LK
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  • Saint Louis, MO
  • United States
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Hokey pokey hair

Started this discussion. Last reply by femmemuscle Jul 1, 2015. 2 Replies

I have enjoyed this website for a year now. I have AA and maybe male pattern baldness. I'm a 50 year old women and have had this for 16 years. I have no eyebrows and few eyelashes. No eyelashes on…Continue

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Latest Activity

LK replied to Robert Davis's discussion Hearing loss and AA (or AAP)
"I have always had ear problems, ear infections, tinnitus, weird ear drainage. Wow, I never would have connected ear problems with this dreaded disease. I've always had allergies and my doctor connected my ear problems with those but never my…"
Jul 7, 2016
LK replied to Jenny's discussion Hair loss affecting a marriage -- am I the only one?
"Dominique, I totally agree with you. Men are visual creatures. I am 50. We have been married almost 26 years and have been dating 31. I acquired AA 17 years ago. Our relationship waxes and wanes just like my hokey pokey hair. Through it all, I think…"
Jul 21, 2015
LK replied to Jenny's discussion Hair loss affecting a marriage -- am I the only one?
"Martina, My advice to you is this.. It's from a song. "If you want to be somebody else, if you're tired of fighting battles with yourself, if you want to be somebody else, change your mind." Also, listen to Alanna, it sounds like…"
Jul 21, 2015
femmemuscle replied to LK's discussion Hokey pokey hair
"Love the title! Yep.. I can really relate. When i came home from a job assignment, my boyfriend "checked" my hair to see if it was still bald on the temple and crown.  They were slightly bald, but growing in slowly.  He was…"
Jul 1, 2015
MichaelDedario replied to LK's discussion Hokey pokey hair
"Hey how its going? Thanks for sharing  I'm in my thirties and i Have had AA for over ten years. We maybe in similar situation. I have excessive hair shedding but it doesn't get bad enough for a a wig but my hair sheds way more than…"
Jul 1, 2015
LK posted a discussion

Hokey pokey hair

I have enjoyed this website for a year now. I have AA and maybe male pattern baldness. I'm a 50 year old women and have had this for 16 years. I have no eyebrows and few eyelashes. No eyelashes on the bottom. I went to the dermatologist. when I was first diagnosed, he gave me steroids and topical solutions. Nothing worked. I resolved to only use Nioxin shampoo, Rogaine and take biotin. Brown eye pencilhas worked wonders for brows and lashes. I also have bangs to hide the bare spots when the so…See More
Jun 29, 2015
LK replied to Dawn's discussion A treatment that worked for me
"I feel the same way. "I admit. I am vain. I wish I wasn't but I want my hair. I try to convince, myself that it's just hair......... I am not ready to accept it either. Thanks for sharing about the Plaquenil. I may have to make an…"
May 28, 2015
janeybugs left a comment for LK
"Hi Linda.   I don't know if I told you I had a health scare and had to get medical tests done and my mom is getting worse in the nursing home.  It is pretty depressing. Yes, I would still like to meet for coffee. As long as it is…"
Jan 4, 2015
LK left a comment for janeybugs
"Hi Janet, Do you want to get together at Starbucks sometime?"
Jan 4, 2015
LK replied to Dawn's discussion A treatment that worked for me
"I'm a 49 year old and Was diagnosed by a a dermatologist 15 years ago. Recently when I lost some eyelashes, I tried a treatment that was suggested by my obgyn when I was having miscarriages and I tested positive for a antinuclear antibody. He…"
Nov 4, 2014
LK replied to Jenny's discussion Hair loss affecting a marriage -- am I the only one?
"Grace, You were truly given the perfect mame. You are handling this disease with grace and loveliness. We should all try to be more like you. LK"
Nov 2, 2014
janeybugs left a comment for LK
"No,  you did not scare me away. lol    I have been  busy with my mom whom I just put in nursing home and I had to go out of town.   Did you do the Bald Girls Do Lunch event?  Could they have named it…"
Oct 9, 2014
LK left a comment for janeybugs
"Where did you go? Did I scare you away? Please reply soon. I can give you my email address."
Oct 8, 2014
LK replied to Tuesday's discussion Does anyone without brows NOT have eyebrow tattoos?
"I've had. AA for 15 years. I draw my eyebrows on everyday. My sisters think that I should get them tattooed on. I really don't want to. I have seen eyebrows that have changed color to blue, purple and green on old ladies that just…"
Oct 8, 2014
LK left a comment for janeybugs
"Hi Janet, Thank you for accepting my friend request. My real name is Linda. I just saw so many Linda's on the site. I just wanted to be different."
Sep 29, 2014
janeybugs and LK are now friends
Sep 24, 2014

Profile Information

Relationship Status:
Married
About Me:
Almost 50 and dreading it
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 8:31pm on January 4, 2015, janeybugs said…

Hi Linda.   I don't know if I told you I had a health scare and had to get medical tests done and my mom is getting worse in the nursing home.  It is pretty depressing. Yes, I would still like to meet for coffee. As long as it is not too cold and wet out I will meet you .I hate the cold !   Funny,  I need a haircut and dye job so that is more noticeable than the hairloss.  Let me know what days do work for you and what time.  Give me a few choices.  My aunt is coming to visit sometime soon so I will have to work around that. Not sure when she will be here but could be end of this week.  ok, glad to hear from you and will see you soon I hope. 

At 11:28am on October 9, 2014, janeybugs said…

No,  you did not scare me away. lol    I have been  busy with my mom whom I just put in nursing home and I had to go out of town.   Did you do the Bald Girls Do Lunch event?  Could they have named it anything else??   We should meet for coffee one day.  I think you have a starbucks not too far from you and I am in that area to visit my mom.  She is in Bethesda on Big Bend.   Let me know what days work for you and what time.  I would meet anytime after 9 am.  You have a wig shop over there also on Tesson Ferry we could go and peruse the hair. 

At 8:44pm on September 18, 2014, Spenser said…

Bald Girls Do Lunch is in MO next week. It's the first time Thea is getting us together in Missouri. I have relatives there so I'll be trying to get to at least two events. Bald Girls RSVP.

I got this invite: http://www.bitly.com/MissouriEvents

At 9:07am on September 12, 2014, janeybugs said…

Hi LK.   I also live in south county so we may be neighbors.  I still have enough hair to not have to wear a wig but the wig wearing is in my future.  I got one wig that I liked the style of but has that shiny look to it.  I wore it to a wedding once and that was the only time.  I got it on Manchester road and it was about 500 bucks but I think it was not worth that much.  We should try to stay in contact and meet for lunch or something.  I live off of Christopher road.  We could do wig shopping together for that matter.  I am going to use Rogaine starting in Oct.   I have a wedding to go to at the end of September and did not want to risk the Rogaine dread shed so have put it off.   Hoping it will at least let me keep this bit of hair I have.   Ok,  write back and we may be able to help each other out.  At least compare notes.  My real name is Janet. 

At 1:32pm on August 1, 2014, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann

 
 
 

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