Jess
  • Female
  • Stillwater, OK
  • United States
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  • pauliegirl

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Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Halfbakedwho- I hate the weird baby hairs! Dark, coarse, wiry. I have a couple of them randomly sprouting from otherwise bald spots and a few that have mixed in with the little hair that's left on my temples. I've actually been tempted to…"
Feb 15
Jess replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"Hey Pauliegirl, I was going over recent research and came across this article: Ultraviolet filters in hair-care products. It basically says that various types of sunscreens are used in a lot of leave-in hair products and color-protectant shampoos…"
Feb 12
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"I am also getting the message that the site isn't secure. Obviously, I proceeded anyway. Halfbakedwho-I know what it's like to commute for work/school, and it is exhausting. Last semester I was driving about an hour and ten minutes each…"
Feb 7
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Hmm. I thought retin-a stimulated collagen production and actually thickened the skin. But, I did read that it can also trigger rosacea and be pretty harsh, which concerns me. I, too, stopped using sunscreen in recent months. I don't like not…"
Feb 4
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Pauliegirl, thank you for posting the article. I am on the fence, but I think I'm gonna take the leap and ask my dermatologist if he'd be willing to give Isotretinoin a go. I'm hopeful that it will at least clear up my skin, and then…"
Feb 3
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi, AnnieMay. I'm the one that mentioned the basketball-like skin texture. I also have a shiny (not greasy) forehead. It bothers me about as much as the hair loss. I have recently found a moisturizer that I like quite a bit. It definitely…"
Feb 1
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Rachel, the loss hasn't been too bad. I've lost most of my sideburns and about a centimeter around the sides of my face. My side hairline also looks thin and uneven.  Additionally, I lost my "widow's peak." It really…"
Jan 23
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Oh, as a follow-up, the same studies showed that body hair involvement was correlated with more severe prognoses. Since I lost all of my eyebrows first and also have body hair involvement, I'm not sure where that leaves me."
Jan 21
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi, Rachel. I actually lost all of my eyebrows over the course of about 18 months before I noticed any hair loss on my scalp. I kept thinking it was a phase and they would grow back, but after about a year, when they were nearly gone, I decided to…"
Jan 21
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"I feel you illustr8r. I recently responded to someone's post telling them I thought the Dutasteride was working and that I hardly use Elidel anymore because I don't have inflammation. I apparently forgot to knock on wood because less than…"
Jan 20
Jess replied to Jeanne's discussion Frontal Fibrosing alopecia in the group Frontal Fibrosing Alopecia
"Hi Jeanne. My understanding is that most people don't take antibiotics permanently. My dermatologist recommended a three-month course, although I decided to skip them. I've read as much research as I can on this topic, and I believe that…"
Jan 11
MJ replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"I am convinced Tamoxifen was a key factor for me!  It sent me raging in to an early menaoause.  I haven’t been on it for at least 4 years but the FFA continues.  At 54 I think I have the estrogen levels of an 85 year old!  "
Dec 27, 2017
pauliegirl replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"No Tamoxofin or HRT for me. BC pills for a couple months only about age 20 then never again since and I am now 50. Among other changes I have made in my intake of food as well as products placed on my skin since awhile after FFA diagnosis is that I…"
Dec 21, 2017
JanS replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"The possible link to Tamoxifen and low oestrogen is interesting Jess.  I'm eagerly awaiting the results of the survey done by Guys hospital to find out whether this is the case, as I suspect it might be.  I took Tamoxifen for 4 years…"
Dec 21, 2017
pauliegirl replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"Jess, no side effects it seems tho this is a relatively low dose. (20mg, which is what the research study participants took. I will say I had and continue to have a little bit of blemish breakouts but they say that is normal as accutane clears out…"
Dec 15, 2017
Flint replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"I developed FFA after being prescribed an aromatase inhibitor. I have always blamed that for the hair loss so this research is interesting. Thanks for posting it. I am eagerly waiting to hear what the research at Guys turns up. "
Dec 15, 2017

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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