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lea's video was featured

NFL QB Joshua Dobbs' Alopecia Awareness Mission

Jacksonville Jaguars quarterback Joshua Dobbs has alopecia areata, a hair loss condition that he is raising awareness about. He sits down with Dr. Freda Lewi...
Jun 5
lea posted a video

NFL QB Joshua Dobbs' Alopecia Awareness Mission

Jacksonville Jaguars quarterback Joshua Dobbs has alopecia areata, a hair loss condition that he is raising awareness about. He sits down with Dr. Freda Lewi...
Jun 5
JeffreySF replied to lea's discussion Meeting end of 3/2020 or in 4/2020 in the group Seattle Area Alopecians
"Take good care!"
May 31
lea liked Cheryl, Co-founder's video
May 31
lea replied to Lilac's discussion Seeking mental help but too afraid?
"Hello know is is a older post, but thought I'd list few resources for anyone in need: NAMI National Associal Mental Illiness is good org, that chapter locally and even support groups. They may have good referrals. Also know if ever feel really…"
May 31
lea replied to suzanne's discussion Exercise and wigs and tape
"I'd say wear shortest possible wig / less hair to worry about. Also I used headbands, have used tape and one time with sweat came off and my friend just look at me with his mouth open. :/ but I just tried to laugh it off. Now I often wear…"
May 31
lea replied to Jessica's discussion What make-up do you use?
"PS Tattoo nearing eyes makes me super nervous too, have seen some that look great. But I'm too worried. "
May 31
lea replied to Jessica's discussion What make-up do you use?
"I like liquid liner and have friend who's shared using tanning lotion helps make eyes color stay. She had tattooed but he colors faded and said the self tanner gives a nice dark brown color, that stays. She paints it on the brows."
May 31
lea replied to Alo-mom's discussion Eyebrows
"Pictures be great too."
May 31
lea replied to Alo-mom's discussion Eyebrows
"Thanks, how is going with this product? have you used in warmer humid weather?"
May 31
lea replied to lea's discussion Meeting end of 3/2020 or in 4/2020 in the group Seattle Area Alopecians
"Here's the flyer. May i please ask if hear of other meets please share too. Thanks"
May 31
lea replied to lea's discussion Meeting end of 3/2020 or in 4/2020 in the group Seattle Area Alopecians
"Hi Jeffrey and Bon, Thanks, am sorry dealy. With all going on I have to save my limited data for work and can't do video group meet. However, maybe you could set up. Also NAAF is going to have their annual conference online end June instead of…"
May 31
Bon replied to lea's discussion Meeting end of 3/2020 or in 4/2020 in the group Seattle Area Alopecians
"Hi Lea, how are you?  In May of 2020 might be possible most likely via Zoom or other online medium.   I am still very interested and curious about my type of Alopecia....any type of Alopecia.  I want to be supported and supportive.…"
May 1
Bon liked lea's discussion Meeting end of 3/2020 or in 4/2020
May 1
lea replied to Dollhead's discussion So, I Finally Did It And Came Out About My Alopecia
"Bravo dollhead, glad you faced your fear and all is okay!! I know the feeling and also haven't gone completely without in public more than few minutes after NAAF conference. Wish you a great rest of your week and high five. Take good care and…"
Apr 16
lea liked Dollhead's discussion So, I Finally Did It And Came Out About My Alopecia
Apr 16

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Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (8 comments)

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At 6:14pm on February 25, 2020, Bon said…

Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls?  I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'.  Be well, Bon

At 9:25am on February 20, 2020, Bon said…

Good Morning Lea, this is Bon still not sure how this site works.  I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it.  I REALLY want to connect with the Seattle group but am not getting a response from the contact.  Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to  Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line.  They are Jon Renau....around $300 with tax?  If you have any suggestions re: Thank you for friending me,  Bon 

At 9:01pm on August 10, 2017, Madbrown said…
I mean I am fine with going to the Seattle one to start.
At 8:27pm on August 10, 2017, Madbrown said…
I am fine with trying to setup something down here if there are people in the area that would want to. I can definitely do Seattle area also to start. Where would the Seattle one be at?
At 3:20pm on July 25, 2017, ayshia2000 said…

Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event  while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month  for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you  for your help.

At 2:13am on June 11, 2014, LeslieAnn Butler said…

There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson
503.804.5315.  I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.

And thanks for wanting to read my book! Let me know how you like it.

 

At 1:02pm on June 5, 2014, LeslieAnn Butler said…

Hey thanks, let me know how you like the book. And yes, there is a meetup group in Portland. Do you go to one in Seatte?

At 5:31pm on December 12, 2012, LeslieAnn Butler said…

Hello and welcome, Lea!
How are you today?
Leslie Ann

 
 
 

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