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Alopecia Areata

Join today to meet, support and share information and resources with others who are also living with patchy hair loss.

Website: http://www.AlopeciaWorld.NET
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Latest Activity: Nov 16

Discussion Forum

Curious about Age of AA

Started by Rayne. Last reply by Agata Nov 10. 27 Replies

sweating?

Started by Debbie. Last reply by BarbaraK Oct 7. 6 Replies

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Comment by Stacey B on July 24, 2014 at 3:06pm

My daughter was diagnosed with AA in 2010. 

Comment by Fascinatinrythm on July 11, 2014 at 12:22am

Hi all, My story began when I was 11-12 years of age,(1979-80), this was the first time I suffered from Alopecia. Back then it was called Alopecia Nervosa Type A. At the time I was a child actor. An Australian film I did called Mystery Island (1980), shows the hair loss in certain scenes. My hair did grow back after a few years. Now 35 years later I am experiencing alopecia (areata) hair loss again. It seems to be far more aggressive although I did not shave my head back then as I have done on this occasion. All signs show that it is the areata variety although the hair loss is also on my chin and around my mouth,(the goatee area).

Comment by heidi willemse on June 26, 2014 at 8:29am

To: alopecia areata group

Hi people from AlopeciaWorld,

As someone with Alopecia myself and as a member of this forum, I wanted you to know about my Research Study on quality of life in people with Alopecia Areata

My name is Heidi Willemse and I am a graduate Health Psychology student at the University of Leiden in the Netherlands. I am inviting you to participate in a study about the quality of life in persons with Alopecia Areata (AA).

Having Alopecia myself, and given the limited research on this condition, with my thesis research I want to provide insight in the way people with AA experience their condition and deal with it in everyday life. In this way, I aim to contribute to improved (psychosocial) care for people with AA.

You can participate if you are diagnosed with Alopecia Areata by a dermatologist or general practitioner and have reached the age of 16. (I hope in the future to include the other types of alopecia also).

This study consists of an online survey that will take about 30 minutes of your timeWhether you are currently experiencing problems in dealing with your AA or not at all, your participation is valuable to the study.

 

A direct link to the online questionnaire: https://uleidenss.eu.qualtrics.com/SE/?SID=SV_0I1Z23q5dNVHUah

Additional information on the study, and the link to the questionnaire can be found on the following website: http://aa-survey.webs.com/

 

Your participation will be greatly appreciated!

Please, if you see the benefits of this study, pass this along to your friends with Alopecia Areata (on this forum, or anywhere else in the world). 

I also posted the information in a blog of Alopeciaworld.. (so if you have been reading this more than once... sorry)

For questions you can contact me at: h.m.a.willemse@umail.leidenuniv.nl

Hope for your participation...I love this site and all the advice and support that is given on here!! I really want to contribute with my research for more understaning about the condition.

Thanks... 

Comment by Pam on January 31, 2014 at 7:53pm
Comment by Pam on December 18, 2013 at 11:23pm
Comment by Joyce Marie Hawes on December 14, 2013 at 7:05am

Hi everybody. Hope you have a wonderful Christmas and a great weekend. Merry Christmas my friends.

Comment by Deeann on October 19, 2013 at 4:34am

Just letting everyone here know about a book I'm working on.  It's really starting to take shape, and I'm looking for additional stories from men, women and children in all stages of hairloss.  

I've been featuring people who have made a difference with their experience by making choices to do something better, or to living up to their true potential. 

If you'd like to be part of this project, feel free to check out my website for "Head-On, Stories of Alopecia".  It can be seen at www.baldgirlsrock.com.  You can also see it on facebook under the "Head-On..." title.  I would love it if you could "like" and "share" it so it will continue to encourage more people to share their stories.

The alopecia community has always been so supportive of one another, and my hope is that word of this project will spread like wildfire. I look forward to hearing your story.

Comment by Amanda on June 26, 2013 at 10:18pm
I'm looking for ideas on shampoo and conditioner. Since my flare up this time my scalp is more sensitive than usual.
Comment by User306 on May 13, 2013 at 3:32am

Does anyone know where I could find some statistics? I want to know what % of people recover fully when they have Alopecia Areata but only have one spot.

 

I fully noticed it's presence 3 days ago! But 2-3 months ago, my boyfriend had pointed out that I was missing a little bit of hair but we both thought it was just my rosette...

 

I haven't seen any other spots...

Comment by JeffreySF on May 13, 2013 at 1:31am

Be well!!! Working nights is horrible on the body from my experience.

Hugz!

 

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