Kathy in Denver
  • Female
  • Denver, CO
  • United States
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Kathy in Denver's Friends

  • StephD
  • Leni
  • Minter
  • KarenD
  • Kikibob
  • denvergal
  • Wyobalance
  • DeniseC
  • Dragon&Fox
  • Lo
  • Lynn
  • Joy
  • sallylwess
  • MG1
  • Judy

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Kathy in Denver's Page

Latest Activity

Kimp commented on Kathy in Denver's group Frontal Fibrosing Sucess and Burnout Stories
"I’m not sure if this is a success story but I do have some regrowth. My hair is still falling out. And my hairline is almost nonexistent and I’m only 45. But what I’m taking is Dutasteride 0.5 mg 1 per day. Biotin 10,000 mcg 2…"
19 hours ago
Kimp joined Kathy in Denver's group
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Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
19 hours ago
Ann and Kathy in Denver are now friends
Nov 8, 2017
Kathy in Denver replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Airman, how long have you been taking the medicine? Has it stopped or eased the inflammation and hair loss?"
Apr 27, 2017
Kathy in Denver replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"I went through this decision back in December and decided to go for it. I have a great eye doctor who has-patients who have been on it for 20 years for things like lupus. He gave a very thorough explanation of how they monitor the risk and how the…"
Apr 23, 2017
Kathy in Denver replied to Mattsmate's discussion New to this. in the group Frontal Fibrosing Alopecia
"I am always sorry to see the emails form the new members of this crazy club. That was me a few months ago. In addition to the stress and fear, I desperately wanted to connect with people who were going through this and possibly could give hope. This…"
Apr 23, 2017
Agneta replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hi Dragon@Fox, I have been a member in Alopecia World for a few month, I was diagnsed with FFA last May 2016. I have a very slow progression but I´ve lost aprox 3 cm in on my temples and 1 cm on my forehead. How many month did you take…"
Mar 9, 2017
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Wow! Your eyelashes are so long. xOx"
Mar 6, 2017
SCS replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I cannot tell for sure that mine burnt out. But I do not take any prescribed medications, and stopped using the Clobetasol solution, dumped it out and mixed: tea tree, levander, rosemary oils with apple cider vinegar. Works really well if you do not…"
Mar 5, 2017
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I noticed my re-ceding hair line about 2-2.5 years ago but this was dismissed by the GP!!! Last Easter I insisted that I be referred to a specialist in hair loss. The referral took over 6 months when they then diagnosed the FFA and since Nov 2016 I…"
Mar 1, 2017
Christi Q. replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I was diagnosed 4 months ago.  I have already lost about 3/4 of an inch along my hairline.  I had super thick hair to begin with, but that doesn't matter when your forehead is slick to the scalp.  I have been put on Dutesteride…"
Mar 1, 2017
Robbie replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Thanks Airam. So far so good with eyebrows and arms. The hair on my arms is quite light but it always has been. I suppose I am hoping to hear similar stories that if caught early you can stop or at least slow the progress. Im wondering if anyone…"
Mar 1, 2017
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hi Robbie Good news. :) Have you lost any hair on eyebrows, arms etc? xOx"
Mar 1, 2017
Robbie replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I have just been diagnosed with FFA and I am feeling lucky that I can still disguise the lost hair. My Derm says its been caught early and seems to think she has it under control with Doxycycline after 3 months. Has anyone had success with halting…"
Feb 28, 2017
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hi Denise Really positive - thank you for this post. Awake with itchy scalp and looking at rapidly diminishing hairline and eyebrows. They used to be so thick and naturally dark - now patchy and sparse. On here to ask where I can find a specialist…"
Feb 27, 2017
Joy replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I am right there with you!"
Feb 26, 2017

Profile Information

Relationship Status:
Single
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Kathy in Denver's Blog

New member...

Posted on November 24, 2016 at 1:00pm 0 Comments

Hi, everyone. I just found out I have FFA. Going through all the emotion that you all know about. Looking forward to connecting with this community. Wondering if there is anyone else out there from Denver. 

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At 2:02pm on December 2, 2016, StephD said…

Hi Kathy, I've reached out to a couple of others locally who seem to be active on here, but no response yet. So far it would be just us, but it's a start, and I'd love to grow a wider circle that includes all the hair loss types. The more the support the better. I'll send you a msg with my info so we can figure out a date/time. Looking forward to meeting you!

 
 
 

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