I am so glad I found this site when I googled Alopecia!
I'm a 53 yr old married Grammy who has struggled with baby fine thinning hair and eyebrow loss almost all of my life. In the past 10 years, I have had numerous tests, tried an untold number of prescription drugs (oral and topical) and taken expensive supplements...In 2007 I had hysterectomy because my heavy extended periods and fibroids were supposedly causing my ferritin and iron levels to bottom out which caused my hair loss?!? Well the surgery didn't stop the hair loss, I lost even more hair. I had another Biopsy June 2010, with the diagnosis of Severe AGA or FPB. In August 2010 my Dermatologist recommended a Wig shop, and the ladies there said I didn't have thick enough hair for the combs used for attaching a fall, topper, or any type of hairpieces or extensions. My son was getting married in less than a month, and I was loosing even more, my left side was almost completely bald.
Sunday August 29th 2010 I got fed up with not being able to do anything with what I little I had left, my so called pony tail wasn't even as big around as a dime! So I cut it and shaved the rest down to 1/8" it sure didn't take very long...I suspect my Alopecia may be more than the biopsied AGA or FPB maybe Diffuse AA? it is so sparse over most of my head now! I have several small odd shaped areas where there aren't any hair follicles I go back to my dermatologist in a couple of weeks for another Alopecia and mole check.
This site is amazing! I hope someday to be able to encourage others!!! BTW my husband has been bald (MPB) almost all of our time together. I think he looks awesome when he keeps it shaved!!!
Thanks for the friend request, Christy!! Life is going great even with alopecia. It's just a part of my life, most of the time I even forget that I have it. Of course, unless it's really windy. (; I hope all is going well for you too. Take care..
Thanks for the friend request. I don't get on here very often anymore because I'm still in denial after 16 years of this balding process. I am completely bald now in fact my head looks a lot like yours only my fine hairs are completely white. Even when I first started losing my hair and new little growths grew back they were white. Part of it they say. Good to see your dark hair! Love your cute, stylish wig!!
You just inspired me to get on here more often and communicate with people who know exactly what I am going through. Have a great week!
Welcome to the International Alopecia Day Group, Christy! In answer to your question, to be involved, all someone has to do is something to commemorate the Day, wherever they live. You can organize a group or small meeting through posting a discussion about your city on the International Alopecia Day Group. The time is a bit short for that this year, though.
Some people have a photo of themselves taken and send me that and I include it in my slide show. ( Watch last year's video to see what I mean.) Other people organize a small picnic, walk, social gathering, with friends including others who have hair loss. It can be a very small gathering, or a big event.
The idea is to have fun and to let people know about Alopecia Areata and hair loss. Someone with Female Pattern Baldness like yourself is welcome.
My original idea was for ONE day when people who hadn't tried going out in public bald would do that - sort of a coming out day, and a chance to take that first step. That idea is still part of IAD, but now it's about simply celebrating and raising awareness. (You can be wearing a wig - being wigless is optional, but that's awesome if you do.)
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