.uk/about-alopecia.asp
In London, they also arrange meetings every two months or so. Their next meeting is on 25th September. You can contact Carolyn, she arranges everything. Good luck in everything!!
Good luck to everybody!!!
kerry edwards Comment by kerry edwards on September 11, 2010 at 4:22pm
Hi to you all just reading your bolgs. very encouranging , love the quotes I live in uk just wanted to know if there is any support aa groups where I can meet with people like me. Iam in my late thirtys. and found out about this site 6mths ago. I didnt deal with alopecia very well I was very depressed and with- drawn, at the age of 10. Its only in the last 4/3 yrs Iam expecting myself. In the us you seem to have a lot more support groups then uk? But I am very very gald I foung you guys. god bless each and everyone of you. You guys who blog regularly give hope to peolpe like myself..xxxxxx
Margo Comment by Margo on September 11, 2010 at 11:04am
b>u>Attitude

Sometimes we just have to remind ourselves.........I know I do!
Blessings to all of us!!!

There once was a woman who woke up one morning,
Looked in the mirror,
And noticed she had only three hairs on her head.
'Well,' she said, 'I think I'll braid my hair today.'
So she did and she had a wonderful day.
The next day she woke up, Looked in the mirror
And saw that she had only two hairs on her head.
'H-M-M,' she said,
'I think I'll part my hair down the middle today.'
So she did and she had a grand day.
The next day she woke up,
Looked in the mirror and noticed
That she had only one hair on her head.
'Well,' she said, 'today I'm going
To wear my hair in a pony tail.'
So she did, and she had a fun, fun day.
The next day she woke up,
Looked in the mirror and noticed
That there wasn't a single hair on her head.
'YAY!' she exclaimed.
'I don't have to fix my hair today!'
Attitude is everything.

Be kinder than necessary,
For everyone you meet is fighting some kind of battle.

Live simply,
Love generously,
Care deeply,
Speak kindly.......
Life isn't about waiting for the storm to pass...
It's about learning to dance in the rain. We just have to count our blessings everyday.
Gail Comment by Gail on September 8, 2010 at 4:45pm
I'm in Atlanta and don't know anyone in the northeast with alopecia. I would perhaps check with the dermatology departments of teaching hospitals in the NY/NJ/PA area to see if they can steer you in the right direction. DCP originally started as a treatment for psoriasis (another autoimmune disease) and produced results for hair growth. Also check not just dermatology but immunology docs as well. Good luck in your search....I'm sure you'll find someone.
Flin Comment by Flin on September 8, 2010 at 4:33pm
Gail thank you so much for your resonse. You don't have by change any phone number/name or anything else I can contact for this matter? I called some docs in Philly but no one of them offered DCP. Maybe there are some I don't have their names...Thanks anyway :-))))
Gail Comment by Gail on September 8, 2010 at 1:28pm
Yes, DCP treatment is available in the U.S. Don't know about docs in your area but there are plenty of folks on AW in the NJ/Philly area. Good luck!
 

Members (148)

Maria Reeve Mary Amber Gale Moorman Alexis Paige A Schuck Mary Hynes Farial Michaelsen kim yazujian Leah Larson Emily Horsley Tracey L. Dee Margo Fabienne Paaggeeyy Mel Marieca Elaine Kyree Jones Sanah Jivani Ali ahmad Mya & Christine iiii Diane leach Alyssah Leslie Lauren Denise T Deirdre
 
 
 
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