Aly
  • Female
  • Perth, WA
  • Australia
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Aly's Friends

  • Feedingsparrows
  • Rose
  • PamFitros@boldlybaldwomen.com
  • Tomy Pereira
  • LeslieAnn Butler

Aly's Discussions

Regrowth starting yeeehahhh

Started this discussion. Last reply by Pam D. Jun 26, 2015. 2 Replies

I have first signs of regrowth on my patches after 6 months. I feel its a combination of healthier diet (more fruit and veg, no fizzy drinks, reduced alcohol intake, reduced processed foods), reduced…Continue

Just what does a dermatologist do if you don't want cortisone or other medications?

Started Feb 3, 2015 0 Replies

Diagnosed early December 2014 and I finally have my first Dermatologist appointment today.I'm not interested in medications or injections, so I'm interested to hear what advice he will have for…Continue

Tags: treatments, white, spots, Vitiligo, tests

Naturopathy

Started this discussion. Last reply by Debwp Jan 22, 2015. 10 Replies

Hi allI'm about to go to my first naturopath appointment with a renowned naturopath in Perth, Western Australia. He doesn't take on new patients anymore but I think he may have been intrigued by my…Continue

Tags: Naturopathy

At what point do you REALLY start to accept it?

Started this discussion. Last reply by Jewelzy Feb 15, 2015. 57 Replies

I discovered my first spot just under a month ago. It grew large, fast. I shaved the underneath of my hair. The a week later I discovered a few smaller ones closer to the top of my head.Last night, I…Continue

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Profile Information

Relationship Status:
In a Relationship
About Me:
I am an arts educator at a theatre company who travels to regional WA a lot for work, engaging with the community.

I have two boys, one 18 and one 15 - he is High Functioning on the autism spectrum. My partner and I live with the boys in Perth, Western Australia and we have two Weimaraner dogs and a cat who thinks he is a dog and is named after a hobbit.

I have recently been diagnosed with AA. Currently one large spot at back of head and several smaller ones above it.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://vintagetwists.blogspot.com.au/

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Aly's Blog

Whirlwind week of highs and lows, wins and losses

Posted on January 23, 2015 at 5:00am 2 Comments

So, where could I possibly start?

Having never been to a naturopath before, I took the advice of a friend and sought out a very well known one in my area. In the month I waited for my appointment, anyone I mentioned it to seemed to have heard of him and his silky skills. I got more and more excited as the appointment approached, which coincided with repeated trips back to my hopeless GP as we went through the process of blood tests and him delivering results in a monotone, emotionless…

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Do you believe in signs?

Posted on January 1, 2015 at 8:55pm 1 Comment

Do you believe in signs?

For well over a year now I've been seeing feathers in my path. Mainly at the park when I'm walking my beautiful Weimaraner dogs, but also in other places that are more random, like in the city on my path to work.

Anyway, so that's the feathers. Then, shortly after my diagnosis with AA, I was op shopping and found a stack of Barbie and Brats dolls. They were so cheap that I grabbed all the ones that didn't have missing limbs for my nieces and action man…

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Warmest Christmas greetings to you from Perth, Western Australia

Posted on December 26, 2014 at 5:09am 1 Comment

Merry Xmas to you all! How did everyone survive the last two days? I had a beautiful day yesterday with both my family and my partners at our house. We blew tradition to the wind and had tapas lunch instead of the traditional food. Swimming and pool volleyball with the wee folk (until the dogs popped the ball - lol) and a few too many champagnes for the hostess! Today though, I'm exhausted and have ignored the world. It's been all about crochet and tv for me all day. You?

Waaaaaaaaaaaaaaaaaa spots galore

Posted on December 18, 2014 at 6:30pm 3 Comments

I was so will-powered up at the work xmas party yesterday. I ignored the cheese platters and chocolate, strudel and cheesecake. I ignored the bread, bread sticks, dips and feta salad. There was still plenty of GF options and dairy-free things for me to eat and I was full to bursting.

Came home and bought the family pizza while I happily ate a mango and a peach.

