Cybergirl
  • Female
  • Howell, MI
  • United States
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Another step in my journey of fighting auto-immune related diseases

Started this discussion. Last reply by Karaholly Mar 22. 7 Replies

Hello everyone.  I was diagnosed yesterday with Alopecia Areata and am trying to come to grips with this new auto-immune disease.  Auto-immune diseases are not new to me since I was diagnosed with…Continue

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Latest Activity

Vijay Kumar commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Don't worry, friend... Every problem has a perfect solution. Alopecia is also cured with the proper treatment. "
May 6
Alo-mom and Cybergirl are now friends
Apr 19
Cybergirl commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Eve- that looks great! I never would have guessed that it was a topper. I just bought a topper from a company who cuts it into your hair, but the stylist put layers into it. I have never had layers in my hair ever. Now I have a 1500 topper I hate…"
Apr 14
Eve commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
Apr 14
mastros commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Xeljanz (Tofacitinib) is a medication that a lot of people have been using over the last years and has helped to grow hair.  Tofacitinib is part of a general family of JAK inhibitors which target to stop signal of the immune system related to…"
Apr 14
Eve commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Cybergirl Here is what my creation looks like. It is not hot like a wig or topper.0410190011.jpg0410190009.jpg"
Apr 10
Eve commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Hi Cybergirl I have a trick that I use it is because I have frontal fibrosing alopecia that it works for me. I'm not sure that it will cover your bald spots but it is very easy to do and it's not a full wig. I take a cotton stretchy…"
Apr 10
Cybergirl commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Thank you so much Rainy. I have come a long way emotionally and mentally since first being diagnosed. Now that I have come to grips with what I have and that I could end up losing all my hair, I can move forward. It just took me a minute to get…"
Apr 5
Rainy commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"You're very welcome.  Let me know if you have any questions or would like to talk.  I have dealt with this disease since I was five.  Best of luck to you!"
Apr 5
Cybergirl commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Thank you so much Rainy for replying.  Communities such as these are so important."
Apr 4
Rainy commented on Cybergirl's blog post Diagnosed today with Alopecia Areata
"Hi Cybergirl, I am 46 years old.  When I was about 5, I started losing my hair.  I ended up losing it all, including eyebrows and eyelashes.  My mom took me to doctors and specialists and none of them knew the cause.  They…"
Apr 3
Karaholly replied to Cybergirl's discussion Another step in my journey of fighting auto-immune related diseases
"Hi Cybergirl, sorry you're feeling lost. There are days when it would consume me.. It took me a long time to be ok with it, but there are some days that I still feel totally overcome by it. Initially I cut my hair shorter as well as wore wigs.…"
Mar 22
Cybergirl replied to Cybergirl's discussion Another step in my journey of fighting auto-immune related diseases
"I am so sorry Pamela to hear about your struggle with your auto-immune diseases.  They definitely reek havoc on our bodies and immune systems.  This really took me by surprise because through dietary changes and eliminating trigger foods I…"
Mar 22
Pamela replied to Cybergirl's discussion Another step in my journey of fighting auto-immune related diseases
"Pleased to hear you have a supporting family.  I have Alopecia Universalizes. Which means NO hair what so ever.  My first time was when I was 35, due to great stress.  It stayed gone for 10 years.  Then all came back and stayed…"
Mar 22
Cybergirl replied to Cybergirl's discussion Another step in my journey of fighting auto-immune related diseases
"Thank you so much for responding to me. Your response encouraged me very much and brought tears to my eyes about your daughters struggle with Alopecia. I have sent you a friend request and would gladly accept any information you can provide. I am…"
Mar 21
Alo-mom replied to Cybergirl's discussion Another step in my journey of fighting auto-immune related diseases
"Hello from a former Michigander. First you need to contact the National Alopecia Areata Foundation and they can provide so much information about research, conferences, clinical trials etc... They are a very good resource. Next, I agree with the…"
Mar 21

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Alopecia areata
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Yes - I am 18 or older

Cybergirl's Blog

Diagnosed today with Alopecia Areata

Posted on March 19, 2019 at 10:03pm 10 Comments

Hello everyone. I am so happy to find this online community. I was officially diagnosed with alopecia areata today and spent a lot of time crying. I am not new to auto-immune diseases with having Hashimotos and Celiac's already. My bald spots literally came out of no where and now I am trying to get my mind wrapped around what this means for me. The doctor prescribed a steroid to put on my scalp, and would like to hear the communities experiences and opinion on this. Thank you 

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