Erika B
  • Female
  • Montreal
  • Canada
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Jacqui replied to Erika B's discussion biospy results in the group Frontal Fibrosing Alopecia
"HI Erika, I just wanted to share I have FFA, classic in presentation.  I have never had a biopsy. My derm never suggested it she knew straight away.  Having researched FFA I have no doubt I have it, I match all the symptoms and pictures of…"
Dec 16, 2017
pauliegirl replied to Erika B's discussion biospy results in the group Frontal Fibrosing Alopecia
" Hello Erika, sorry you are in the midst of any and all of this alopecia business! My experience was that I had a biopsy and it was positive for FFA. My dermatologist did say that he had to get the biopsy from the correct place because…"
Dec 13, 2017
Erika B added a discussion to the group Frontal Fibrosing Alopecia
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biospy results

hi FFA people,I am new at all of this but I got a biopsy done and it came out negative for FFA and rather it is saying that its non-scarring alopecia and rather it is called androgenic alopecia.My doctor - who is a resident- is saying that the biopsy is wrong and that I should do the injections anyway, because I'm  clear case of classic FFA. I refused it, and asked them to retest another piece that is still in the lab. I am wondering if anyone in this group has done a biopsy and it has returned…See More
Dec 13, 2017
Mattsmate replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"I put the momesoate froate on in the AM. Before bed, I put on the topical dutasteride and then do everything else that I do before putting the rogaine in. So, I let the dutasteride sink in for 15-30 minutes."
Nov 13, 2017
Erika B replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"I wanted to ask you; what is your routine? Do you put the cream first and then wait and put the rogaine, or vice versa? and how long do you wait in between? the doctor didnt' seem to be able to guide me properly for this part."
Nov 13, 2017
Erika B replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"i'm so happy for you. this gives me hope"
Nov 13, 2017
Mattsmate replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"It seems to be. My hairdresser definitely sees growth where there was none. I don’t feel particularly objective when I look at my hair."
Nov 12, 2017
Erika B replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"you're so right to say Kidney's first!! thank you for your reply, i'll still look into the diet for now...and who the hell can refrain from bacon!!! I get you! "
Nov 12, 2017
Erika B replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"hi!! is all of it helping? "
Nov 12, 2017
akb replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"thanks! I've been on AIP for about a month and am still trying to figure it out; it feels good, mostly, although I feel a little bit weird about the quantity of meat I am eating/frequency with which I'm eating it.  I'd love to…"
Nov 12, 2017
illustr8r replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"@akb I’d probably still be on the AIP diet but my dr said even though it’s great clean food-it’s just too high in protein for my situation. All the good stuff like avocados, bananas, plantains, sweet potatoes and greens like…"
Nov 12, 2017
Mattsmate replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"I am 47. I was diagnosed in April. My loss started with my eyebrows 3 ½ gears ago. I was diagnosed hypothyroid later that year which I thought attributed to the hypothyroidism. But after starting treatment it didn’t get better. I…"
Nov 12, 2017
illustr8r replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"The AIP diet really did help me-no more itches and I felt really good. I started to add a few things back into my diet about 3 weeks ago. I have to have labs every 6 months to check my kidneys and last week I did that and my numbers weren’t…"
Nov 12, 2017
Nancy79 replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"I have noticed no change in libido. I think this side effect relates more to men than women because they can become impotent. It may be contraindicated for you with the other things you have going on. Research literature show that the shots have…"
Nov 12, 2017
akb replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"Hi illustr8r, I went on AIP in large part because of your testimony! (It's been around a month now.) How are you eating now?    thanks."
Nov 12, 2017
Erika B replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"thank you so much MJ!And congratulations on battling breast cancer. With two kids I can see how your priorities shifted to them first, and with reason. I'd be the same. I am beyond grateful for this group. I read the testimonies and cry out of…"
Nov 12, 2017

Profile Information

Relationship Status:
Single
About Me:
I was just diagnosed with Frontal Fibrosing Alopecia
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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