Lara79
  • Birmingham
  • United Kingdom
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Latest Activity

Lara79 replied to KarenD's discussion Cellcept in the group Frontal Fibrosing Alopecia
"I took azathioprine (a different immunosuppressant) for 6 months and Still had flares and progressive loss so stopped. Now on finasteride and acitretin and put Elidel on at night and rogaine on in the morning. My scalp feels better than it has in a…"
Feb 4
Lara79 replied to akb's discussion Plaquenil? in the group Frontal Fibrosing Alopecia
"Hi I had 12 rounds of excimer and it did nothing, AIP for a whole year - nothing but I did lose loads of weight. Unfortunately plaquenil gave me a rash and blurred vision so I only took it for a month. Currently I’m in Eliseo cream and…"
Jan 21
BBQueen replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Hi, my blood type is A negative. Seems like others have meantioned their Ffa started in 2011. I believe that is when mine started. Just a thought...."
Jan 9, 2017
Isabel replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Hi Star! My blood type, and my mother's, is A positive. Love Isabel"
Jan 6, 2017
star replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Hi all... sorry to keep banging on about this but i'd be really interested what blood type you all are? In brief i've not had the easiest of lives...but my FFA came about when i was relatively stress free, compared to my past!! Which leads…"
Jan 6, 2017
Embo replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Doctor's name?"
Jan 6, 2017
star replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"I'm b- too...i still wonder if this might be a contributing factor"
Jan 6, 2017
Embo replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"I would also like to know the NYC Doctor's name at Columbia Presbyterian. Please share."
Jan 6, 2017
Embo replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"I traveled all the way from New York to donate my blood sample with Dr. T. So happy to be part of the research and look forward to learning the results!"
Jan 6, 2017
Isabel liked Lara79's discussion Possible causes?
Dec 11, 2016
Isabel replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Hi! In my case, and my mother's, I am positive that stress was the triggering cause for the disease. The hormonal factor may have come later, affected by FFA itself, as my periods were always regular like a swiss watch (28 days apart without…"
Dec 11, 2016
Airam-FFA replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Hi Kathy Let us know how it goes on Tuesday. xOx"
Dec 11, 2016
Airam-FFA replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"I hope all the researchers across the world share their findings and help us to get rid of this crappy condition. x"
Dec 11, 2016
Kathy in Denver replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Glad you guys are keeping the dialog going. I am not writing so much but sure value being part of discussion. Working really hard on stress but hard as the hair loss is the root of my stress right now. Doing acupuncture, herbs, etc. Getting second…"
Dec 10, 2016
Airam-FFA replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"I went for Acupuncture and Chinese Herbs with the aim of trying to de-stress and balance my Ying and Yang. I saw my GP again and asked to be referred for a second opinion - again there will be more waiting - stressy! Had my GP practice known about…"
Dec 10, 2016
Airam-FFA replied to Lara79's discussion Possible causes? in the group Frontal Fibrosing Alopecia
"Hormones and stress - I hope the research will soon find the causes and help people to hang onto their hair.x"
Dec 10, 2016

Profile Information

Relationship Status:
It's Complicated
About Me:
FFA diagnosed September 2016
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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