Return_life
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Return_life's Discussions

Canadian doctor prescribing xeljanz???

Started this discussion. Last reply by sammy Jan 9, 2016. 1 Reply

Hi,Can anyone let me know if they are aware of a doctor in Canada who prescribes xeljanz? Needs to be Canadian so the pharmacy sell it to me.Pm me or write it on the thread, it could helpany…Continue

Tags: doctor, Canada, Xeljanz

Canadian doctor prescribing xeljanz?'

Started Jan 8, 2016 0 Replies

Hi, am sure most of you are aware of the news drugs that could help treating alopecia. All the xeljanz friendly doctors I know are located in the US. Because I am in Canada, I need my medications…Continue

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Latest Activity

Return_life replied to Yas's discussion Will my kid get it? Prenatal genetic testing/counselling
"It's an autoimmune disease. Yes there is a genetic component. Am a bit older than u and I live in montreal... BIG majority of alopecians do not give this to their child, a very big majority... I just spoke to an alopecian 2 days ago, the guy…"
yesterday
Return_life and Chris Bernard are now friends
Wednesday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"For 2 years.... what dosage did u take? Did your Dr tried to tweak the regimen a little bit? Sometimes stopping and giving an induction dose later with a different dosage can trigger something. "
Tuesday
Return_life replied to Fenster's discussion My teenage boy, on Xeljanz for a few years and it's suddently stopped working
"True... by a very small percentage... but the study had 12 patients...  We are lucky to have options now... dam I remember what it was 10 years ago"
Tuesday
Return_life replied to Fenster's discussion My teenage boy, on Xeljanz for a few years and it's suddently stopped working
"Who said ruxo works better? I keep hearing this here. They both work similar... the story above is common with autoimmune disease. Don't forget we build tolerance to drugs ... now for example they could switch to another biologic to see. I…"
Tuesday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Merci du suivi 3 pillules de 5 mg... et meme dans bcp de cas pour une bonne repousse certain on besoin de plus..."
Feb 15
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Exactly.... don't know why people saw sarcasm in my previous messages. In the medical field we do call it naive patients.  Lol top doctors around the world are trying to reach me to learn about me experience. I did first attempt…"
Feb 10
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Same here... it's common with autoimmune disease that the second or third go around is more successful.  In the industry we call this as a naive patient. "
Feb 10
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Awesome progress... big hug"
Feb 6
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ok so let me ask u a question. Where all this 'hate' for xeljanz and other immunosuppressor is coming from? I worked in the pharmaceutical field and immunosuppresor have been gold standard for autoimmune diseases SPECIALLY in Europe and…"
Jan 18
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Being AU is not living a life for many people. It's a nightmare for many. Psoriasis patient risks their life with same medication for red patches on skin. Professional athletes takes anabolic and pain killer drugs for performance. And all The…"
Jan 18
Shad and Return_life are now friends
Jan 14
Return_life replied to Flwdbaseball's discussion Confrontation
"Brain surgery? Car accident?  Wow... people can be harsh man. People in general don't realize the impact of their words."
Jan 14
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have just sent you a friend request. Am in montreal now"
Jan 14
Return_life and Delia1685 are now friends
Jan 10
Return_life replied to kaleigh14's discussion New and Frustrated
"Hahaha your post made me laugh.  Good attitude"
Dec 28, 2017

Profile Information

Relationship Status:
Single
About Me:
30 years old male checking in...
Great career, good life. I am not depress by this at all but it was tough as hell in the beginning. Just curious to meet other people like me!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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At 3:15am on October 17, 2017, Frida Rupert said…

Hi return to life,

thanks for answering my questions and befriending me. Tough times with this stupid condition. As I said in the comments- I'm well into month 3 (week 11) on xeljanz and the results are so far a bit depressing. I think i am a responder as body hair and eye lashes are beginning to come back but my scalp is only showing   little improvement.

I am from Sydney Australia and unless you have arthritis then Xeljanz is somewhat expensive ($1300 AU  a month). I am lucky because my sister is a diplomat and worked for a while in India, so I was able to import some in (I have scripts from both an Aussie doctor and an Indian doctor) with her contacts that is still expensive but less then Australian prices ($US460 for 60 (5 mgs). I'm currently getting 3 months worth sent over and then get 8 months (of 10 mg a day) over in December as my brother in law does aid work there so is going to bring me the balance of 12 months worth (after the stuff I've used). If i go up to 20 mgs I kind-of have to wait til January when my BIL gets back but I've upped myself to 15 mgs and will subsidize my India load with some bought in Australia. I am going to plan on returning to India in 2018 to resupply and then I hope like hell the generics come to market.  

I've only been AT/AU for 6-7 months before I started and have had two very minor spotty episodes in my early twenties (am 35 now). I'm just so hopeful this will work. For me, yes some of it is vanity- when my hair is "normal" its thick and brown and I've always worn it long so this truely sucks but what people who don't have AU/AT don't realise is that its a pain in your ass- you get stuff in your eyes, your head gets hot/cold, you get massive anxiety...so for me finding a solution is my number one aim (after being a good mummy- which is hard to do when you feel so crap). Anyhow thanks so much for your advice.

I'm hoping one the patent expires we get flooded with cheap generics and then we can all go to a optimal dosage based on our bodies needs as opposed to be dictated by our bank balance..

Again Thanks for responding. Its hard at the beginning not knowing if its gonna work or not (I tried Methotrexate, Cyclosporine and prednisone and topical steroids prior to started on xeljanz - they didn't work hence my shift to xeljanz, luckily my bloods are continuing to be perfect but the roller coaster of ups and downs is getting hard to ride....).

Frida (Deb)

At 4:07pm on June 16, 2017, Sara said…
Shomare telephon man dar telegram
09107427390
At 4:05pm on June 16, 2017, Sara said…
Salam
Barname telgram darid?
Baray sohbat?
At 9:39pm on February 12, 2017, Stars-r-Aligned said…
Hey, I saw your message...however....I have androgenetic alopecia...the kind that's genetic pattern baldness...I don't think anything will help my hair.
At 12:21am on February 10, 2017, ejeffw said…

Hi, nice to meet you. 

At 4:48pm on December 1, 2016, Finley said…

Hi, nice to meet you!

 
 
 

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