hagster
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  • Wichita, KS
  • United States
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hagster's Discussions

Regrowing hair in 'odd' places

Started Oct 25, 2017 0 Replies

After 16 plus years of remission from AA, I was slammed with AU last fall. Lost every single hair on my body, my eyelashes, in my nose & in my ears; learned to deal.Now, all of a sudden, I have…Continue

Tags: regrowth, hair, white

7-24 Ninja Warrior show has Alopecian

Started this discussion. Last reply by JessicaStinkle Oct 7, 2017. 2 Replies

American Ninja Warrior is going to have a guy named Kevin in the competetion tonight who just happens to have Alopecia. The promos say he has no hair and that he is a role model for kids just like…Continue

Can we talk about keeping a wig on a bald head, and other things?

Started this discussion. Last reply by Stacie Apr 30, 2017. 1 Reply

I noticed that a lot of the discussions were started about 3 years ago, and surely there is new products and information available.I wore wigs back in the 69s & 70s, then started again about 4…Continue

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Latest Activity

hagster replied to Djp's discussion Use of Cyclosporine
"No experience, but ... Derm has offered me lots of immunosuppressent drugs.  I have 3 different autoimmune diseases, so it doesn't make sense to me to suppress my system further and risk the side effects.  I have always declined.…"
yesterday
hagster replied to Sarah's discussion eyebrows & sex
"Not to be snide, but if you read this thread, you'd have seen microblading mentioned in the first reply and many times onwards.  So, your idea of microblading isn't exactly a new or novel one for the OP."
Friday
RossG left a comment for hagster
"Not sure if i have AU, I just know the loss started Oct 16 and has continued to now where i have less and less hair on my entire body. Just slowly all going away. No indication it will stop.... That sound like AU to you? My doctor said very little…"
Feb 4
hagster replied to Ashlyn Mae's discussion Alopecia confusion regarding type of hair loss
"Hypothyroidism causes brow loss and scalp hair thinning."
Feb 4
hagster and RossG are now friends
Feb 4
hagster replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"Only really neg since the first of the year.  Something might of happened in their life to affect their mood & attitude.   You also have to remember you are just reading words.  You're not hearing inflection."
Feb 2
hagster replied to Sarah's discussion eyebrows & sex
"I've been checking, and most places won't / don't want to do microblading over perm make-up. Microblading is temp also as it only lasts a year or so.  By temp tatts, I assume you mean perm make-up - which isn't."
Jan 31
hagster replied to kaleigh14's discussion New and Frustrated
"I hope you find it uplifting that most replies / repliers have shared essentially the same things.  We all have been where you are, and are now in a different place and mindset.  Hopefully, you will accept and be able to cope soon. "
Jan 5
hagster replied to cyclek's discussion My LPP Journey
"Sorry, not a clue as to what LPP is and google didn't help.  ???"
Jan 3
hagster replied to kaleigh14's discussion New and Frustrated
"Its quite common for men to be bald, or shave what hair is left;  I, too, find it attractive, even sexy.  Women, on the other hand, are not supposed to be bald but rather have a thick mop of long hair.  Look at TV ads, magazines, and…"
Jan 1
hagster replied to Dreambird's discussion My Yarn Wig. Seeking Feedback for Creating These for Alopecians!
"Kind of reminds me of Cyndi Lauper with dreadlocks.  I so love her pink hair."
Dec 28, 2017
hagster replied to anukhan's discussion Alopecia
"Curable?  no.  "
Dec 28, 2017
hagster replied to Tuesday's discussion wearing wigs or scarves with visors or hats at work
"A little double stick tape does wonders.  "
Dec 28, 2017
hagster replied to Tuesday's discussion wearing wigs or scarves with visors or hats at work
"Maybe you can wear a scarf that is the same color as the caps or even matches the uniform.  When you talk to the boss about your AA, ask if the above might be a viable solution for your dilemna."
Dec 27, 2017
hagster replied to Dreambird's discussion My Yarn Wig. Seeking Feedback for Creating These for Alopecians!
"I applaud you for creating a yarn wig and wanting to use the idea to help others.  Its cute, but I need bangs (forehead covering) and I'm not sure what the thing is that goes under your chin.  Reminds me of a Muslim headcovering.…"
Dec 27, 2017
hagster replied to kaleigh14's discussion New and Frustrated
"You have taken the first step by admitting to yourself that you have AA and somewhat accepting it.  Being scared that your boyfriend or friends will find out is a common reaction.  But, I (and many more on here) will tell you that if…"
Dec 27, 2017

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 5:45pm on February 4, 2018, RossG said…

Not sure if i have AU, I just know the loss started Oct 16 and has continued to now where i have less and less hair on my entire body. Just slowly all going away. No indication it will stop....

That sound like AU to you? My doctor said very little the one time I spoke w him about it--i believe bc little is known and he is not the type to offer guesswotk or theory.

 But holy shit, i didnt know even xeljanz didnt work for AU, and i hadnt thought about the potential physical side effects you mentioned. Yay. Looks like im gonna be reading all the mantras i collected when this first got bad again! Lol

thanks for your time. 

At 8:23pm on May 26, 2017, Jan said…
I too grew up in the 50's and 60's and I hardly ever read of anyone getting Alopecia when they are middle aged. While I found my first spot last August, it got bigger. Only I could see it unless I pulled my hair back. More spots came and hair grew back. Again I am losing hair, but no one can see but me and my hair stylist. I commend all the people that have self acceptance but I wonder if the older you are at the time of the fist occurrence the more self conscious you are.
 
 
 

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