mastros
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  • Amsterdam
  • Netherlands
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  • Majda
  • hellopeesha
  • YRDRV
  • Frida Rupert
  • zarrin
  • lu391
  • singh

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Latest Activity

mastros and Majda are now friends
Aug 4
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That happens. My head became full and then for the last year I do have spots here and there - you can check my pics a couple of pages back. All this while taking 20mg. "
Aug 4
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Frida! The recovery is going well. I am not really stressed actually. Staying 12 days without Xeljanz nothing major happened. Which is good!  I started a couple of days ago Xeljanz again straight to 20mg / day. "
Aug 4
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"have a good day as well and really good luck :-)"
Aug 1
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"also, a reason I thought about the teeth is that by accident I had twice my bloodwork done close to my infections and the white cells were elevated.  it's very tricky subject to examine I guess since the context really varies and it's…"
Aug 1
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"First of all, to make it clear. I have 0 medical expertise and 0 way to be able to predict how much time does it need.   I would try it for 4/5 months if I was in your case, yet I would actively seek the opinion of a doctor specialized in…"
Aug 1
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Xeljanz and Jakavi are different medication. Xeljanz needs a few months in order to know if it works.  The amount of months varies per person and per context. I would give it for sure a couple of months more to see how it goes."
Aug 1
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you very much. I was postponing for a while the wisdom teeth problems because I was afraid of stopping Xeljanz. The fact that I haven't really lost hair within 12 days being off is encouraging. I wanted to share because I can imagine…"
Aug 1
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I do cut my hair every few weeks. I like them short. I also do the same in my beard.  "
Aug 1
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Fortunately, I can afford buying from Turkey the original one. A lot of people in the thread have been on the generic one and has been doing great.  2,5 years in the medication I would say that I haven't experienced some kind of side…"
Aug 1
zarrin left a comment for mastros
"Hi Mastros, could you pleaselet me know how I can make an appointment with Dr.Harris? i am living in The Netherlands. thank you in advance and best regards, zarrin"
Jul 31
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks. Over the past couple of years I have worked on caring as little as possible about it. It's an ongoing process of course. I am taking the original one from Pfizer. I have not discussed with Dr. King about the generic versions.  "
Jul 31
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks for the support ;-) I have visited many doctors in my life both for alopecia and my thyroid - I have hashimoto.  By far, Dr. King is the best. He is compassionate, truly cares about his craft and has treated me as a person and not as…"
Jul 31
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I haven't posted in a while. It's been now 2 years and 4 months in Xeljanz out of which the last 2 years and 1 month continuously at 20 mg.  I do have spots that have grew over the last year (now they are a bit worse than in the…"
Jul 31
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This was raised a few weeks back. I am copy pasting my reply from back then "This study was designed to assess the risk of cardiovascular (CV) events and therefore in contrast to previous tofacitinib studies, patients were required to be at…"
May 31
mastros and hellopeesha are now friends
May 31

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 4:28pm on July 31, 2019, zarrin said…

Hi Mastros,

could you pleaselet me know how I can make an appointment with Dr.Harris?

i am living in The Netherlands.

thank you in advance and best regards,

zarrin

At 5:01am on February 7, 2019, zarrin said…

Dear Mastros,

My name is zarrin.

 I am living in Almere, I am suffering from AU.

At this moment I am on Xeljanz 20 mg daily and have 100% eyebrows ,eyelashes  and 90% of scalp hair (thin). I realized you are living in Amsterdam.

i would like to talk you regarding dermatologist in NL ,insurance coverage and buying Xeljanz from beacon pharmaceutical.

Best regards,

shahla

 
 
 

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