2 of my 4 beautiful children have Alopecia. My son developed it when he was 5 and has AU. My daughter has had it since she was 4 and has developed some regrowth in the last 8 months. I have never met another set of siblings who both have alopecia. I am interested in meeting new people and learning about their alopecia experience...
I have 4 kids and currently I only know that one of them as alopecia (AU) but I didn't develop any signs of it until I was 20, so I really have no way of knowing if my other kids will ever lose their hair or not and/or to what degree
Hi , first of all thank you for accepting my friend invite. This is actually the first time that i have talked to someone other than my wife or family about my sons Alopecia and will understand what i am talking about. My oldest has had Alopecia Totalis since he was 3, when he was diagnosed i thought that i had done something wrong with him (i don't know how else to put it) like not giving him enough vitamins or there was too much stress being put on him. I was confused and scared ( btw i was only 17 when he was born). My mom was the one that told me that i should not treat him any different than i would a son with hair. I don't know if that makes sense to you? I felt like i should not let anyone stare at my son. I felt so over protective towards him. I don't know if his first day of school was harder for him or me. ( WOW I AM LETTING OUT ALOT RIGHT NOW!!! THANK YOU FOR GIVING ME AN OUTLET) When he came home from his first day of school i had already imagined the teasing, the laughing at his expense. So i sat him down and asked him about his first day. His response was "can i go back right now". I knew right their and then that he was going to be ok. Since then he has excelled in sports mainly football He has never had any kind of treatments. Their was this one Dermatologist that suggested Cortizone shots to the scalp when he was 6 but the look that my son gave me when he heard about it was NO!!! As for it running in the family i have nobody that has had it or in my ex wifes family. As for the 10 year old he started getting bald spots when he was 8 then the spots would grow back. About 10 months ago he started to lose about 3/4 of his hair. So he made the decision to have his older brother and me cut off the remaining hair and shave it. He is having a harder time with it than his brother. Their Stepmom has also been their to give them any kind of support. We just had a newborn so i guess i will find out whether it was something in me or my x wife or maybe it was the combination of both of us. Once again thanks for the ear... if you have any more questions let me know... i copied my last comment and pasted to you also
Hello again Jessica! I've never asked the dermatologist about why both kids have the AA. I know it can be hereditary (spelling?), so I assumed it was just our families' rotten luck, even though there is no family history on either side of the family. So far, the kids are tolerating the shots, even though they have each gotten a few new spots since they first began. My daughter's oldest spot has regrown hair within four months. The first time around, we treated my daughter with Roggaine and a steriod cream. I never missed an application morning or night for seven months, and her hair grew back. She had lost about 1/4 of her scalp hair atop her head. After seeing how much hair she lost, the kids were willing to try the shots. This dermatologist has experinece treating persons with AA and she states these shots bring the hair back & send AA into remission well within one year, with remission lasting for at least a few years - if not longer. We shall see. I'm keeping a log of treatment of both kids. I'm praying they will both go into remission for a while, then I will post the log here. Congratulations on your new baby! How lucky you are to have another child. Write anytime ~ I'm here for you sister!!
Hello Jessica & Family. Both of my two kids have AA. My daughter is 11 and my son is 10. Their AA is patchy. My daughter has four small patches & my son has three. They are treating with the shots. My daughter had it once before, lost about 1/4 of her hair, right on top of her head, but it grew back within seven months of treating with Roggaine & a cream. She was eight the first time around. She was in remission for a year and a half! My son got it for the first time in June 08. The dermatoligst states that the shots send all of her patients into remission well within a year, then staying in remission for years, if not longer. Are you treating with anything? So far, my kids' AA is not noticeable, and is naturally concealed. I'm afraid that it may not be that way for much longer, as my daughter has developed a new patch very close to her side part. Well, take care! God bless you all in knowing that you are not alone in this.
Hi Adrian and Khalai! and Jessica. Welcome to the Alopecians in AZ group. It's so great that you've joined. It was so nice to meet you all at the meeting. I hope you will be able to attend the next one.
My name is Adrian and I am 9 years old. My sister Khalai is 6 years old. I just got a new brother named Chase, he is 7 weeks old. Me and my sister have Alopecia. My sister's hair is starting to grow back. Mine never has since I was 5. I like to wear hats. I liked to play the piano and draw. I like learning Braille. My birthday is March 27th. My sisters birthday is March 15th. I was born in 1999. My sister was born in 2002. Chase was born in 2008.
I see that you joined!! How great! Your kids are so adorable! I really enjoyed seeing your pictures. So what do Adrian and Khalai think about AW? You know, this is a really great and possitive place to meet others w/ Alopecia and get support. I know that there are a lot of children on here too. I'm glad you're here :) Sarah
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