• Female
  • Girard, PA
  • United States

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jamie's Discussions

Gluten good...gluten bad?

Started this discussion. Last reply by jamie Apr 18, 2012. 6 Replies

i've never heard of a correlation between alopecia and celiac's disease. but, i know my greatgrandmother on my father's side had alopecia universalis and my father had celiac's when he was young. so…Continue

Tags: alopecia, celaic

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Relationship Status:
In a Relationship
About Me:
my parents said that i got my first bald spot when i was five. and soon after, i had two more. they stayed there for a few months, then filled in. it was years later, when i was about twelve that it started again. but this time all over my body, it was on my arms and face as well. spots were disappearing overnight. and its gotten progressively worse since then. i began to lose sections of my eyebrows and my eyelashes, more of my hair fell out and there was less hair on my arms and legs. now im eighteen. ive gotten to the point where i have no eyelashes, except for four lashes on my right eye. i have no eyebrows, i made the decision to wax them off, because there was barely anything left to them. i just draw them on every day, instead of filling them in. i have no hair on my arms, and i barely ever have to shave my legs. as of now, i have five large bald spots on my head. and its getting to the point where i dont know what the next step is. soon i have to make the decision whether to try to hide it more effectively with my natural hair or whether to shave my head and go for a wig.all while keeping in mind that i have hair almost to my butt and its definitely one of the main aspects about myself.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Jamie's Blog

Days later

Posted on April 12, 2012 at 9:30pm 3 Comments

days after being called a liar, i understand why it hurt me so bad. i wish i could lie about this situation i'm in. i wish the simple truth was that i wanted to draw attention to myself, and that i could stop at any time. but the truth is still there - i can't grow hair. i don't shave my arms and eyebrows off like i was accused of doing. i wish that i did, because i could stop and they would grow back. but they don't, i have alopecia. this is my fate. unlike theirs, mine doesn't involve hair…


Eight AM

Posted on April 10, 2012 at 8:00am 0 Comments

i get up for school. late. awesome. instead of trying anything fancy, i throw on yogas and a hoodie. put on my makeup real fast. and give myself one braid down my back. eat. out the door. great.

in the car i realize that you can see two bald spots with my hair braided. i can't do anything about it either. i just take out my hair and put it in a bun. again. like i have the past month and a half now. i'm really upset this morning, i've got a million things to do and all i can think…


April ninth: not eventful.

Posted on April 9, 2012 at 8:00pm 2 Comments

i play tennis, forgot to mention. its the only time when i don't feel like a slob for wearing my hair up and having a thick headband in. no school today, so i didn't have to paint my face on at six am. instead i got to wait until before my tennis match at three. but that's barely anything, i still have eight million more things to do tonight. and when i get back to school tomorrow there's still nine million more things waiting. yippee... i used to dress up, business casual i'd even say. high…


My life as a high school senior

Posted on April 8, 2012 at 9:30pm 4 Comments

has become extremely difficult. i'm stressed out over everything. i have a lot of pull in my school. as the national honor society president, yearbook editor, and lead & seed (anti drug and alcohol group) president, i always have a lot on my mind. and you know what, dealing with stress and the pressure of being perfect is what i'm best at. i can pull off every single deadline and meet every single requirement for any task. plus more. the only thing that can't handle it... is my hair.…


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At 6:16pm on June 4, 2013, Jackie said…

I miss you!!

At 7:31pm on April 22, 2012, LeslieAnn Butler said…

Hello and welcome, Jamie!
How are things? Is there a way I can help?
Leslie Ann

At 12:40am on April 10, 2012, Tallgirl said…

Go to the second link below and click on Spring hats...some good ones are on there.

At 12:39am on April 10, 2012, Tallgirl said…

Women's Dress Hats - Village Hat Shop

It is with this segment of the business, women's dress hats - millinery, that I found
my long held notions about headwear challenged and expanded. I had always ...

Women's Dress Hats: Hatsinthebelfry.com

Handcrafted using the finest materials, make a bold statement and add the
finishing touches to your refined attire with one of our women's dress hats.

At 10:13pm on April 9, 2012, Jackie said…

*claps* I found some stuff. okie, this is from a blog post from here: http://www.alopeciaworld.com/profiles/blogs/gluten-free-diet-results
here's another post thing from another website: http://katrenawells.suite101.com/can-a-gluten-free-diet-reverse-hair-loss-a185085
And this is the 'dos and dont' about the diet. It tells you about the foods and what not: http://www.mayoclinic.com/health/gluten-free-diet/my01140
I know, I know, I'm a doll. lol :B I hope this helps hun ^^ -Jackie xxx

At 9:55pm on April 9, 2012, Jackie said…

omg, thanks hun for that link c: I only have little bits of eyebrow hair. My mom wants me to do the tattoo thing but that not until next year so I need something for now. So thanks c: And to answer your question about the bald spots, I have no hair at all. It's all gone and hasn't grown back in the longest. :c I lost all my hair in the fifth grade. I mean, I get a little hair growth towards the front of my head but thats it. Oh well. Messageeee meeeeee when you get this, if I'm still online okie? -Jackie xxx

At 12:12am on April 9, 2012, BTB (John) said…

Human hair I buy the hair in Asia at street markets and it is so cheap going to Thailand on the 27th and picking up a load. Then we send it to China and they make it up to a custom mould.

At 11:17pm on April 8, 2012, BTB (John) said…
Hi Pat gets her wigs made in china and has always been happy with them.
At 10:04pm on April 8, 2012, Jackie said…

Hi Jamie! I'm Jackie! I also have no hair on my arms or legs since forever. But I do have a little bit of eyelashes on my botton right eyelid. It's weird right? I also have a bit of eyebrow but hardly at all. What do you use to fill it in? Anyway, if you want to talk or something, I'm here okie? c:

At 1:59pm on April 8, 2012, BTB (John) said…
Welcome glad to share anytime we hate alopecia and what it does to us but we have been able to suvive it's cruel condition.




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