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TC's Discussions

Low Ferritin in AA/AU patients

Started this discussion. Last reply by youarebeautiful Nov 23, 2018. 2 Replies

Hey All, I met a pretty sharp Dr. a few weeks ago. He mentioned that it's very common for AA/AU patients to have low ferritin (iron stores).In simple terms, Ferritin is a protein in our cells where…Continue

Hi, my story. Need advice.

Started this discussion. Last reply by Mohit Nov 1, 2018. 21 Replies

Hi All, I've been reading this forum since last Nov 2017, and almost feel like I know some of you here so thought I would join the community and introduce myself.I've always been an athletic guy, in…Continue

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Latest Activity

TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi All,  Came across an article posted just yesterday from a Yale study on the success of combination therapy of Tofacitinib & oral minoxidil. Sounds…"
Sep 19
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I came across this dermatology article on Tofa. https://www.aad.org/dw/dw-insights-and-inquiries/2019-archive/april/tofacitinib-a-jak-inhibitor-of-all-trades  Found this interesting; According to Ciechanowicz et al, tofacitinib is a reversible,…"
Sep 3
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Either way you needed to address the infected teeth, and at least you eliminated a potential issue down the road, so all good. I've been tracking my bloodwork (every 2 months) for the last 3 years on a spreadsheet. Something interesting I…"
Aug 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi,  Sorry you're going through this. We all know how difficult and traumatizing it can feel. You're not alone here. At least take comfort in knowing that you do respond fully to Jakavi.   2 months on Xeljanz is too early to…"
Aug 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Mastros,  Good to hear from you. Sorry you're going through a rough patch. Agree with your thoughts on Dr. King. He's a great doc and a wonderful caring person. Interesting thoughts on the wisdom teeth infection. There's been…"
Jul 31
TC updated their profile
Jul 30
TC and LJBMD are now friends
Jul 29
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sorry the gut doesn't have anything to do with it in this case. I don't mean to lock horns with you but this while "Leaky Gut" BS is just fabricated internet fantasy to sell books and supplements. It doesn't exist as in…"
Jul 29
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Actually, your gut had little to do with it. The underlying issue antidepressants cause is adrenal failure and thyroid disfunction. I don't know if you ever had your DHEA tested while in withdrawl but it was probably that of a 90 year old man.…"
Jul 29
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"If you were diagnosed without a biopsy, the dermatologist just guessed it was AA because that's all they can go without one. The reality is that most antidepressants including Paxil can cause massive hair loss, including head, eyebrows and body…"
Jul 29
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Cocopuffz,  What makes you believe that you actually have/had AA/AU? Did you ever have a biopsy to confirm this? I don't want to steal your thunder, but have you ever considered that your hairloss & other issues were actually caused by…"
Jul 29
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Congratulations Sadele :) So happy to read success stories like this. You have beautiful children. God bless.  "
Jul 3
TC replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Congrats Steve!! You look great :) Must feel amazing to be back to yourself. Enjoy every minute of it.   Nicole you're such an angel helping everybody. Thanks for being so wonderful. "
Jun 26
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kate,  Welcome to the forum and your new family. If your AU was very rapid and recent, it sounds like your immune system may still be in aggressive mode. It's promising that you're getting some regrowth from injections. How long…"
Jun 19
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sounds like you may have a respiratory tract infection which is pretty common with Xeljanz. The body produces eosinophils, which in this case cause inflammation in the respiratory tract, to isolate and deal with the infection. The narrowing of…"
Jun 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida,  Awww thanks. I feel the same way about you, and your contributions here, so we're sort of stuck with each other :) I think I've mentioned this before, but we really need a group hug button!"
Jun 6

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