Cassidymain
  • Female
  • Westfield, IN
  • United States
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Cassidymain's Discussions

PF 06651600 Trial

Started Feb 21 0 Replies

I just wanted to create a post to document my experience on the PF 06651600 study. I’m not sure how good i’ll be about posting but i’ll make updates when anything happens. It’s a year long…Continue

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Latest Activity

Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s actually a jak 3 inhibitor! The results seem to be really good with less side effects. It’s been fast tracked so it seems to be looking good for getting approved. Phase three ends beginning of 2020 and then there’s a two year…"
Jul 14
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kat, im on the trial for the PF-06651600 drug! It’s in the works to be the first approved drug made specifically for alopecia. i’m in the trial for the last stage :) "
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for responding! Congratulations on full regrowth that must feel amazing "
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Do you recall how long it took for him to get terminal growth? "
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for your response! I’m so excited with the coverage i have but it makes me more impatient to not wear a wig as soon as i can. This gives me a good idea of what to expect. And yes! This is the last phase of the trial and then there…"
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is a trial with Pfizer for the PF-06651600 drug! "
Jul 12
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone! I have followed this thread for almost a year now and i love reading all the success stories. I am not on xeljanz but i am in a trial for a different Jak inhibitor made specifically for alopecia. It’s working really well! I am…"
Jul 11
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That’s interesting! What is the claritin supposed to help? Do you have all your hair back? I was wondering if i should up my protein intake, i already cut out gluten and dairy. And is that hair skin and nails brand particularly good compared…"
Apr 5
Cassidymain replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I’m new but i was wondering if anyone does anything extra to try to help assist in the hair growth and quality of hair? Anything related to diet, lifestyle, supplements. Does taking hair skin and nails supplements help while on a jak inhibitor?"
Apr 4
Cassidymain posted a discussion

PF 06651600 Trial

I just wanted to create a post to document my experience on the PF 06651600 study. I’m not sure how good i’ll be about posting but i’ll make updates when anything happens. It’s a year long study and being considered for an extension. Today is my first day taking the medication. See More
Feb 22
Cassidymain replied to kimk's discussion Pfizer PF 06651600- Breakthrough Technology Jak 3
"Will do. i tried to start my own discussion for it but it didn’t post, so i guess i’ll just update here!"
Feb 22
Cassidymain replied to kimk's discussion Pfizer PF 06651600- Breakthrough Technology Jak 3
"I’m on this trial. Just took my first dose today!"
Feb 22
Cassidymain and Danny are now friends
Nov 18, 2018
Cassidymain and Jeremy are now friends
Aug 19, 2018
Cassidymain replied to Nick's discussion Treating other medical conditions to cure alopecia?
"I cant confidently say what causes alopecia but i do think it makes sense that theres something off in the body in people who have it. I think it varies for everyone and is hard to find, and then if you find it it can be harder to treat. But as for…"
Aug 19, 2018
Cassidymain replied to Nick's discussion Treating other medical conditions to cure alopecia?
"I cant confidently say what causes alopecia but i do think it makes sense that theres something off in the body in people who have it. I think it varies for everyone and is hard to find, and then if you find it it can be harder to treat. But as for…"
Aug 19, 2018

Profile Information

Relationship Status:
Single
About Me:
I wasnt sure whether to put alopecia totalis or universalis because ive lost 99% of my hair but i still have some eyebrows, upper eyelashes, armpit hair, and some pubic hair.

Edit: All my eyebrows and eyelashes have grown in since i wrote this. dont have arm and leg hair or head hair, only very short fine white hairs that havent gotten any longer on my arms and a bit on legs, none on head, lost a small patch on my pubic area awhile ago and that is growing in some.

Saw this growth after treatment for chronic ebv/lyme. Am getting second treatment soon and will see what happens :)
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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