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Cyclosporine
hello
there is someone who has been treated with cyclosporine?
Yesterday I went to my dermatologist and told me I just need to deal with this is an immunosuppressant drug that I'm not sure if it really worth it
there is someone who has been treated with cyclosporine?
Yesterday I went to my dermatologist and told me I just need to deal with this is an immunosuppressant drug that I'm not sure if it really worth it
Replies to This Discussion
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Permalink Reply by Aimee on -
I used to use Restasis eyedrops, which contain cyclosoporine. I used it for years in my pre-alopecia days, and then I developed alopecia. My eye doctor told me to stop using it, just in case the cyclosporine had some weird effect on me that caused me to lose my hair!
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Permalink Reply by Karen Smith on -
Have you looked at the research for this? My daughter is on sulfasalazine and is having regrowth.
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Permalink Reply by Christine on -
I had not heard of this before being used, I did look it up, and it sounded like other than transplants, and dry eyes, it is only used it pretty severe cases, of autoimmune conditions, like Rhumatoid Arthritis, If someone was using it and than developed Alopecia, it makes me think that perhaps its not so useful for us. I know that the sulfa drugs are used for autoimmune bowel problems like Ulcerative Colitis, and Crohns. and I know that inflamation has something to do with AA, so maybe, I would like to hear more about it, I would not be able to try it, as I'm allergic to Sulfa Drugs, but it would be great if it could help others.
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Permalink Reply by Marga on -
Thank you girls for your comment. At the end of January I have to go back to the dermatologist and I have to answer if I accept or not the treatment, so I have time to keep thinking about what to do.
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Permalink Reply by Marisa on -
I work in a pharmacy and I asked the pharmacist who I trust a lot what ther opinion was on using drugs such as cell cept, cyclosporine etc...immunosuppressant drugs basically...for hair regrowth and she flat out said she thinks that the DANGEROUS side effects of these types of drugs are not worth using for the POSSIBLITITY of them growing hair....I see so many people trying to frantically grow hair and it kind of makes me think I should be doing something besides just looking in the mirror and saying it is really okay and there are far worse things than being bald...but I think that is what I am going to keep doing...ACCEPTING...LIVING...LOVING...and being thankful that I don't have something worse wrong with me....God bless you all in your quest...GOD GRANT US ALL THE SERENITY TO ACCEPT THE THINGS WE CAN NOT CHANGE, THE COURAGE TO CHANGE THE THINGS WE CAN, AND THE WISDOM TO KNOW THE DIFFERENCE...
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Permalink Reply by Karen Smith on
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The problem with not treating alopecia is that the immune system is not right so if it attacks hair what else will it attack? I agree with you that it is not worth treating if it is only hair but so many of these autoimmunes cluster so isn't it wise to try to treat it? I don't have the answers but this is why we chose to treat. Having said this my daughter just developed hives so she off sulfasalazine becaue we don't know the reason for the hives. She has about 20% of her hair growing right now so it is disappointing to stop treatment.
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Permalink Reply by Phyllis Tankel on
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Karen, I agree with you totally. Since no one really knows the cause of alopecia, it does make sense to treat it. It's like anything else--you have to be monitored to make sure the medication is not doing any harm. And, I used to take sulfasalazine for rheumatoid arthritis and got an outbreak of hives on my legs. My doctor did put me back on after a few weeks and I never got another hive outbreak. I hope that is the case with your daughter.
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Permalink Reply by Phyllis Tankel on
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Has anyone heard about treating Alopecia with methotrexate? While I agree with Marisa that acceptance is the key, my teen-aged son has suffered traumatic psychological effects; he does not have the wisdom nor the maturity to accept his Alopecia. I have recently spoken to another mother whose son started taking methotrexate and low dose prednisone and has had full head hair re-growth after several years. He has re-grown his head hair, eyebrows, eyelashes and is shaving yet I had not heard of this protocol being available in this country (the initial study was done in France). I take methotrexate for Rheumatoid Arthritis and have for over 10 years with no side effects and no liver, etc. damage. Just wondering if anyone has tried this treatment for Alopecia. Thank you.
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Permalink Reply by Marga on
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My husband is injected methotrexate for 3 years, he has ankylosing spondylitis. controls on the effect of this drug are strong, every month to monitor his blood analyzes the harmful effects that can be done in other organs. At the moment everything is ok and his illness is stopped. For this reason I think I might try and monitor side effects.
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Permalink Reply by Karen Smith on
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My daughter's dermatologist offered her methotrexate with steroids but she declined. She watched her sister in law feel lousy on the drug and it was not worth it to her. She chose the sulfasalazine and is still hoping her body heals itself.
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Permalink Reply by Phyllis Tankel on
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That's what I'm afraid of....that my son's desire for his hair to come back will keep him from speaking up if he feels any effects from the drugs. I never had any side effects from the methotrexate but everyone is different. Thank you so much for your input. It's so important to hear every point of view on this. How is your daughter doing with the hives?
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Permalink Reply by cindy Babs on
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Hi.my daughter has au for almost 18 mo now She was on methotrexate (mtx) and prednisone together. No side effects from mtx followed with blood
Tests. my husband even emailed the Guy who did the study in France. No improvement. She sees a derm at a university hospital that specializes in hair loss._I'm Sorry to hear about your son. Believe me been there. We r letting nature take its course now.she was also on plaquinil in the past. There r no words to describe he psychological devastation but she is doing GREAT now. It will get better. :+)
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