Alopecian in NYC

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Comment by Joanne Thomas on August 15, 2010 at 12:48pm

Hi everyone! I had Alopecia Areata a few years ago, with bare patches around my head. With medical treatment, they grew back. My hair is baby-fine and thin now. But I know how scary it is to lose your hair suddenly for no reason.

Comment by Jocelyn on July 17, 2010 at 9:09am

NYC BAGEL BRUNCH TODAY!!!! Even if you haven't signed up online we still want you there!! See EVENTS for more details

Comment by Jocelyn on July 14, 2010 at 8:00pm

Hey Guys!!! Just a reminder about the Bagel Brunch this Saturday! It will be a real laid back meet & greet .. check out EVENTS for details. I hope I can see you there!

Comment by Artemis88 on June 28, 2010 at 2:49pm

Hey all,
wonder if any of you have had to deal with this.
I am just starting to grow my hair back, which is good news, it's patchy and uneven but whatever, right?
Anyway, I usually wear a wig, and I have a friend who is constantly trying to get me to go to the beach with her. When I go on vacation with my folks it isn't a big deal I will ditch the wig and wear a headwrap, but I really don't feel comfortable doing this around my friend and her husband. I am not entirely sure why. It just makes my stomach queasy. When my hair started falling out all over when i started dental school, all she wanted to do was talk about it and tell me it wasn't that bad, and that things could be worse. Then she would tell me about her friend whose mother died or something.
THEN, I will never forget this, she called me up to cry about a BAD HAIRCUT, and how she didn't go to work because it looked to bad and she was crying on the phone to me about it. I couldn't believe it. Here I was going BALD, un certain, stressed out, depressed about it, and that is the phone call I get.
This was last year, so I kind of feel like I should be over it, but I guess I am not. And now she wants to go to the beach, and I don't really feel like her asking me a bunch of questions about it when I don't feel like she has any respect for what this condition can do to people. Plus, she loves to talk about other people's drama and I really don't feel like being the one she talks about. She is one of my closest friends, don't get me wrong, I just haven't quite learned how to deal with her and this issue.
I really DO want to go to the beach, but the thought of trying to deal with the hair thing out there with her is un-nerving. Anyone have any ideas? Or any similar experiences? How did you deal with it?
Thanks!

Comment by Jocelyn on June 8, 2010 at 6:50am

NEXT MEETING:
MONDAY---JUNE 14th, 2010---Start Time: 7:30pm

LOCATION:
Cornell Medical
1305 York Ave, NY , NY 10021
(southwest corner of 70th and York )
Once in the building, take elevators to the 9th floor.
Signs will direct you toward the conference room.
Additional information is provided below. Please contact Jodi (917-399-9892) if you need help finding the location that day.

TOPIC:

Open Meeting w Guest Speaker, Peter Sell, Karen's Wigs
In it's 16th year of operation, over 20 years of experience, London-trained and state licensed stylist Karen. Focus towards helping women with cancer and alopecia.

Main objectives: Peter and Karen would like feedback on wig buying experiences - no holds barred! What worked, what didn't. What could the place of business have done differently. In essence, they are trying to learn more about the needs of an individual with alopecia in order to better serve them.


TRAVEL INFO:
By Car
Coming from FDR North, take the 61st Street exit and make a right turn onto York Avenue . Coming from FDR South, take the 72nd Street exit and make a left turn onto York Avenue . The Weil Greenburg Ambulatory Care Center is located on the left side of York Avenue at 70th Street .
By Bus
Via York Avenue, take the M31 to 69th Street . Via 1st Avenue , take the M15 to 67th Street . Walk one block east to York Avenue and turn left onto York Avenue . The Weil Greenburg Ambulatory Care Center is located on the left side of York Avenue at 70th Street .
By Subway
Take the 6 train to the 68th Street /Lexington Station. Walk four blocks east to York Avenue and turn left onto York Avenue . The Weil Greenburg Ambulatory Care Center is located on the left side of York Avenue at 70th Street .

Comment by Gale Moorman on April 30, 2010 at 2:59pm

Ayana, welcome to alopecia world, Alopecian in NYC. Are you from the NYC area?

Comment by BaldGirlsDoLunch.org on April 12, 2010 at 10:50pm

Final 24 hours for the Celebrate pre-event ticket rate. Discount expires Tuesday night 11:59 pm, 4/13/10

Meet Miss Southern New York 2010 , Faren Collins, who wowed the judges and won the crown on the platform of women's alopecia and the BGDL nonprofit....and talent and beauty, too!

Meet friends. Learn new resources. Support BGDL, alopecia awareness , beauty and style for YOU with hair, wigs or bald. We do everything!


Here for your invitation and details. Dinner, wine, door prizes, free wig trims, expert cut and color consultations, BGDL make-up.

if you can't be with us on Wednesday...be sure to get on our list at our main site for the NYC "Bald is In - Bagel Brunch" on July 17th.

Thea
baldgirlsdolunch.org

Comment by Pat Latina on March 29, 2010 at 7:01pm

Does anyone know of a good tatoo specialist for eyebrows? I've been thinking about it lately.

Comment by Pat Latina on March 29, 2010 at 7:00pm

Although I live in CT, I was born and raised in NYC. Love that City!! Hope you all are going to the BGDL on April 14th, I'll be there.

Comment by Jocelyn on March 27, 2010 at 6:19pm

Hey NYC friends! Does anyone know of a good doctor that possibly specializes in autoimmune disorders and is covered by GHI in the NYC area?

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