Alopecia World
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Is it bad if I don't want my hair to grow back?
I will give you a brief history...
I am 28. I have three different auto-immune issues that did not start until after I had kids....up until then, healthy, college athlete. I have always had a thick unruly head of hair......always had it thinned out at hair appts...My Dad had a Afro so I was "blessed" with crazy thick, puffy hair. My first auto-immune issue was Thyroid...I had a 20 month old and newborn and my TSH was 189 (should be under 2). Not long after that, I developed Palmar Plantar Pustular Psoriasis and lost all of the skin on my hands and feet. I am still struggling with this but it is at least manageable at this point. After I stopped nursing our third child at 1 yr, my hair started to fall out rapidly...it was completely gone (except for a stubborn few) in about 2 months time. I have been bald for the last three months. I was somehow blessed in that my eyebrows and lashes were intact but they are falling out now too.
I will miss my eyebrows and eyelashes but overall, I don't mind being bald. It was very nice this summer...soooo much cooler! I used to overheat all the time...was actually kind of nice to enjoy the breeze. I do have a synthetic wig that I wear off and on...I think it will be fun to get a few more to try different looks. There are days that I miss my hair but I have kind of got used to and almost enjoyed my new found freedom from my hot head of hair.
Should I want it back? Is this a normal reaction? How are you guys approaching it? I have DPCP but I quit taking it after a month...didn't seem to do much but I also didn't give it much time...
I am 28. I have three different auto-immune issues that did not start until after I had kids....up until then, healthy, college athlete. I have always had a thick unruly head of hair......always had it thinned out at hair appts...My Dad had a Afro so I was "blessed" with crazy thick, puffy hair. My first auto-immune issue was Thyroid...I had a 20 month old and newborn and my TSH was 189 (should be under 2). Not long after that, I developed Palmar Plantar Pustular Psoriasis and lost all of the skin on my hands and feet. I am still struggling with this but it is at least manageable at this point. After I stopped nursing our third child at 1 yr, my hair started to fall out rapidly...it was completely gone (except for a stubborn few) in about 2 months time. I have been bald for the last three months. I was somehow blessed in that my eyebrows and lashes were intact but they are falling out now too.
I will miss my eyebrows and eyelashes but overall, I don't mind being bald. It was very nice this summer...soooo much cooler! I used to overheat all the time...was actually kind of nice to enjoy the breeze. I do have a synthetic wig that I wear off and on...I think it will be fun to get a few more to try different looks. There are days that I miss my hair but I have kind of got used to and almost enjoyed my new found freedom from my hot head of hair.
Should I want it back? Is this a normal reaction? How are you guys approaching it? I have DPCP but I quit taking it after a month...didn't seem to do much but I also didn't give it much time...
Replies to This Discussion
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Permalink Reply by Eliza alisa abgail on -
Not bad at all. You have every right to feel the way you do. Its your life and you should live it your way you want.Personally how I look at it is that I think I will always be stuck in the middle of wanting hair and be bald... I would love for some eyelashes instead of eyeliner... at the same time.. Leg hairs and unwanted hairs can stay away. LOL as long you are happy that's all that really matters.
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Permalink Reply by Em on -
No i dont think its bad to feel this way at all! I have had alopecia for over 16 years (i was 12 when i got AU) and i often tell people that i feel the same way as you. I dont think i could cope with my hair growing back now! I would verheat in bed and when i am playing with my kids lol. Some people refuse to believe that someone could be truely happy being bald, and not want their hair back but i honestly do feel like that way! I say good on you :) :) xx
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Permalink Reply by Kassy X on -
I think its completely normal. In my eyes it means you've come to terms with being bald. The hardest part for me is when I get my hair, knowing that its gonna start falling out again and that its only a matter of time. Every time it grows back it gives me hope until I realize its only temporary. I think if you're a comfortable being bald and beautiful, then more power to ya!
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Permalink Reply by loryn! on
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i feel the same way, most of the time, sometimes i go back and forth with it, but at the end of the day, i typically just want to rip my wig off and let my egg head shine.
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Permalink Reply by Norm on -
Kind of nice to hear that some peeps are actually alright with the hand that life's dealt them. Had to laugh that you're worrying about whether you should worry, though... :)
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Permalink Reply by MiNAH on
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See Norm, I just think people are so conditioned to worry. Told you the human race is way too complicated. They complain when they have hair. They complain when they have no hair, and they still complain when they don't want hair. Never satisfied. I just think they should let it all go and just be. Stop thinking so hard!!!
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Permalink Reply by R0BB on -
Im worried about the fact that Im worried over the indecision whether or not to worry about my alopecia. Or not .
Its gonna be just fine !
(ya think ?? )
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Permalink Reply by Dom on -
An optimist is a really a pessimist who has not heard the bad news yet. lol
Most of us have heard the bad news (especially those with AU) from reading, Dermatologist or just that creeping realisation, that it's here to stay (Barring remission) and thats a long, long shot with AU.
I am used to and accept my AU now.
I could accept if my hair grew back.
I am quite content.
I would not like to go through the "fallout" stage again and trying to cover patches. NO NO NO!
So my present default position (6 years AU) is good. I'm not stressed and i am content about my AU.
Peace of mind.
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Permalink Reply by George Blackwood on -
I was born with Ectodermal Dysplasia (similar to Universalis, but very rare apparently). Endured systemic bullying in the 60's and 70's, so that was transforming in a negative way. However, worked through that, now loving the challenges of life and especially being bald; gives me an added edge (streamlining) when running marathons and swimming :o)
So, no; you look great bald. And for those reading this who may be uncomfortable with being bald or with their hair loss, I know this takes substantial getting used to; but here's the thing: if you're needlessly concerned about what others might think of your (bald) appearance; you and you alone are holding yourself hostage to needless anxiety. Stop this; you must honour yourself, it's your Responsibility. And I'd like to share another thought: if anyone you know DOES tease or otherwise disparage your appearance, why in the world would you ever care about or want someone like that as a friend?
You're stronger than you may believe; you, and all the other alopecians in this wonderful group.
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