Then as I'm watching TV I discover several new spots, all at the back of my head. I've been doing (nearly) everything…

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Comment Wall (10 comments)

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At 2:26pm on February 22, 2015, Tomy Pereira said…

Hi Aly, thanks for accept me :) I also have alopecia universalis, if you want to talk a little with me about it, I am with open arms.

At 11:05pm on January 9, 2015, LeslieAnn Butler said…

Thank you for the sweet note! I am so glad you like the book and that it helped you. Big hugs to you!

Leslie Ann

At 5:29pm on January 6, 2015, PamFitros@boldlybaldwomen.com said…

Aly,

I'm so glad you were able to find it! Right now I am working on learning how to podcast as a way to reach more people. Women like you are the reason. What good is a survival guide for bald women if they don't know it is there? You feedback is kind and very appreciated.

I was so excited to know that a bald woman in China has read and loved the book. Another woman in Japan takes the train every week to a remote village in Japan where there is a group of bald women who don't speak English. She asked my permission to translate a chapter a week into Japanese for them - not to sell the book in Japanese, but just to help this small group of women. I was so honored.

We are a sisterhood, we women struggling with hair loss in our hair infatuated society. It doesn't matter where we live or who we are, we all have issues with female hair loss. Whatever we can do to help each other and the people in our lives is a privilege.

Thank you so much, Aly. What a lovely end to this day.

At 10:07am on December 29, 2014, PamFitros@boldlybaldwomen.com said…

Aly, I opted out of dermatologists and naturopaths. With every hair on my body gone in two months there wasn't much point.Painful shots and special diets weren't worth the time and money. When I had alopecia areata in my younger years, the spots grew back in on their own when they decided to. One woman who shared her story in Boldly Bald Women said she wished she'd put all the money she spent on bogus treatments and head coverings into a travel fund and used it to take a dream vacation.

I'm with her. That's my story and I'm stickin' to it. : - )

Pam

At 9:55am on December 29, 2014, PamFitros@boldlybaldwomen.com said…

Hey there Aly,

I checked with my editor - it should be available in Australia - at least the ebook.

As for Christmas - I caught a virus and spent the day croaking out words and drinking tea, huddled under blankets, watching 4 seasons of Game of Thrones between naps. Today is better and I"m back at work.

At 2:05pm on December 27, 2014, PamFitros@boldlybaldwomen.com said…

Do you have a Kindle? The ebook is supposed to be available in Australia. If you can download ebooks and can't find it online, please let me know at psfitros@att.net and I'll get in touch with my publisher to find out what the problem is.

I loved the movie...I just am not ready for it all to end. Pippin was doing a teaser for a comedy program called Saturday Night Live in the States. The man talking to him was going on and on about the Hobbit movies and the Lord of the Rings Trilogy. Finally Pippin turned to him and said: "All the movies are done now, and I don't want to talk about them. I'm trying break the...hobbit (habit). Maybe you had to be there, but it sure was cute!

At 10:07am on December 22, 2014, PamFitros@boldlybaldwomen.com said…

I see you are all things Hobbit! Did you see the last movie that came out? It's hard to believe it's all over now. Just like with the books, I wanted the movies to continue with the stories...what happened to everybody after everything was over...what happened to everyone who went west?  Still, now we can go back and visit from beginning to end...a whole other world.

At 7:03pm on December 18, 2014, LeslieAnn Butler said…

I know how hard it can be! Sometimes I think it's better to have no hair at all, like I do.

At 4:53pm on December 18, 2014, PamFitros@boldlybaldwomen.com said…

Hi Aly,

Welcome to Alopecia World! Okay, I'm all things Hobbit - I had a Siamese cat named Breegalad (remember Quick Beam - the hasty Ent?) What is your cat's name?

There is much to offer you in Alopecia World. Look around and  check out the groups and discussions. Join in anything that interests you.

I am an active member of Alopecia World. Is there anything I can do to help you?

Pam

At 2:09am on December 18, 2014, LeslieAnn Butler said…

Hello Aly, and a warm welcome to AW!

How are you today?

 
 
 

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