Jamie
  • 42, Female
  • Ohio
  • United States
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  • natalie n.
  • Amber
  • Ransom King
  • MiNAH
  • ashlee
  • Natalie
  • Brittney
  • Jennifer Krahn
  • Glen
  • Benjamin
  • Royalty
  • Mukti
  • JeffreySF

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Profile Information

Relationship Status:
Married
About Me:
I had alopecia when I was a child and had complete regrowth for years. Then in the last 3 years I have lost about 50-60% of my hair. I have a very hard time with this and am having a harder and harder time covering it up. I just can't make myself go look at wigs even though I know I will look better. I also don't talk to anyone about this except my husband. I am glad I came across this site, I guess I thought I was the only person in the world dealing with this.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes

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Jamie's Blog

update

Posted on June 17, 2009 at 5:33pm 4 Comments

Just wanted to let you all know....since I started taking those supplements I have noticed ALOT of new regrowth!!!! Just got more bloodwork done and it showed alot of improvement. Looks like it may be going in the right direction.
YAY!!!!

Good News Maybe

Posted on January 29, 2009 at 1:49am 6 Comments

I had mentioned before that I had Alopecia as a child and had complete regrowth until I was 30 years old. Well as a child my mom had taken me to a tricologist and she was able to help me. Since then she (the tricologist ) has passed away. Since this has all happened to me again, I have found that her son has continued her business, not exactly in the same fashion, but for the most part. Anyway, I looked him up and talked to him for a while, I sent them some bloodwork and talked to him today, he… Continue

Virtuesse Hair System

Posted on January 13, 2009 at 8:41pm 9 Comments

I was wondering if anyone has heard of or has a Virtuesse Hair System. It is almost like a prosthesis in that it does not come off, but every three months you go and get new hair. I went and was fitted for one today, just have to let them know what I decide. I still have some hair so it would have to be shaved. I'm really nervous about the decision, just don't really know what to do. What if I hate it or something.
Hope someone has some input to this. Thanks.

Comment Wall (21 comments)

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At 8:21pm on November 17, 2009, Cindy Molnar said…
Hi Jamie, Sorry I haven't responded to you. I don't get on here very much. I am a leader of a support group for Alopecia Areata in Northeast Ohio. We are having a meeting this coming Sat. Nov. 21st at 11:00 am St. Thomas Hospital in Akron, Ohio. We meet in Meeting Room A near the Cafeteria. If you have time, stop by I'd like to meet you. If you want me to send you some info on what our group just let
At 10:57pm on June 25, 2009, Amber said…
Hi Jaimie. I read your blog about the Virtuesse hair systems and am wondering what you decided to do? I am considering getting one and am leaning towards those. I am sick of regular wigs and want something that lets me swim and be more active, as i really find I restrict myself from these activities. If you got one what do you think of it? Pros/cons? Thanks :)
At 6:50am on June 18, 2009, MiNAH said…
As you have been told..one thing to remember is that yes..the prosthetic can get hot.In summer as long as your in air con it's fine.
Winter is the best time.....nothing is full proof.
So just enjoy all the wigs there are as long as they are comfortable for you to wear.
At 6:19am on June 18, 2009, MiNAH said…
I had no hair for years, then cortisone injections may have helped it grow.That's one theory! Then spars fluffy hair on top grew back check my video..My daughter searched for a solution to my emotional lack of self worth"when it came to my image"She new that I couldn't wear synthetic wigs due to allergies.....besides...they were way to big for my head.She found a prosthesis company..for vacume wigs, suction/silicone wigs.freedomwigs....although, like all of us with patchy hair...have a hard time making that decision to shave it all off.Although you must have a clean hairless scalp for the prothesis to work and suction effective.
Now, i did finally shave and it actually took years of MY FRUMPY HAIRLESS LOOK. "ONE ADVANTAGE" The fact that I have to shave my whole head every day...is annoying.
Then I just don't wear the wig.Also for me due partly to age and sensitivity I get razor burn.Yet that settles down.
I don't mind walking bald "NOT" but what's a girl to do!
My son had been telling me to shave the hair off and go sleek for years.
Wow..I waisted a whole lot of years looking Frumpy!
Yet it's all a learning experience...and not always easy to see ourself as others see us.
I don't mean the negative perceptions from people..I'm talking about the positive energy that comes our way.
Mina
At 7:41pm on June 17, 2009, JeffreySF said…
Hey Jamie,

Stopped in to say hello.
How are you?

Jeffrey
At 7:53pm on May 9, 2009, Jennifer Krahn said…
Hey Jamie,
Thanks for the post. My wig is a human hair piece. It's really comfortable. My scalp is super sensitive so I was having trouble with any wig that had the thicker lining. This lining is ultra breathable and there are 4 places where tape is adhered. Pretty comfortable. i stll have cropped hair that I wear with hats and bandanas but soon it too will be gone. This was from a lady named Giselle here in Winnipeg. She has had alopecia for 20 years and she was awesome.
At 5:12pm on April 20, 2009, Natalie said…
Thanks for the compliments on the wig! It stays on terrific! It has 4 pieces on the inside of the wig that have to be taped, but it is really easy and quite comfortable. I got it from a place called Kathleen's Creative Expressions in McHenry, Illinois, and the owner Kathy deals with cancer and alopecia patients and provides all kinds of fabulous hair alternatives. She was so nice, too! It is specifically a Rene of Paris, 14 inch, real human hair full lace wig. Let me know if you have any others questions!
-Natalie
At 8:52am on April 19, 2009, ashlee said…
its synthetic. cost me 59-74 bucks. beauty trends was the company. Im so ready to invest in something more real and nautral!! you do any research on what way to go?
At 11:13pm on April 18, 2009, ashlee said…
oh its all wig...and its time for a change. i have had this style forever! but thanks for the sweetness! its so nice to feel like you can actually talk with people about this....i feel like out in the "real world" hehe i cant stand saying the words of hairloss or even the dreaded word wig! if you know what i mean
At 8:48pm on April 10, 2009, julie said…
You are very pretty and should not be upset.. I know how you feel as I have FPB or dr says so sometimes i just dont know what to believe as my hairdresser says nothings wrong... Its hard I know.. and i have had a REALLY hard time my fault is I have shared it too much and have found out the hard way that does nothing to help the situation as I always feel people are looking at me there all the time because I've aired it so... I think you look beautiful in your pic! Have a great Easter!
 
 
 

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