Julie
  • Female
  • Chicago, IL
  • United States
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  • AlopeciaDestroyedMyLife
  • Susan McAdams
  • Niece
  • Jason
  • tryingtobestrong
  • Starshine
  • lynne

Julie's Discussions

Squaric acid

Started this discussion. Last reply by Jason Jan 13, 2014. 6 Replies

Hello! I am new to this site but have had alopecia areata on and off for 5 years. I kept it under control with cortisone injections for about 4 years but this past year it has been the worst it has…Continue

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Latest Activity

Julie replied to singh's discussion Calling out to all people taking xeljanz!!
"taking xeljanz for 9.5 months i took methotrexate for 8 months before starting xeljanz i have all my hair back 100% (minus one little spot on the nape of my neck) started seeing growth three and a half months in"
Nov 17, 2015
Julie replied to Susan McAdams's discussion My Stanford trial experience, part 2 (Xeljanz)
"Thank you so much for the nice words.. it's been such a long road of trying almost every treatment out there so this has been truly amazing to actually see results. I don't mind sharing the details at all... I know everyone is different…"
Nov 17, 2015
Julie replied to Susan McAdams's discussion My Stanford trial experience, part 2 (Xeljanz)
"Hello! I saw Susan's information about the Stanford trial back last February and went down to start the xeljanz process. I started Xeljanz in March and although I dropped out of the trial my Doctor was able to write my rx so I have been on 5mg…"
Nov 17, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Has anyone tried getting their second co pay card from pfizer after a full calendar year from their first one?  I'm just curious if any of us will actually be able to get a second co pay card after the full year is up?"
Oct 16, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had white fuzz around month 4 and it started coming in darker around month 5-6. I am just starting month 8 and have about 90% of my hair back at terminal! Just waiting for a few little patches in the back to fill in. I think im about a month or so…"
Oct 7, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"No worries at all! I haven't had any abnormal bloodwork after starting plaquenil... actually one of my friends who has sjqourans syndrome has been on it for over 6 years and has never had any issues and that's what made me feel like it was…"
Aug 26, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm taking two 200mg plaquenil/ day"
Aug 26, 2015
Julie replied to Xeljanzmiracle's discussion Xeljanz: Price/Insurance concerns? Call Xelsource at 1-855 493-5526
"Pam, you can go onto pfizers website and download the co-pay card. Regardless of income this will get you three months of medicine for free. You need a dr. perscription as well but do not need insurance prior authorization or anything of that…"
Aug 26, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey football fan, sorry to hear you are frustrated. This disease is probably one of the most frustrating things most of us will ever have to deal with. I was on 10mg of xeljanz for about 4.5 months with only slight vellus hair regrowth when I added…"
Aug 26, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The hardship is different from the copay card. It's a one time shot for 10k of support or about 3 motnhs or so. The copay card I believe you can apply for oncea  calendar year but the hardship you can only get once in your lifetime (?)…"
Aug 13, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I just talked to the xelsource people about the hardship and they said that the cutoff for single household income is not 90,000.00 but is actually 75,000.00. If you make above 75k then you have to write an appeal to pfizer. just a heads up for…"
Aug 11, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Lindzzj, for the copay card you don't need prior authorization from insurance. They will probably tell you that you do but they are mistaken... you really don't. Otherwise none of us wouldve been able to get it. If you have the…"
Aug 5, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I've been on it for about 6 months and I did get a little acne but not much... basically this medicine limits your body's ability to fight infection (it alters the immune system) and acne is essentially little infections so this makes…"
Aug 3, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Katie! I think I'll give that a try."
Jul 31, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Katiegirl! How long were you on 3 pills a day for? I'm thinking of upping mine but will probably only be able to do it for 2 months max. Thanks:)"
Jul 31, 2015
Julie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks so much for this information! Did you have to give your salary information? Do you know what the cutoff is for salary for being considered for the hardship?"
Jul 20, 2015

Profile Information

About Me:
I'm 28 years old and have had alopecia on and off for about 6 years now.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Julie's Blog

Stress, alopecia and endocrine system?

Posted on April 19, 2014 at 9:00pm 2 Comments

For me, all of my flaire ups of alopeica have happened directly after large stressful events in my life... and while I know it may not be the case for everyone, for me I believe that stress has a direct correlation with my alopeica.

I was doing some research on autoimmune disease and stress and found a few articles that described the relationship. One site said "recent reviews discuss the possible role of psychological stress, and of the major stress-related hormones, in the…

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At 12:37pm on May 12, 2015, Starshine said…
Wow, we are similar. I was also on methotrexate for over a year. Grew some brows back and some vellus, but once I stopped, it fell out. Now I am AU, but have only had this stupid condition for a total of three years, two of which I still had scalp hair. I wonder why we are so slow at responding. Please keep in touch and let me know how you are progressing and I will too.
At 11:53am on May 12, 2015, Starshine said…
Hi Julie, I am so glad to hear from you. I was beginning to think I was the only one who was not seeing amazing results from xeljanz. Are you AU? How are you getting it?
 
 
 

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