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Patchylatchy's Discussions

For those of you with alopecia universalis like myself at what age did you develop it?

Started this discussion. Last reply by Hannah Jun 21, 2018. 30 Replies

Just wondering at what age did you develop alopecia universalis? And if it was in areata stage at what age did I first see your first spot and by what age did it become universalis?Thank you.Continue

Is alopecia TH1 or TH2 dominant?

Started this discussion. Last reply by Patchylatchy May 11, 2018. 6 Replies

Hi everyone I continue to learn alot from this website and thank you all for the updates. I have a question I hope someone can help me. I been reading about autoimmune diseases and found out that…Continue

Help us buy xeljanz!

Started Jan 2, 2017 0 Replies

Hi All,I created this thread to help myself and others who would like to obtain xeljanz from Turkey. I know details are mentioned in the other popular post by adml but it became quite messy with many…Continue

Why do we have nail pitting?

Started this discussion. Last reply by Patchylatchy Dec 27, 2016. 8 Replies

Why do we experience nail pitting? Is it only because of the inflammation and seperation of keratin of nail plate or is it because of inflammation and our immune system attacks nail?Also has your…Continue

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Latest Activity

Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you so much!!!!"
Jul 2
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Can you please let us know which food you avoid? Thanks"
Jun 30
Youknow and Patchylatchy are now friends
Jun 4
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Three years ago was when my alopecia started and eevery year I been hoping xeljanz will become the standard drug for it. Why is it taking so long? When should we expect it to be the drug naturally and insurance accepted drug? Thanks"
May 11

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 12:35am on August 17, 2017, Niece said…

sorry PAtchylatchy just saw this message..very late! You asked about my AU and if I had AA first. No, I did not. First noticed hairline thinning and within about 3-4 months lost all my hair. Its been over 3 years now..getting easier but to be honest I still struggle with alopecia. Have my hopes set on a treatment/cure in the years ahead. How are you doing?

At 3:45pm on December 21, 2016, D Costa said…
Postpartem spots got very progressive. I started using Thymuskin and feel it really helped slow the process. I'm currently about 50% hair loss right now (same going on five years). Hope this helps.
At 5:49pm on December 19, 2016, D Costa said…
Hi my profile probably needs to be updated. I gave birth back in 2011. I was 19 when I noticed my first spot though. Congratulations on your pregnancy!


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